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Singers with Spasmodic Dysphonia-Adductor
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Posted by: BonnieBelle ®
10/08/2003, 15:45:28

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In the beginning of my bout with SD/AD, some people (who know I sing) asked, "Is it from your singing?" Others stated with confidence, "It's because you sing a lot." I informed (the latter group) I had three laryngoscopies by three different ENT specialists who rendered the same diagnosis. They don't know the cause of SD. If it was singing, it appears the cessation of singing would, undoubtedly, help.

Ironically, research shows the throat muscles do not spasm while singing or laughing and talking simultaneously. However, my range (E above high C) was affected.

In the first year of SD/AD, I rested my voice according to the ENT specialists' and speech pathologist's advice. There was no improvement. I was frustrated. So started singing again and adjusted my pitch. Whatever and however the SD/AD allowed me to sing, that's the range and pitch I worked.

I may be in serious denial or heavy rebellion, either way, I will fight SD/AD. Spasmodic dysphonia may not be life-threatening, but it is life-changing.

Since, I have had this condition, I have met only one lady who developed SD/AD after surgery to remove a goiter (or cyst, if I remember correctly) from her throat. We attended a dedicatory service near her home (200 hundred miles south of where I live). While mingling after the service, I happened to talk to her sister-in-law who (after hearing my explanation about my voice) introduced us.

She is a singer also, and said (at that time) she never thought of trying to sing again. I told her of a project I was planning for a CD and she asked me to keep her posted. That was in 2001.

However, I know how to get in touch with her; but I only want to call her when all the planning is complete and ready to be implemented. There is a local musician, presently, working on some of my material.

I have an idea for a radical public awareness campaign for SD sufferers to give a concert or record a CD where the band and singers have some form of dystonia; and let 100% of the proceeds go to NSDA for research or other area to assist SD sufferers.

I know the question sounds as if I'm WAY out there PAST left field, but my inquiring mind wants to know! I haven't read (or maybe I overlooked) a posting from a singer with SD. If you've post once, post again, please? (Break this silence ringing in left field!)

Where are the singers with SD? Talk to me.

The BB for musicians addresses mostly dystonia affecting the ability to play various instruments.

I 'muse' Good Morning America would be a good place to start! ;D

Bonnie




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Re: Singers with Spasmodic Dysphonia-Adductor
Re: Singers with Spasmodic Dysphonia-Adductor -- BonnieBelle Top of thread Archive
Posted by: Con2003 ®
10/08/2003, 19:08:14

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I believe that Jimmie Rodgers has SD and sings in Branson, MO. One of his hits was "Honeycomb" Then there's Johnny Bush with his latest "Green Snakes." He didn't sing for 14 years, and credits Gary Catona with helping get his voice back.



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Re: Singers with Spasmodic Dysphonia-Adductor
Re: Re: Singers with Spasmodic Dysphonia-Adductor -- Con2003 Top of thread Archive
Posted by: BonnieBelle ®
10/09/2003, 09:21:59

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Dear Con2003,

Thank you for this information.


Bonnie




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Re: Singers with Spasmodic Dysphonia-Adductor
Re: Singers with Spasmodic Dysphonia-Adductor -- BonnieBelle Top of thread Archive
Posted by: fancynancy ®
10/09/2003, 00:33:02

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Hi there Bonnie,

Every now and again, I've seen some posts by singers with SD. (Mad Taz, where are you?). I used to play keyboards in bands and also did some vocals. Most songs were out of my range. I later took vocal lessons, but by then it may have been too late, as my voice changed a couple of years later. Singing improperly may not have caused the SD, but surely didn't help!

Keep us posted with your CD project.

--Fancynancy--
AB mix/tremor, central CA




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Re: Singers with Spasmodic Dysphonia-Adductor
Re: Re: Singers with Spasmodic Dysphonia-Adductor -- fancynancy Top of thread Archive
Posted by: BonnieBelle ®
10/09/2003, 09:46:52

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Dear Nancy,

Thanks for the note about Mad Taz. I remember reading the vocal cords would reflect damage in the form of scar tissue if singing incorrectly was culprit. I did not sing for about a year. My voice did not improve.

I wish singing was the reason for my SD/AD, at least the answer would be learning how to sing correctly. So far, my 'new voice' has been around since May of this year. In April, my 'new voice' surfaced for a week, then relapsed back to its severe state.




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