What is Spasmodic Dysphonia?

Spasmodic dysphonia (SD), a focal form of dystonia, is a neurological voice disorder that involves "spasms" of the vocal cords causing interruptions of speech and affecting the voice quality. SD can cause the voice to break up or to have a tight, strained, or strangled quality.

NSDA news

Giving thanks to You!

During this wonderful time of year, we celebrate the people in our lives who give us the support and love we need to make a difference. We want to take this opportunity to thank you for supporting the National Spasmodic Dysphonia Association! We hope you like this special 2018 Thank You Video highlighting some of the great people and programs that make our NSDA community stronger. So many contribute in different ways, and we are grateful to all of them!  More...

Together, we will continue to work to improve the lives of people affected by spasmodic dysphonia and related voice conditions through research, education, awareness and support.  

Susan Beck Joins the NSDA Board

We are pleased to welcome Susan Beck to the NSDA Board of Directors! Susan is the current Support Group Leader of the Greater Knoxville Area SD Support Group. She has participated in various events including representing the SD community multiple times at Dystonia Advocacy Day in Washington, D.C. and attending NSDA Annual Symposiums. She strives to do everything that she can to support the NSDA's mission to increase awareness of SD and to work toward eradicating SD forever. Click here to read more about Susan. More...

NSDA Announces Celebrating Our Voice Contest

For the 30th anniversary of the National Spasmodic Dysphonia Association, we invite you to join us in celebrating our collective voice by sharing your story in a new contest. We are looking for original pieces that highlight determination, resilience, and courage while living with spasmodic dysphonia and related voice conditions like vocal tremor and muscle tension dysphonia. More...

You can submit in any of three categories:

Essay

Poem

Artwork/Illustration

All submissions deemed appropriate by the Book Committee will be published in our Celebrating Our Voice book, which will be released in 2019 in conjunction with our 30th Anniversary Symposium. Top winners in each category will be listed on the book cover. 

We are excited to celebrate your voice and have you share how you have been inspired to live boldly with spasmodic dysphonia or a related voice condition. We can’t wait for your submissions!

Click here for more details. Click here to enter.

Boston Here We Come!

It is official, the 2019 NSDA Symposium will be held in Boston in 2019. This will be our first symposium in this amazing city, adding to what will already be a jam-packed and very special meeting. The 2019 NSDA Symposium will be held April 27, 2019, at the Hilton Boston at Logan Airport with a great room rate of $149 (plus tax) a night! There is so much to do in this great city you want to start planning now!  More...

At the Symposium, you can look forward to so much, including:

  • The NSDA will be celebrating our 30th Anniversary, which is a huge accomplishment for a small association like ours.
  • We will be launching the newest publication based off our 2018 Share Your Story Contest (details coming soon!). We hope to show off the talents in the categories of essay, poetry and artwork illustrating how spasmodic dysphonia or a related vocal disorder has made you live boldly. We are excited to see what the participants submit and share it with you.
  • Updates from the leading researchers in SD, many who are in Boston and opportunities to participate in research.
  • We will also be celebrating our founding President, Larry Kolasa’s 80th Birthday!

The keynote speaker of the Symposium is also scheduled.  This year, we are honored to have John Edwardson, retired Chairman and Chief Executive Officer of CDW, a leading provider of technology solutions to business, government, education and healthcare organizations.  We cannot wait to learn about his experience living with spasmodic dysphonia.

The 2019 NSDA Symposium will be held April 27, 2019, with a Welcome Reception on April 26, at the Hilton Boston at Logan Airport with a great room rate of $149 (plus tax) a night! There is so much to do in this great city and we will provide details on that and more on the Symposium schedule at a later date. 

We hope you’ll take this opportunity to celebrate, your voice, your friends and your Association.

See you there!

[News Archive]

Listen to Voice Samples

Hear audio clips of spasmodic dysphonia, and read about symptoms and treatments using the interactive device below.

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Meet Our Members
Meet Our Members

The NSDA is a grassroots organization working to improve the lives of people with spasmodic dysphonia. This shines through with our members who share their own experiences and knowledge to empower others with SD.
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Our Vision

The vision of the NSDA is to ensure the ongoing viability of the organization that will continue to lead the effort to eradicate spasmodic dysphonia.
NSDA's Core Values

Our Mission

The mission of the NSDA is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.
How Can I Help?

Contact Us
NSDA

300 Park Boulevard, Suite 335
Itasca, Illinois 60143
Phone: 800-795-6732
Email: nsda@dysphonia.org
Fax: 630-250-4505