What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

Use Your Voice to Help Raise Awareness about Spasmodic Dysphonia

September is Dystonia Awareness Month.  We ask you to join us in raising awareness about spasmodic dysphonia. Click "more" for ideas for how you can help with outreach.

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Ways to Raise Awareness about Spasmodic Dysphonia

Tell your friends and family about spasmodic dysphonia. People may be unsure if they should ask about your voice, so by sharing your story you can help them better understand. 
 
View and share videos from the NSDA YouTube channel. There are videos from past NSDA Symposiums from some of the leading experts on SD. 
 
Follow and share social media post from the NSDA. Be sure to add your story to make it more personal. We are on Facebook, Twitter, and Instagram.
 
Use NSDA Awareness Tools, including cards, a button, and wristband, to help share information about SD. 
 
Reach out to your local healthcare professionals and provide materials from the NSDA so more people can find support. Email us to request materials that you can distribute. 

Educate those in your community by approaching local media outlets about your SD story. 

Connect locally through NSDA Support Groups or Area Contact Persons. September meetings are listed below, and there are more in October! None in your area? Contact us to start one or to become an Area Contact.

Let us know how you are educating others about spasmodic dysphonia. Together, we will share our voices to speak out for spasmodic dysphonia! 



 

2017 Symposium Summary

Over 100 people attended the 2017 NSDA Symposium in Nashville, TN, on Saturday, May 6, 2017. On Friday night, attendees were greeted by the bluesy sound of a slide guitar played by NSDA Support Group Leader Wendy Garrison. That was followed by the sharing of personal stories at the Welcome Party.  Saturday included presentations from SD medical experts, utilizing mindfulness as a tool, and several breakout sessions which focused on living with SD, the impact of SD on family and friends, and abductor SD.    More...

Kevin is the President of Hancock Lumber Company and was diagnosed with spasmodic dysphonia in 2010. Five years after, he published his book "Not for Sale: Finding Center in the Land of Crazy Horse" about his personal experience with SD and how this seeming liability turned out to be a blessing for him. Kevin sold copies of his book at the Symposium with the proceed going to the NSDA. Kevin's book can be ordered hereClick here to read the Symposium summary, and be sure to view the presentations on the NSDA's YouTube channel at www.youtube.com/user/NSDA300. Special thanks to NSDA volunteer Andy Harness for recording the meeting! 

Top left: Gwendolyn Sims Davis, Fred Hosier, Dennis Delgado, Jan Lant, Stephie Mendel, and David Barton. Top right: Group photos of Symposium attendees. Bottom Left: President Charlie Reavis presents Keynote Speaker Kevin Hancock with an award. Bottom center: Dr. Teresa Kimberley, SLP Melissa Kirby, Dr. C. Gaelyn Garret, Charlie Reavis, and Dr. Gerald Berke. Bottom right: Wendy Garrison shares her music at the Friday Welcome Party.


Warren Bandel joins the Board

We are excited to welcome Warren Bandel to the NSDA Board. Having lived with spasmodic dysphonia since he was in 6th grade, Warren is dedicated to the Mission of the NSDA. He has served as an Area Contact Person since the mid-90s. In 2011, Warren attended his first NSDA Symposium and Leadership Day in Orlando, FL. Inspired by the personal stories and the positive experience, Warren's motivation to do more grew.    More...

Then in 2015, Warren organized his first NSDA Benefit Concert in Rochester, MN. This annual event has continued to grow and even travel, with a concert in Mankato, MN. Warren hopes to expand fund-raising for the organization in his new role on the Board. Click here to read more about Warren.

SD Career Corner

Professionally, Dorothy Tannahill-Moran is known as the "Introvert Whisperer," helps people to find career success by providing unique, actionable career advice. Dorothy shares her professional advice but with a twist of her personal understanding of having spasmodic dysphonia." Click here to read her article, "When Your Voice Creates a Roadblock to your Career; Find Another Path. More...

Dorothy also has had spasmodic dysphonia for about 20 years, first noticing it when she was making a presentation to her CEO. "I wasn't nervous but my voice had a definite "warble" to it. It took another seven years for it to get to the point where I knew something was wrong. I guess I'm lucky and grateful that it never occurred to me to do anything differently because of my SD. I have viewed it as just another challenge life has thrown my way but I do acknowledge that for many people with SD, it is a life-altering journey." 

[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505