Spasmodic Dysphonia Bulletin Board

Embarassment
  Archive
Posted by: BrendaS. ®
04/08/2004, 20:50:59


Living with SD is embarassing to me. I want to talk in social situations, but every time I try to speak I'm embarassed. So I don't talk anymore than I have to. It gets lonely. When I speak to a store clerk, everyone looks at me, I want to crawl in a hole. How do others deal with this? Treatment is not an option for me right now nor in the near future.



| |   Current page

Replies to this message

Re: Embarassment
Re: Embarassment -- BrendaS. Top of thread Archive
Posted by: david m ®
04/09/2004, 06:01:19


Dear BrendaS,

I don't know how long you have had sd but I know exactly how you feel. You are certainly not on your own that's a fact. The way I deal with it is that the people I have to talk to have two options. They either accept that I have poor voice quality or they don't. Having had sd for about 7 years know most of my friends and family have come to accept the fact that my voice is less than perfect. I find when I run into someone who I haven't seen since I developed sd then they always say "What's the matter with your voice?" I used to try and explain abou sd but usually saw just a confused expression on their faces. Half trying to listen to my croaking straining voice and have trying to comprehend this bizarre story about some rare condition which usually is way above their heads. So I started just saying " Oh, I just have a cold" knowing that I probably won't run into them for another seven years or so.

Be confident. Stand square, look them in the face and do your best. Let them think what they want to think. This condition is NOT your fault.

Hope this helps

Davidm




| | Where am I? Original message Top of thread Current page
Good post David.
Re: Re: Embarassment -- david m Top of thread Archive
Posted by: bill ®
04/09/2004, 15:31:58


Complicated explanations are tedious enough when you can talk. Do your best. As David said, make like you have a cold. The hell with them.



| | Where am I? Original message Top of thread Current page
Re: Embarassment
Re: Embarassment -- BrendaS. Top of thread Archive
Posted by: Micki ®
04/09/2004, 11:29:01


I used to feel the same way. Now I have come to the point where I feel if they want to hear what I have to say, they can deal with it. I find if it doesn't bother me much, it doesn't bother them much. My sister told me "Remember, your voice bothers you a lot more than it bothers other people."



| | Where am I? Original message Top of thread Current page
Re: Embarassment
Re: Embarassment -- BrendaS. Top of thread Archive
Posted by: Candace ®
04/09/2004, 17:50:49


I think someone should compile a book about the "funny" interactions we've had with people. Of course they're sometimes not so funny as they happen, but you have to laugh at themm, as what's the alternative? I'm sure we all have stories about past situations where people have stupid comments or suggestions to "fix" us. People can be so rude, but they can also be so supportive and loving when they know what's wrong. It just seems like we run into more rude than not. I'll start a post about a funny story and see where it goes...

Candace AB/SD Elk Grove, CA




| | Where am I? Original message Top of thread Current page
Re: Embarassment
Re: Embarassment -- BrendaS. Top of thread Archive
Posted by: cher33549 ®
04/09/2004, 23:47:13


this may sound funny to us who understand it- but when people look at me strangely over my speech- i just tell them my voice is "broken" its a word tied into most everybodys vocabulary in an elemental way and it stops the questions-and the strange looks- i found out from one person they thought i had a contagious disease-haha.they were glad to hear that it was only broken vocal cords. maybe i should have put this one in the funny column. cher



| | Where am I? Original message Top of thread Current page
Re: Embarassment
Re: Re: Embarassment -- cher33549 Top of thread Archive
Posted by: betty ®
04/10/2004, 10:04:15


I have used this 'excuse' many, many times over the years. a simple answer for the simple minded since i usually can perceive who is genuine.... who is nosy.... when they ask.

betty AD/SD
texas




| | Where am I? Original message Top of thread Current page
Re: Embarassment
Re: Embarassment -- BrendaS. Top of thread Archive
Posted by: BrendaS. ®
04/10/2004, 10:52:41


I like that, "my voice is broken". Thank you! Usually when I have tried to explain that I have SD,their attention is drawn elsewhere before I can finish a sentence or they look at me in disbelief.



| | Where am I? Original message Top of thread Current page