What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

New Awareness Materials

New Awareness Materials

The NSDA is excited to introduce some new tools help raise awareness about spasmodic dysphonia. A new button, awareness cards, and visor card for your car are available. Click here to order the new materials!    More...

This button is a creative way to let others know about the spasmodic dysphonia. It measures 1.75" x 2.75" and was designed by Andrea Butteworth who has SD. Andrea shared that the goal of these buttons is help many feel more confident and open the door for conversations about our unique vocal disability. Click here to read Andrea's story.

Explaining that you have a voice disorder can help make a situation less stressful. Three new business size cards provide an easy way explain to others about spasmodic dysphonia and raise awareness. These are designed to keep in your wallet and show people to help explain why you might be having difficulty talking. For cards to give to people to explain what spasmodic dysphonia is, order our 3-fold card.

This visor card (5.5” x 8.5”) will help explain what spasmodic dysphonia is, especially in stressful situations. Special thanks to Deb Lindsey who suggested this idea to the NSDA.

Click here to order the new materials! 

Investment in Research: NSDA grant yields larger return

The National Spasmodic Dysphonia Association funded a seed grant for Dr. Teresa Kimberley from the University of Minnesota to investigate how the brain areas involved in vocalization are connected to each other, and with the other areas of the brain, and how those connections are different in people with SD compared to people without SD.   More...

Our investment in this research has allowed the collection of essential preliminary data that was used to submit a request for a grant to the National Institute of Deafness and Communication Disorders (NIDCD) in the National Institutes of Health (NIH). We are thrilled to report that Dr. Kimberley has been awarded $1.5 million dollars to continue this important research on spasmodic dysphonia!  The grant is entitled, A Multimodal Assessment of Neurophysiology in Focal Dystonia, and we will update you on progress and recruitment! Thank you for your support to make this work possible.


Finding Your Voice in the Workplace

Professionally, Dorothy Tannahill-Moran is known as the “Introvert Whisperer,” helping people to find career success by providing unique, actionable career advice. Dorothy will be sharing her professional advice but with twist of her the personal understanding of having spasmodic dysphonia. Click here to read her first article, “Own Your Voice Professionally but Don’t Let It Define You,” More...

Dorothy also has had spasmodic dysphonia for about 20 years, first noticing it when she was making a presentation to her CEO. “I wasn’t nervous but my voice had a definite “warble” to it. It took another seven years for it to get to the point where I knew something was wrong. I guess I’m lucky and grateful that it never occurred to me to do anything differently because of my SD. I have viewed it as just another challenge life has thrown my way but I do acknowledge that for many people with SD, it has been a life-altering journey.”  


SD and the Americans Disabilities Act

Many individuals with voice disorders like spasmodic dysphonia may not realize that their conditions can be classified as disabilities under the law, entitling them to workplace accommodations and time off to pursue medical treatment.  More...

The Americans with Disabilities Act Amendments Act of 2008 (ADAAA) resulted in changes to the legal definition of disability and substantially affected how those with voice disorders may qualify for reasonable accommodations under the law. However, there has been little guidance and a lack of awareness about these changes in the voice literature. In this article, Dr. Derek Isetti examines the Americans with Disabilities Act of 1990 (ADA), the changes made in 2008 (ADAAA), and how the law applies to individuals with voice disorders. Click here to read the article.


[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505