News Archive

2017 Symposium Summary

Over 100 people attended the 2017 NSDA Symposium in Nashville, TN, on Saturday, May 6, 2017. On Friday night, attendees were greeted by the bluesy sound of a slide guitar played by NSDA Support Group Leader Wendy Garrison. That was followed by the sharing of personal stories at the Welcome Party.  Saturday included presentations from SD medical experts, utilizing mindfulness as a tool, and several breakout sessions which focused on living with SD, the impact of SD on family and friends, and abductor SD.    More...

Kevin is the President of Hancock Lumber Company and was diagnosed with spasmodic dysphonia in 2010. Five years after, he published his book "Not for Sale: Finding Center in the Land of Crazy Horse" about his personal experience with SD and how this seeming liability turned out to be a blessing for him. Kevin sold copies of his book at the Symposium with the proceed going to the NSDA. Kevin's book can be ordered hereClick here to read the Symposium summary, and be sure to view the presentations on the NSDA's YouTube channel at www.youtube.com/user/NSDA300. Special thanks to NSDA volunteer Andy Harness for recording the meeting! 

Top left: Gwendolyn Sims Davis, Fred Hosier, Dennis Delgado, Jan Lant, Stephie Mendel, and David Barton. Top right: Group photos of Symposium attendees. Bottom Left: President Charlie Reavis presents Keynote Speaker Kevin Hancock with an award. Bottom center: Dr. Teresa Kimberley, SLP Melissa Kirby, Dr. C. Gaelyn Garret, Charlie Reavis, and Dr. Gerald Berke. Bottom right: Wendy Garrison shares her music at the Friday Welcome Party.


Warren Bandel joins the Board

We are excited to welcome Warren Bandel to the NSDA Board. Having lived with spasmodic dysphonia since he was in 6th grade, Warren is dedicated to the Mission of the NSDA. He has served as an Area Contact Person since the mid-90s. In 2011, Warren attended his first NSDA Symposium and Leadership Day in Orlando, FL. Inspired by the personal stories and the positive experience, Warren's motivation to do more grew.    More...

Then in 2015, Warren organized his first NSDA Benefit Concert in Rochester, MN. This annual event has continued to grow and even travel, with a concert in Mankato, MN. Warren hopes to expand fund-raising for the organization in his new role on the Board. Click here to read more about Warren.

SD Career Corner

Professionally, Dorothy Tannahill-Moran is known as the "Introvert Whisperer," helps people to find career success by providing unique, actionable career advice. Dorothy shares her professional advice but with a twist of her personal understanding of having spasmodic dysphonia." Click here to read her article, "When Your Voice Creates a Roadblock to your Career; Find Another Path. More...

Dorothy also has had spasmodic dysphonia for about 20 years, first noticing it when she was making a presentation to her CEO. "I wasn't nervous but my voice had a definite "warble" to it. It took another seven years for it to get to the point where I knew something was wrong. I guess I'm lucky and grateful that it never occurred to me to do anything differently because of my SD. I have viewed it as just another challenge life has thrown my way but I do acknowledge that for many people with SD, it is a life-altering journey." 

Personal Profile: Dr. Gary Lea

Dr. Gary Lea, a clinical psychologist, wrote about his personal experience with spasmodic dysphonia including treatment with botulinum toxin (Botox®) injections and his decision to have the SLAD-R (Selective Laryngeal Adductor Denervation-Reinnervation) procedure in 2007.  Read his full story by clicking here. More...

He shared, "My counselling clients would, at times, question my vocal spasms, and I would explain that I had a voice disorder, and that it was neither painful nor infectious. My clients seemed to find that explanation acceptable, it never became a big deal and I do not believe that I lost any clients because of it. On the contrary, I was able to draw parallels between my own voice problems and their psychological or medical difficulties, as a way of demonstrating that all of us, sooner or later, are given challenges in our lives that can either defeat us or provide opportunities for self-improvement." Read his full story by clicking here. 

 

Investment in Research: NSDA grant yields larger return

The National Spasmodic Dysphonia Association funded a seed grant for Dr. Teresa Kimberley from the University of Minnesota to investigate how the brain areas involved in vocalization are connected to each other, and with the other areas of the brain, and how those connections are different in people with SD compared to people without SD.   More...

