Has anyone tried speech therapy?
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Posted by: Megan ®

01/26/2003, 00:43:03

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Hello, my name is Megan and I was recently diagnosed with spasmodic dysphonia after a year and a half of agony. I'm still in high school, so it has been really hard because I've had to drop out of clubs and classes and things that required a lot of talking. Also, I've withdrawn from people and socializing because I try to avoid the embarassment. I used to work at a movie theater and that became just too stressful to deal with, so I even had to quit that.

I've had two botox shots and the first lasted only two weeks and I'm still in the really breathy stage of the second one. Actually, it's worse than breathy---I've haven't been able to talk for the last week. I've realized that I can't do this every other month for the rest of my life so I was wondering if speech therapy might help. Has anyone out there tried it and what were the results?

I would appreciate any feedback!






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Re: Has anyone tried speech therapy?
Re: Has anyone tried speech therapy? -- Megan Top of Thread Archive
Posted by: Lib Haywood ®

01/26/2003, 08:29:59

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Megan, I am sorry to hear that you have SD at such a young age. I was 57 when I started having voice problems. I understand exactly how you feel. It takes away your self esteem and does make you withdraw.

When I started having trouble my ENT kept telling me there was not anything wrong with me and I could talk if I wanted to. He suggested speech therapy. I tried speech therapy for ten months prior to being diagnosed with SD. As my voice deteriorated, I had to practice longer and longer periods of time to get any improvement in my voice. Then it would revert back to all of the spasms. My speech therapist told me she suspected I had spasmodic dysphonia. She sent me to Duke Medical Center where I was diagnosed with SD. She later sent me to the National Institute of Health where I received my first BoTox injection.

Most of my injections were about four months apart. Don't give up on the injections being more successful. Sometimes it takes several injections for the doctor to arrive at the correct doseage for the patient.

Lib Haywood - AD/SD Charlotte, NC-34 injections BoTox-SLAD Surgery 01/01







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Re: Has anyone tried speech therapy?
Re: Has anyone tried speech therapy? -- Megan Top of Thread Archive
Posted by: Linda Spain ®

01/26/2003, 10:16:12

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Megan,

Do you have the abductor (AB) or adductor (AD) type of SD? Conventional wisdom is that speech therapy works better for AB than AD, but I'm not aware of any scientific evidence supporting that idea. Especially if you have AB, you may want to read my previous post about "alternative phonation." I've enjoyed excellent results from speech therapy. My voice isn't perfect, but I have no limitations regarding work or social life.

Best of luck,

Linda







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Re: Has anyone tried speech therapy?
Re: Has anyone tried speech therapy? -- Megan Top of Thread Archive
Posted by: Kim ®

01/26/2003, 15:37:04

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My speech path and I tried different things that were supposed to help for SD and they only made things worse. So we gave up on that, and worked on other things related to other reasons I was seeing her.






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Re: Has anyone tried speech therapy?
Re: Has anyone tried speech therapy? -- Megan Top of Thread Archive
Posted by: Kim Lee ®

01/27/2003, 19:34:57

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Hi Megan,

I went to 8 sessions of speech therapy. It has helped, but my insurance company would not authorize additional visits. Right now, I'm in the appeal process and have to wait to see what happens.

I was diagnosed with mild spasmodic dysphonia, so my voice is not that bad, but it's bad enough. My therapist wants me to talk in my "happy voice." She told me 3 weeks makes or breaks a habit. That's easier said than done!!! I have improved, last week I was talking to a friend of mine, on the phone, for over an hour and a half. She said that I sounded great, a lot better than the last time we talked. And other people have commented how I have improved.

I have my good and bad days. Hang in there and just be yourself!

Kim







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Re: Has anyone tried speech therapy?
Re: Re: Has anyone tried speech therapy? -- Kim Lee Top of Thread Archive
Posted by: Bob Hager ®

02/06/2003, 23:11:05

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I tried speech therapy with 2 different therapists and spent over $6000 in a year and a half. I was unable to get any help from my insurance company at the time. It left me very discouraged and I went a good 12 years without seeking any further medical help for my AD SD. I haven't read many(if any) accounts on this BB that suggest to me that speech therapy is a viable treatment option for SD, especially when you consider the expense and the fact that most insurances don't cover the costs. I was on a website this evening where a Dr. Morton Cooper claims to have successfully cured many SD cases using a 'speech therapy' type approach. Sounds like an extremely expensive and rigorous program and I didn't see that it comes with any guarantee. My speech therapist told me that she cured about 95% of her patients within 9 months of therapy and that my prognoses was excellent. Well, was I one of the unfortunate 5% that failed??? I don't think so. I don't want to turn anyone off to speech therapy that may potentially benefit but it would take a lot to convince me that it is 'worth it'.



I came across this BB about a month ago and decided that the botox treatments look like something that may be worth investigating. I get my first injections tommorrow and my wife has already verified that my insurance carrier will cover the expense. I understand that it isn't a miracle cure and it has varying degrees of success with each individual but I am hopeful just the same.







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Re: Has anyone tried speech therapy?
Re: Re: Has anyone tried speech therapy? -- Kim Lee Top of Thread Archive
Posted by: sue ®

02/09/2003, 22:55:12

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Kim-

I too have a mild form of SD & speech therapy has helped me tremendously. Fortunately, I work at a major university in Illinois & they have a wonderful speech program which is FREE for employees. I have had many comments from long-time friends how much better my voice is now that I have had speech therapy. I know that it doesn't work for most SDers, but I am satisfied with the results. Sue

p.s. Everything doesn't work for everybody & to each his own!







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Re: Has anyone tried speech therapy?
Re: Re: Has anyone tried speech therapy? -- Kim Lee Top of Thread Archive
Posted by: Dwight Cruikshank ®

02/12/2003, 03:11:18

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The Lessac approach has been the most helpful for me. You could try working with just his book but it's best to get someone who's a certifeid teacher. Here's a link to my voice teacher's web page: Link deleted, based on BB guidelines; e-mail the poster for

additional information.

--modified by Moderator-DB at Wed, Feb 12, 2003, 03:25:41







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