Other News New Advocacy Website Launched
Scientific Updates
FDA Approves Xeomin for the Treatment of Cervical Dystonia and Blepharospasm
Research Opportunity in Spasmodic Dysphonia
NSDA Funds New Research Grant on Spasmodic Dysphonia
Dystonia Awareness Week: June 6-12
Message from NSDA's New President - Charlie Reavis
The Congressionally Directed Medical Research Program Adds Dystonia to the List
NIH Funds $6.2 Million Dollar Grant for Focal Dystonias
Spasmodic Dysphonia and Quality of Life Research Study Results
Botulinum Toxin Update
NSDA Funds Research Grant
Brainstem Pathology in Spasmodic Dysphonia
Research Priorities in Spasmodic Dysphonia
Participate in the 2010 Dystonia Advocacy Day
Share Your Story Winner Announced
The Experience and Impact of Reading the "Share Your Story" Entries
Spasmodic Dysphonia Featured on ABC's Medical Mysteries Program
Changes in the Brain Identified in SD
SD Research Program Launched and Scientific Advisory Board Appointed
CEU Course Available on Spasmodic Dysphonia
Easier Done than Said...Living with a Broken Voice: New Book on Spasmodic Dysphonia
Emily Lim finds her Voice through Writing
Safety Issues Regarding Botulinum Toxin
ASHA provides Insurance Checklist for Speech Therapy Benefits
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Participate in the 2010 Dystonia Advocacy Day
The National Spasmodic Dysphonia
Association is a proud partner of the Dystonia Advocacy Coalition (DAC). The mission of the DAC is to speak with one voice for issues affecting the dystonia community. We invite you to participate in Dystonia Advocacy Day in Washington, D.C. on May 4-5, 2010. The goal of this day is to inform legislators about dystonia and how it has affected our lives.
This important annual event brings together dystonia affected individuals and families from all dystonia patient organizations from across the country for legislative activities which include:
• Comprehensive advocacy training on Tuesday, May 4
• Networking Dinner for all advocates
• A full day of meetings with your Members of Congress on Wednesday, May 5
• The opportunity to make a difference.
We understand that some persons might feel intimidated or reluctant to speak to their representatives for the first time. The training session on Tuesday will address all of your concerns. Training topics include: How to make a Hill visit, the current climate on the Hill and role playing. You will be assigned to teams for Advocacy Day and a mentor will be assisting each team. Visits will be arranged in advance, and you will be given a map of your assignments, directions, and leave behind materials for each of the offices you visit.
By working together we will strengthen our voice and advance our issues. We will be heard!
All volunteers who have participated in these events in the past have found them to be an incredibly rewarding and empowering experience and were proud to have exercised their right to communicate with elected officials. To register for Advocacy Day or receive more information please e-mail NSDA@dysphonia.org and put Advocacy Day in the subject line or call the NSDA at 1-800-795-6732.
In addition, if you are interested in making visits locally to your representatives, the NSDA has a booklet that can offer helpful suggestions. Help us speak out for spasmodic dysphonia!
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