Our investment in this research has allowed the collection of essential preliminary data that was used to submit a request for a grant to the National Institute of Deafness and Communication Disorders (NIDCD) in the National Institutes of Health (NIH). We are thrilled to report that Dr. Kimberley has been awarded $1.5 million dollars to continue this important research on spasmodic dysphonia!  The grant is entitled, A Multimodal Assessment of Neurophysiology in Focal Dystonia, and we will update you on progress and recruitment! Thank you for your support to make this work possible.


Finding Your Voice in the Workplace

Professionally, Dorothy Tannahill-Moran is known as the “Introvert Whisperer,” helping people to find career success by providing unique, actionable career advice. Dorothy will be sharing her professional advice but with twist of her the personal understanding of having spasmodic dysphonia. Click here to read her first article, “Own Your Voice Professionally but Don’t Let It Define You,” More...

Dorothy also has had spasmodic dysphonia for about 20 years, first noticing it when she was making a presentation to her CEO. “I wasn’t nervous but my voice had a definite “warble” to it. It took another seven years for it to get to the point where I knew something was wrong. I guess I’m lucky and grateful that it never occurred to me to do anything differently because of my SD. I have viewed it as just another challenge life has thrown my way but I do acknowledge that for many people with SD, it has been a life-altering journey.”  


SD and the Americans Disabilities Act

Many individuals with voice disorders like spasmodic dysphonia may not realize that their conditions can be classified as disabilities under the law, entitling them to workplace accommodations and time off to pursue medical treatment.  More...

The Americans with Disabilities Act Amendments Act of 2008 (ADAAA) resulted in changes to the legal definition of disability and substantially affected how those with voice disorders may qualify for reasonable accommodations under the law. However, there has been little guidance and a lack of awareness about these changes in the voice literature. In this article, Dr. Derek Isetti examines the Americans with Disabilities Act of 1990 (ADA), the changes made in 2008 (ADAAA), and how the law applies to individuals with voice disorders. Click here to read the article.


Meeting Summary from the NSDA Eastern Educational Conference

Over 70 people attended the Eastern Educational Conference hosted by the NSDA on November 5, 2016, in Philadelphia, PA. Click here to read the full summary More...

Special thanks to Fred Hosier, NSDA Board Member and Co-Leader of the Southeastern PA SD Support Group, for moderating the proceedings and preparing a summary from the conference. It covers the first four sessions of the meeting which focused on the medical aspects of spasmodic dysphonia. After lunch, participants heard from a speech language pathologist, two support group leaders Cathie Leister (pictured) of the Southeastern PA SD Support Group, and Lois Jackson of the DC Metro Spasmodic Dysphonia Support Group), and a doctor with her own life-changing condition who uses mindfulness meditation and teaches it to others. Click here to read the full summary

You Are The Expert: SD and Social Situations

With the holidays approaching, we asked "How do you handle social situations, like family gatherings or parties?" We received some great responsed and complied them in a list. Click here to download it. We hope you find it helpful! This is the first version and we will keep adding to it. More...

If you have additional suggestions, please let us know, because all of you are the experts!

Midwest Educational Conference Recap

The National Spasmodic Dysphonia Association hosted its 2016 Midwest Conference on April 30, 2016 in Des Plaines, IL. Click here to a read of summary of the Conference. Also, recordings of some of the session are available on YouTube by clicking here More...

On Friday evening, prior to the conference, a Welcome Reception provided the opportunity for fellowship and support, when people shared their personal experiences. President Charlie Reavisstarted the program on Saturday morning with an overview of the mission of the NSDA. The first sessions of the Conference focused on the medical aspects of spasmodic dysphonia with Dr. Robert Bastian presenting an overview of the disorder, and Dr. Gerald Berke discussing treatment options. Several researchers, some who are funded by the NSDA, including Drs. Kristina Simonyan, Mo Chen, Michael Hammer, and Rita Patel, shared their different approaches to better understanding spasmodic dysphonia, After lunch, Dr. Laura Froeschke talked about how spasmodic dysphonia can affect your identity, and Speech Language Pathologists Jan Potter Reed and Brienne Ruel provided voice therapy tips and recommendations in break-out sessions. One person commented, "It was great meeting so many people who understood what I was going through and not being embarrassed to speak," and another said "What I enjoyed was the variability of approaches to SD research, various treatment options, and integrating the problems of SD in our lives." Our thanks to all who attended!