What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

Three NSDA Educational Conferences for 2016

The NSDA will host three Educational Conferences this year that will be held in Des Plaines, IL (April 30), Scottsdale, AZ (October 16), and Philadelphia, PA (November 5). Similar to the symposiums, these events will host leading experts in the field of spasmodic dysphonia while providing the opportunity to meet others who share similar experiences. More...

April 30, 2016 - Des Plaines, IL

Join us on Saturday, April 30, to hear the latest about treatments from experts Dr. Robert Bastian and Dr. Gerald Berke. For the first time, you will hear updates from a research panel of investigators funded by the NSDA. You can participate in workshops for voice therapy with SLPs Jan Potter Reed and Briene Ruehl along with a session with Dr. Laura Froeschke that explores personal identity when living with a chronic disorder. You can join us for the Welcome Reception on Friday evening and also for the optional dinner on Saturday evening. This event will take place at the Hilton Garden Inn O'Hare in Des Plaines, IL, which is located at 2930 S River Rd, Des Plaines, IL 60018. <a href="http://events.constantcontact.com/register/event?llr=po49a9bab&oeidk=a07ecipokuua22f4712">Click here to register.</a>

Save the Dates:
Watch for updates on these upcoming Conferences:
Sunday, October 16, 2016 - Scottsdale, AZ
Saturday, November 5, 2016 - Philadelphia, PA

With your support we did it! We surpassed our Challenge Goal

My sincere appreciation to all who supported the NSDA in helping us achieve our Challenge Goal! We established a pledge level of $75,000 with a target of $75,000 in contributions for a total of $150,000. I am excited and delighted to report that we achieved $78,000 in contributions giving us a total for the Challenge of $153,000! Your support keeps driving the Mission of the NSDA forward. More...

Our plans for 2016 include funding more research, hosting three Educational Seminars so we can reach more people, launching a redesign of the NSDA website and the implementation of the new database system, along with webinars to keep you updated and connected. You are the NSDA and we thank you for all YOU do!

Charlie Reavis, President

Finding My Own True Voice: Kevin Hancock

Finding My Own True Voice: Kevin Hancock

President of Hancock Lumber Company, a sixth-generation family business, Kevin Hancock (pictured right) has been living with adductor spasmodic dysphonia since 2010. He recently authored the book, "Not for Sale: Finding Center in the Land of Crazy Horse" which is his memoir that traces his journey deep into Indian country, and even deeper into his own soul. More...

In the current issue of Our Voice, Kevin shares some insights on this project and how it impacted his journey with spasmodic dysphonia, "At the time, I was searching for my voice. I was searching for both a path to regain strength in my outer, speaking voice as well as a path to deeper connectivity with my inner voice-the essence of who I am. I believe both voices are connected and SD patients have a unique opportunity to make that connection due to the manner in which the disorder provides a chance to stop, think, and listen." 
Kevin says, "My book explores the notion that we are all here on this earth seeking our own true voice. We all come from a tribe and that tribe pulls on us to act in certain ways. At the same time, each soul is here to individuate - to find its true callings - and, that is only possible when we transcend the busyness and momentum of our own tribes to listen to what our souls are saying. Spasmodic dysphonia is an invitation to listen. It took me quite a few years to realize this, and I doubt I ever would have learned this lesson without SD." 

Click here to read the full interview and learn more about his new book.  

SD Educational and Awareness Events

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Raising awareness and educating about spasmodic dysphonia is a priority for the NSDA, and we were ably represented at the following conferences/events:

The NSDA exhibited at the Fall Voice Conference in Pittsburgh, PA, and supported four travel grants (top photos from left): 
  • NSDA Board Member Fred Hosier with Dr. Elizabeth Erickson-DiRenzo, Stanford University Medical Center, Stanford, CA
  • Dr. David Francis, Vanderbilt Voice Center, Nashville, TN, with NSDA President Charlie Reavis
  • Dr. Brent Richardson, Bastian Voice Institute, Downers Grove, IL

Board member Dot Sowerby (right bottom) represented the NSDA at the American Speech Hearing Association Conference in Denver, CO. Joining her at the booth was Shannon Porter (pictured center with Dot) and Bill Dickerson.


 
Educational events included:

  • Four members of the Greater Metro DC Support Group, Leader Lois Jackson, Shannon Moorman , Paul Maiers, and Pete Senden, shared their story at the Brain Health Fair sponsored by the American Academy of Neurology in Washington DC. Pictured center left are Lois and Shannon
  • Chicago Support Group Leader Wendy Kerr along with Victor Chears and Executive Director Kimberly Kuman participated in a 2-hour class for Graduate level Speech Pathology students at Elmhurst College in Elmhurst, IL. Pictured bottom left are Wendy, Victor, and the professor for the class, Dr. Laura Froeschke.
We thank all of our representatives who help educate and raise awareness about spasmodic dysphonia!  

[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505