What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

Support the NSDA

The National Spasmodic Dysphonia Association was created through the passionate commitment of a small group of patient advocates and medical professionals, all of whom dedicated themselves to providing the spasmodic dysphonia community with a national organization. That passion has continued to guide the organization, and we thank all of the wonderful people who have supported the NSDA!
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We hope you will support the NSDA with a donation to the 2015 Challenge Grant where each dollar you contribute will be matched by our Board and others across the community up to $75,000. Whether you are a person with SD, a family member, researcher, physician, speech-language pathologist or friend, you can help everyone with SD through your generous contributions.

By making a gift to the NSDA, you make a commitment to advancing research, promoting awareness and advocacy, and providing support to those living with spasmodic dysphonia. As the only organization dedicated solely to spasmodic dysphonia, the NSDA operates on a small budget with more than 84% of our dollars spent on research, patient support and education

Join us in our efforts to achieve the NSDA Vision...Ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia

   

Finding My Own True Voice: Kevin Hancock

Finding My Own True Voice: Kevin Hancock

President of Hancock Lumber Company, a sixth-generation family business, Kevin Hancock (pictured right) has been living with adductor spasmodic dysphonia since 2010. He recently authored the book, "Not for Sale: Finding Center in the Land of Crazy Horse" which is his memoir that traces his journey deep into Indian country, and even deeper into his own soul. More...

In the current issue of Our Voice, Kevin shares some insights on this project and how it impacted his journey with spasmodic dysphonia, "At the time, I was searching for my voice. I was searching for both a path to regain strength in my outer, speaking voice as well as a path to deeper connectivity with my inner voice-the essence of who I am. I believe both voices are connected and SD patients have a unique opportunity to make that connection due to the manner in which the disorder provides a chance to stop, think, and listen." 
Kevin says, "My book explores the notion that we are all here on this earth seeking our own true voice. We all come from a tribe and that tribe pulls on us to act in certain ways. At the same time, each soul is here to individuate - to find its true callings - and, that is only possible when we transcend the busyness and momentum of our own tribes to listen to what our souls are saying. Spasmodic dysphonia is an invitation to listen. It took me quite a few years to realize this, and I doubt I ever would have learned this lesson without SD." 

Click here to read the full interview and learn more about his new book.  

SD Educational and Awareness Events

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Raising awareness and educating about spasmodic dysphonia is a priority for the NSDA, and we were ably represented at the following conferences/events:

The NSDA exhibited at the Fall Voice Conference in Pittsburgh, PA, and supported four travel grants (top photos from left): 
  • NSDA Board Member Fred Hosier with Dr. Elizabeth Erickson-DiRenzo, Stanford University Medical Center, Stanford, CA
  • Dr. David Francis, Vanderbilt Voice Center, Nashville, TN, with NSDA President Charlie Reavis
  • Dr. Brent Richardson, Bastian Voice Institute, Downers Grove, IL

Board member Dot Sowerby (right bottom) represented the NSDA at the American Speech Hearing Association Conference in Denver, CO. Joining her at the booth was Shannon Porter (pictured center with Dot) and Bill Dickerson.


 
Educational events included:

  • Four members of the Greater Metro DC Support Group, Leader Lois Jackson, Shannon Moorman , Paul Maiers, and Pete Senden, shared their story at the Brain Health Fair sponsored by the American Academy of Neurology in Washington DC. Pictured center left are Lois and Shannon
  • Chicago Support Group Leader Wendy Kerr along with Victor Chears and Executive Director Kimberly Kuman participated in a 2-hour class for Graduate level Speech Pathology students at Elmhurst College in Elmhurst, IL. Pictured bottom left are Wendy, Victor, and the professor for the class, Dr. Laura Froeschke.
We thank all of our representatives who help educate and raise awareness about spasmodic dysphonia!  

Benefit Concert for Dystonia

Congratulations to the Dystonia Support & Advocacy Group of San Diego County for hosting its 4th Dystonia Benefit Concert with Juice Newton and the Trio Group on October 1st.    More...

This sold-out show was a fun and entertaining evening benefiting the NSDA and the DMRF. Paul Fowler has been instrumental in organizing these events because of his long-time friendship with Juice and his connection with Martini's Above Fourth where the event took place. Our thanks to Paul, along with Support Group Leader Martha Murphy, for all of their efforts to ensure another successful event! Pictured is Juice Newton (center) with Martha and Paul on either side of her along with her band.

[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505