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Posted by: michael martin ® 02/03/2003, 17:09:06 Author Profile Mail author |
Did anyone catch the oprah show about the new device for people that stutter. Will it help sd patients? I checked the cost and it is aroung 4,000 dollars. thanks |
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Posted by: Doris St. Clair ® 02/03/2003, 17:29:48 Author Profile Mail author |
Michael and All, I just saw the speech easy device on the Oprah show too and it was truely amazing. It worked instantly!!! What a miracle for stutters. I don't know if it would help us SDers but am going to Oprah.com shortly to see what I can find out. Doris St. Clair AD/SD VA
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Posted by: Katrina Lantz ® 02/05/2003, 18:27:27 Author Profile Mail author |
Hi Everyone, I wonder if it work for at least people with AB because when I was diagnosed the speech pathologist used "white noise" to help with the diagnosis. So when I was listening to really loud buzzing noises (the white noise) and talking I couldn't hear my voice at all. I think she said I got tripped up when I heard my voice. I thought that show was awesome. I am curious if you found out anything,Doris. Katrina |
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Posted by: Lynne Martinez ® 02/05/2003, 19:27:35 Author Profile Mail author |
Hi Katrina, Keep in mind that *stuttering* and SD are two totally different things, even though they are both brain-related and they both affect our ability to speak. This was discussed at the Dystonia Symposium in Victoria, 1999. Stuttering patients are predominently male (80% or more?). SD patients are more frequently female, than male. Stuttering is WAY more common than SD is. The "practical manifestation" of each disorder is very different; but, looking for a connection between the two is pretty exciting. All of this information is incredible and so helpful, to all of us looking for a solution and coping-mechanisms, in being able to vocalize...and an eventual cure. It would be so great if we could see it in our lifetime. --Lynne (AD/SD; Northern California) |
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Posted by: Katrina Lantz ® 02/05/2003, 22:49:52 Author Profile Mail author |
Hi Lynne, I didn't write my last post very clearly. I meant I didn't think this device would work for SD although since posting this poorly written earlier message I have been thinking. I notice that when I speak on my amplified telephone I feel better about speaking on the phone. I can sort of hear myself on it and that gives me confidence. It sure is interesting. |
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Posted by: Doris St. Clair ® 02/07/2003, 06:52:15 Author Profile Mail author |
Hi Katrina and All, I didn't find out anything about the relationship between the speech easy and sd. However, one day I contacted a stuttering clinic nearby to see if there was anything there that could help sders and they said that they only work with stutterers. It is interesting to know that when you speak on your amplified phone you feel better about speaking on the phone. The other day I was trying to read the rainbow poem and found it a little easier to get my words out when covering my ears. Interesting! Today I think I will try using earphones and see what happens. My husband just told me that I spend too much time thinking about my voice and should start concentrating on other things in my life. Boy, sometimes I wish he had this problem and maybe then he would understand. |
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Posted by: Sarah Bayle ® 02/05/2003, 23:51:02 Author Profile Mail author |
What is "white noise" exactly? Is it noise in particular frequencies? How is that used for diagnosis of AB dystonia? I'm curious about this as I have AB and have wondered if there are frequencies of noise that I do not make at all. ie: voice recognition menus cannot recognize my voice at all, even when it sounds clear to me, cell phones do not transmit my voice, and adults who have loss of hearing from the aging process make out very little of what I say: even if it is as loud as I think others are speaking. thanks- Sarah |
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Posted by: Katrina Lantz ® 02/06/2003, 23:43:20 Author Profile Mail author |
Sarah, I may have the wrong word when I am referring to "white noise". I put on a pair of headphones and the speech pathologist turned on "noise" so that was all I could hear. She then had me read a paragraph and taped me speaking. My speech was perfect. She said I could do the same thing at home by putting on a Walkman headset and turning on the CD or the radio and then talking. It is amazing how great my voice sounded. I know what you mean by frequencies of sound too. My older relatives can't hear my voice either and I have had some trouble with certain cell phones. We have an older cell phone that I have a real problem with but the new one I feel much more comfortable using. Have you had any luck with Botox? I have been having injections since 2000 and have been fortunate to get good results that last 4 months. My voice has gotten louder the last year. Katrina |
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Posted by: Lynne Martinez ® 02/07/2003, 02:19:33 Author Profile Mail author |
Re "white noise," it's not a loud buzzing with headphones. A semi-technical description of *White Noise* (without descriptions of frequency or decibels), based on my experience of setting up a huge corporate facility back in the 80's, is *gentle, even background noise.* "White Noise" is designed to mask, muffle and "smoothe out" harsh intrusive sounds in large public spaces (people's conversations, traffic, etc). It's piped into office buildings so that you can sit in a cubicle and not hear, or be distracted by, the phone conversation of the person in the cube next to you. It's not loud or intrusive, by definition. You're not supposed to notice it or hear it. Always "background" and "soft." It's a "low-key" alternative to complete silence. Intended to be relaxing. Katrina....could you ask your speech pathologist for more technical details on what type of *noise* is being piped into your headphones? It's not "white noise" (by definition) but I'm curious as to the frequency, decibels and description. Thanks, Lynne |
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Posted by: Sarah Bayle ® 02/07/2003, 22:02:44 Author Profile Mail author |
It's interesting that the speech produced over noise is of better quality than without it. I feel a bit confused- but find it interesting. If I try to speak over background noise: my voice breaks up and is hard to understand. I'm not quite sure what would happen if I could record it separately from other noise. Katrina: what would you guess this tells us about SD? Sarah |
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Posted by: Katrina Lantz ® 02/09/2003, 14:06:48 Author Profile Mail author |
I think what it tells us is that we can fool our brains. You aren't trying to speak over the noise-that causes me to spasm too! Just talk normally not worrying about how you sound. Put on your headset turn on the radio so all you hear is fuzz. I turn it up so I really can't hear myself and then I just talk to the dog or the mirror with another tape recorder going that records my voice. I sound great. Unfortunately I don't see this speech pathologist altho I may find her email address around the house. She did talk about the decibel level but I can't remember. Will look for email address. Katrina |
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