What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

Dilbert Creator Scott Adams to Deliver Keynote Address at NSDA Symposium

The National Spasmodic Dysphonia Association proudly announces that Dilbert creator Scott Adams will deliver the keynote address at the 2015 NSDA symposium on May 16, 2015 in San Francisco. Having struggled with spasmodic dysphonia since 2005, the popular cartoonist is now helping to spread the word about SD and to support others who are living with the challenge of this neurological voice disorder.   More...

NSDA President Charlie Reavis expresses appreciation to Adams for his participation in the conference. “As keynote speaker for our annual patient symposium, Scott will inspire people suffering from SD with his own story of perseverance, determination and success in spite of the communication barriers caused by spasmodic dysphonia.”

The NSDA Symposium will feature panels of physicians, researchers and speech pathologists who are expert in the diagnosis, treatment and etiology of spasmodic dysphonia. SD causes involuntary breaks in speech, making the voice sound strained and shaky in the more common adductor form or breathy, fading away to a whisper in the rarer abductor form. Affecting over 50,000 in the United States, the search for a diagnosis can be a long and frustrating road.

Adams speaks to the importance of resilience in his recently published book How to Fail at Almost Everything and Still Win Big: Kind of the Story of My Life. While addressing how to embrace and learn from failure in order to achieve success, Adams discusses his struggle with spasmodic dysphonia as a central theme in a lifetime of experience in overcoming adversity.

Spasmodic dysphonia impairs communication and can make it a constant struggle to get sentences out. This can affect relationships, causing people to feel isolated or to withdraw. As Adams has stated, “You don’t feel connected to the world just because you are listening. You feel connected when you know you have been heard.”

Click here to register for the Symposium

Support NSDA in the Bay to the Breakers Race on May 17

It all started as Board Member Stephie Mendel's "wild fundraising idea" to have an NSDA team in the upcoming Bay to Breakers Race on May 17 which is the day after the NSDA Symposium. With her enthusiasm and that of the other Board members, Greater Sacramento Area Support Group Leader Jan Lant took up the cause and found eager runners in her children to represent the NSDA. More...

“I was shocked and so excited when Christie (daughter, 40's) and Matt (son-in-law) agreed to participate in the Bay to Breakers run/walk fundraiser on behalf of the NSDA. When they responded that they would do it if we could just watch our granddaughter (which was like asking kids if they want ice cream), we were overjoyed! Because the symposium is in San Francisco near home this year, they said that they welcomed the opportunity to support me and the good cause of the NSDA,” Jan shared. The race, Bay to Breakers, is the oldest consecutively run annual footrace in the world, a staple to the City by the Bay since May 1912.

From the start of Jan’s SD journey, her children have always been there for her, from driving Jan to her first botulinum toxin injection appointment to continually being supportive and understanding. Jan shared, “Now that it's been 10 years since that treatment, I am so grateful for their readiness to support me and the NSDA, which was the other part of the lifeline that connected me to others with SD, to learn about it, make the most of it and to help others." Jan, her husband, Dennis Delgado, and their children will join us at the NSDA Symposium.

This meeting will feature panels of physicians, researchers and speech pathologists who are expert in the diagnosis, treatment and etiology of spasmodic dysphonia, along with "Dilbert" creator Scott Adams who will be delivering the keynote speech. “We are really excited to run/walk the race. We are participating in the run because we want to support my mom and the NSDA but didn't expect this level of recognition. Hopefully this raises funds to help people with spasmodic dysphonia,” Christie and Matt shared. We thank them for their efforts and invite you to join us in supporting Matt and Christie by making a donation to the NSDA by clicking here.

SAVE THE DATE for the 2015 NSDA Symposium

The National Spasmodic Dysphonia Association is dedicated to providing support and education for those living with spasmodic dysphonia and we are pleased to announce the 2015 Symposium on Saturday, May 16, 2015, in South San Francisco. More...

The meeting will bring together expert faculty to discuss the latest information on spasmodic dysphonia along with a very special Keynote Speaker, Dilbert Creator Scott Adams. In addition, it will provide an opportunity for people with SD to network and learn from one another. Click here for more information.

NSDA Celebrates 25 Years

A video Message from Scott Adams creator of "Dilbert" 
The National Spasmodic Dysphonia Association was established as a result of the foresight and desire to help people cope with spasmodic dysphonia. It was brought to reality with the help, dedication and compassion of our Founding President, Larry Kolasa and Daniel Truong, M.D.  More...

From humble beginnings, the perseverance, patience and can-do attitude of this small group of volunteers has grown into a strong organization that provides a voice for those living with spasmodic dysphonia. Let's continue those efforts to ensure that the next 25 years will bring much greater understanding of spasmodic dysphonia through expanded research with improved and more effective treatment options. Working together with one, loud and clear voice, we can achieve our Vision for the NSDA - "Ensure the ongoing viability of the organization that will continue to lead the effort to eradicate Spasmodic Dysphonia" can and will become a reality.

Click here to read more about the history of the NSDA and download the 25th Anniversary Booklet.  

 

[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505