National Spasmodic Dysphonia Association                                             
Join or Donate

 








  
  Books

  Easier Done than Said...Living with a Broken Voice
Author: Karen Feeley
Price: $15.00
Written by those who suffer from SD, and professionals who work with SD patients, it is a compendium of shared experiences from within the SD community. For those who have been coping with SD for years, we hope this book will provide you with some new ideas to address current issues you might be facing. For those who are recently diagnosed or who are still seeking answers to this strange ailment, we hope this book will serve as a useful reference guide as you begin your journey through life with SD. For friends, family members, or co-workers of those with SD, we hope this book will help you to better understand the plight of people dealing with SD.
Add this item to the shopping cart
 
 
  Easier Done than Said...Living with a Broken Voice - International Shipping
Author: Karen Adler Feeley
Price: $22.00
Written by those who suffer from SD, and professionals who work with SD patients, it is a compendium of shared experiences from within the SD community. For those who have been coping with SD for years, we hope this book will provide you with some new ideas to address current issues you might be facing. For those who are recently diagnosed or who are still seeking answers to this strange ailment, we hope this book will serve as a useful reference guide as you begin your journey through life with SD. For friends, family members, or co-workers of those with SD, we hope this book will help you to better understand the plight of people dealing with SD.
Add this item to the shopping cart
 
 
  Speechless: Living with Spasmodic Dysphonia
Author: Dot Sowerby
Price: $12.00
"Speechless: Living with Spasmodic Dysphonia?" is the biography of NSDA Board Member Dot Sowerby's experience with SD as told to Betty Schonauer. Also featured in the publication are I Climb Over My Voice by Jean Newcomer and An SD's Experience with Depression by French O'Shields, D.Min. as well as articles by Michael Rolnick, Ph.D. of William Beaumont Hospital in Michigan and Michael Rontal, M.D. of Associates in Otolaryngology also in Michigan.
Add this item to the shopping cart
 
 
  Prince Bear and Pauper Bear
Author: Emily Lim
Price: $16.00
This hard cover, beautifully illustrated book is about Pauper Bear who is a sad little teddy bear who longs to be loved. Prince Bear is a proud bear who loves himself. When their paths take different turns, the two bears discover that things do not happen as they expect. In the process, the two teddy bears come to experience love and friendship with new perspectives. This picture book is written for children from five years old and up, and also for younger children whose parents and guardians are reading with them. It has many themes which can appeal at several levels - love and charity towards others, having a heart to share with siblings & friends, going beyond appearances and also about second chances in life. This story was inspired by author Emily Lim's own personal struggles of coping with Spasmodic Dysphonia for the past nine years.
Please note: A limited quantity of these books were donated to the NSDA by the author Emily Lim and the proceeds from the sale of this book supports the organization.
Add this item to the shopping cart
 
 
  Insurance Assistance Approval and the Appeal Process in the Treatment of SD
Price: $2.50
Navigating the insurance approval and appeal process can be daunting, but with the right tools it is possible to obtain coverage of treatment for Spasmodic Dysphonia. The NSDA has prepared this booklet to assist with insurance approvals and appeals for the treatment of Spasmodic Dysphonia with botulinum toxin type A (Botox®).Guidelines for Insurance Approval and the Appeal Process in the Treatment of Spasmodic Dysphonia with botulinum toxin injections.

Please note: You may download the PDF version of this booklet for free or order it from $2.50
Download the Adobe Postcript File
Add this item to the shopping cart
 
 
  Brochures

  Botulinum Toxin Tracking Chart
Price: n/c
For download only
If you are received botulinum toxin injections, you may want to consider tracking your response to the treatment. This chart can help map out the effectiveness and length of the treatment. This can be especially useful when are just starting treatment or if you are changing the dosage. By using a new sheet for every injection, you develop a history of your treatment response and can discuss with your healthcare provider the results from the injection.
Download the Adobe Postcript File
 
 
  NSDA Information Sheet
Price: n/c
For download only
This one-page sheet provides an overview of the services of the National Spasmodic Dysphonia Association.
Download the Adobe Postcript File
 
