NSDA Celebrates 25 Years
A video Message from Scott Adams creator of "Dilbert"
From humble beginnings, the perseverance, patience and can-do attitude of this small group of volunteers has grown into a strong organization that provides a voice for those living with spasmodic dysphonia. Let's continue those efforts to ensure that the next 25 years will bring much greater understanding of spasmodic dysphonia through expanded research with improved and more effective treatment options. Working together with one, loud and clear voice, we can achieve our Vision for the NSDA - "Ensure the ongoing viability of the organization that will continue to lead the effort to eradicate Spasmodic Dysphonia" can and will become a reality.
Click here to read more about the history of the NSDA and download the 25th Anniversary Booklet.
Speak Out for Spasmodic Dysphonia Benefit Luncheon
Join us on Sunday, October 19th, at the White Eagle Golf Club in Naperville, IL, for "Speak Out for Spasmodic Dysphonia Benefit Luncheon" to support the National Spasmodic Dysphonia Association. Sign up here. More...
Dr. Robert Bastian, Chair of the NSDA Medical Advisory Board and a leading expert on spasmodic dysphonia, will provide an overview of this challenging voice disorder and NSDA Founder Larry Kolasa will share the history of the organization, celebrating 25 years, as it remains committed to advancing medical research, promoting awareness, and providing support to those living with spasmodic dysphonia. A silent auction along with a raffle of wonderful items will round out the afternoon. Parking is complimentary. Thank you for your support! Click here for more details.
Make September Dystonia Awareness Month
We have just 30 days to generate 100,000 online signatures. If this threshold is met, everyone who signs the petition will receive a response from the White House. To add your name today (no registration needed!) click here. Please share this link and encourage family and friends to add their name. Signers must be at least 13 years old.
New Children's Book on SD
Explaining spasmodic dysphonia to children can be difficult. They may not understand why their parent or grandparent's voice suddenly sounds different. Greater Dayton, OH Spasmodic Dysphonia Support Group Leader, Mary Ann Keller, took on this challenge. "My Dad had Spasmodic Dysphonia," tells the story of a young boy learning about the changes in his dad's voice and the impact on their family. More...
Mary Ann's nephew, Matt Klaber, illustrated the book. It is available to order by clicking here. All the proceeds support the NSDA.