What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

NSDA Celebrates 25 Years

A video Message from Scott Adams creator of "Dilbert" 
The National Spasmodic Dysphonia Association was established as a result of the foresight and desire to help people cope with spasmodic dysphonia. It was brought to reality with the help, dedication and compassion of our Founding President, Larry Kolasa and Daniel Truong, M.D.  More...

From humble beginnings, the perseverance, patience and can-do attitude of this small group of volunteers has grown into a strong organization that provides a voice for those living with spasmodic dysphonia. Let's continue those efforts to ensure that the next 25 years will bring much greater understanding of spasmodic dysphonia through expanded research with improved and more effective treatment options. Working together with one, loud and clear voice, we can achieve our Vision for the NSDA - "Ensure the ongoing viability of the organization that will continue to lead the effort to eradicate Spasmodic Dysphonia" can and will become a reality.

Click here to read more about the history of the NSDA and download the 25th Anniversary Booklet.  

 

Speak Out for Spasmodic Dysphonia Benefit Luncheon

Join us on Sunday, October 19th, at the White Eagle Golf Club in Naperville, IL, for "Speak Out for Spasmodic Dysphonia Benefit Luncheon" to support the National Spasmodic Dysphonia Association. Sign up here. More...

Dr. Robert Bastian, Chair of the NSDA Medical Advisory Board and a leading expert on spasmodic dysphonia, will provide an overview of this challenging voice disorder and NSDA Founder Larry Kolasa will share the history of the organization, celebrating 25 years, as it remains committed to advancing medical research, promoting awareness, and providing support to those living with spasmodic dysphonia. A silent auction along with a raffle of wonderful items will round out the afternoon. Parking is complimentary. Thank you for your support! Click here for more details.

Make September Dystonia Awareness Month

Volunteers across the country are asking the White House to recognize Dystonia Awareness Month. Click here to sign the petition. More...

We have just 30 days to generate 100,000 online signatures. If this threshold is met, everyone who signs the petition will receive a response from the White House. To add your name today (no registration needed!) click here. Please share this link and encourage family and friends to add their name. Signers must be at least 13 years old.

New Children's Book on SD

New Children's Book on SD

Explaining spasmodic dysphonia to children can be difficult. They may not understand why their parent or grandparent's voice suddenly sounds different. Greater Dayton, OH Spasmodic Dysphonia Support Group Leader, Mary Ann Keller, took on this challenge. "My Dad had Spasmodic Dysphonia," tells the story of a young boy learning about the changes in his dad's voice and the impact on their family. More...

Mary Ann's nephew, Matt Klaber, illustrated the book. It is available to order by clicking here. All the proceeds support the NSDA.

[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505