Join us for the 2017 Symposium in Nashville, TN
The National Spasmodic Dysphonia Association invites you to attend our Symposium on Saturday, May 6, 2017, at the Embassy Suites by Hilton Nashville Airport in Nashville, TN. Join us for fellowship, education, and fun. The event will host some of the leading experts in the field of spasmodic dysphonia while providing the opportunity to meet others who share a similar experience. More...
Hear of the some of the leading experts in the field of spasmodic dysphonia. Confirmed speakers include (more to be added):
Vanderbilt Voice Center - Gaelyn Garrett, M.D. and David Francis, M.D.
UCLA, Los Angeles, CA - Gerald Berke, M.D., NSDA Scientific Director
University of Minnesota, MN - Teresa Kimberley, PT, Ph.D., NSDA Grant Recipient
You Are The Expert: SD and Social Situations
With the holidays approaching, we asked "How do you handle social situations, like family gatherings or parties?" We received some great responsed and complied them in a list. Click here to download it. We hope you find it helpful! This is the first version and we will keep adding to it. More...
If you have additional suggestions, please let us know, because all of you are the experts!
The Complexities of Spasmodic Dysphonia brought to light in the Wall Street Journal Article
With the focus on the complexity of understanding SD, it features researchers who are approaching SD in different ways, including Dr. Kristina Simonyan. Also included is the personal side of SD. Tommy Johnson, who has lived with SD for over three decades talks about the challenges of SD and how he is contributing to the research. Click here to read the article online or download a PDF. We encourage you to share the article to help continue to raise awareness!
Midwest Educational Conference Recap
The National Spasmodic Dysphonia Association hosted its 2016 Midwest Conference on April 30, 2016 in Des Plaines, IL. Click here to a read of summary of the Conference. Also, recordings of some of the session are available on YouTube by clicking here More...
On Friday evening, prior to the conference, a Welcome Reception provided the opportunity for fellowship and support, when people shared their personal experiences. President Charlie Reavisstarted the program on Saturday morning with an overview of the mission of the NSDA. The first sessions of the Conference focused on the medical aspects of spasmodic dysphonia with Dr. Robert Bastian presenting an overview of the disorder, and Dr. Gerald Berke discussing treatment options. Several researchers, some who are funded by the NSDA, including Drs. Kristina Simonyan, Mo Chen, Michael Hammer, and Rita Patel, shared their different approaches to better understanding spasmodic dysphonia, After lunch, Dr. Laura Froeschke talked about how spasmodic dysphonia can affect your identity, and Speech Language Pathologists Jan Potter Reed and Brienne Ruel provided voice therapy tips and recommendations in break-out sessions. One person commented, "It was great meeting so many people who understood what I was going through and not being embarrassed to speak," and another said "What I enjoyed was the variability of approaches to SD research, various treatment options, and integrating the problems of SD in our lives." Our thanks to all who attended!