 
  Understanding Spasmodic Dysphonia
Price: n/c
This brochure is produced by the National Spasmodic Dysphonia Association and it examines the symptoms, causes, and treatments for spasmodic dysphonia along with an explanation of the goals of the NSDA.
Add this item to the shopping cart
 
 
  Spasmodic Dysphonia General Kit
Price: n/c
The introduction packet includes information on the symptoms of and treatment for spasmodic dysphonia along with a copy of the NSDA Newsletter.
Add this item to the shopping cart
 
 
  Three-Fold Wallet Card on Spasmodic Dysphonia
Price: $0.10
This handy business-size card explains what is spasmodic dysphonia. [Can be purchased in bulk quantities.]
Add this item to the shopping cart
 
 
  Laryngeal Denervation Reinnervation Surgery for Adductor Spasmodic Dysphonia
Price: $0.20
This brochure for physicians includes general information on the surgery, as well as risks and benefits.
Add this item to the shopping cart
 
 
  Your Botulinum Toxin Injection..What to Expect
Price: $0.20
This brochure provides an overview of the expectations of botulinum toxin injections for both ADductor and ABductor spasmodic dysphonia.
Add this item to the shopping cart
 
 
  Videos/Tapes/CD

  Understanding Spasmodic Dysphonia DVD
Price: $15.00
The “Understanding Spasmodic Dysphonia” DVD contains over an hour of interviews including an overview of Spasmodic Dysphonia; discussions with healthcare experts about diagnosis, treatment, and research; patient interviews including NPR journalist Diane Rehm and singer Jimmie Rodgers, along with voice samples of the disorder. The DVD is appropriate for persons affected with Spasmodic Dysphonia, family members and friends, healthcare professionals and others who are interested in Spasmodic Dysphonia and its impact on people's lives.
Add this item to the shopping cart
 
 
  Understanding Spasmodic Dysphonia DVD - PAL Version
Price: $18.00
Please note: This is the PAL Version of the DVD which will play on DVD players outside of North America. The “Understanding Spasmodic Dysphonia” DVD contains over an hour of interviews including an overview of Spasmodic Dysphonia; discussions with healthcare experts about diagnosis, treatment, and research; patient interviews including NPR journalist Diane Rehm and singer Jimmie Rodgers, along with voice samples of the disorder. The DVD is appropriate for persons affected with Spasmodic Dysphonia, family members and friends, healthcare professionals and others who are interested in Spasmodic Dysphonia and its impact on people's lives.
Add this item to the shopping cart
 
 
  2008 Symposium DVD
Price: $25.00
Two-disk DVD set of the 2008 NSDA Symposium in Salt Lake City, Utah. Speakers include Drs. Perla Thulin, Mark LeDoux, Marshall Smith, Nelson Roy, Mark Courey, Carolyn Baylor, Tanya Eadie, Kristine Tanner, Christy Ludlow, along with Karen Adler Feeley, Chip Hanauer, and Larry Kolasa.
Add this item to the shopping cart
 
 
  2008 NSDA Symposium DVDs - PAL Version
Price: $30.00
Please note: This is the PAL Version of the DVD which will play on DVD players outside of North America. Two-disk DVD set of the 2008 NSDA Symposium in Salt Lake City, Utah. Speakers include Drs. Perla Thulin, Mark LeDoux, Marshall Smith, Nelson Roy, Mark Courey, Carolyn Baylor, Tanya Eadie, Kristine Tanner, Christy Ludlow, along with Karen Adler Feeley, Chip Hanauer, and Larry Kolasa.
Add this item to the shopping cart
 
 
  Newsletters

  NSDA Newsletter
Price: $40.00
Produced by the National Spasmodic Dysphonia Association, the NSDA Newsletter gives updates of scientific research and current happenings. We ask for a voluntary membership of $40 to join the NSDA. You will receive a subscription to the NSDA Newsletter and become part of a network of SD patients and friends.
Add this item to the shopping cart
 
 
  Support Materials

  Support Group Tip Sheets
Price: n/c
For download only
This sheet provides Support Group Leaders with tips make support group meetings more successful.
Download the Adobe Postcript File