Spasmodic Dysphonia Bulletin Board

What bothers me the most.
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Posted by: BrendaS. ®
05/14/2004, 17:56:04
There are many problems associated with living with SD. Work, telephone use, fatigue, etc. We all have experienced them. But what bothers me most is how it has affected my recovery from alcohol and drug addiction. As a person in recovery, attending and participating in meetings is vital to me. When I had some relief from botox, I loved to talk, chair mtgs. and fellowship with others. Now I attend much fewer mtgs. and when I do, I sit on the side and say as little as possible.Most of the time I am depressed and care little about whether I stay sober or not. Addicts call this being on the pitypot, not a good thing for anyone, but I wish I could talk like they do. I've been trying to work through this. Telling myself that things could be worse. But I am still depressed. Just wanted to vent. It's easier to communicate via my keyboard. Thanks for this BB.



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Re: What bothers me the most.
Re: What bothers me the most. -- BrendaS. Top of thread Archive
Posted by: Renee ®
05/14/2004, 19:15:11
Good post. SD is hard enough to deal with without having to deal with recovery from alcohol and drugs. I don't think that it is being on the "pitypot" when you can't communicate well. Communication is essential to almost every part of our lives. Good luck in dealing with your addictions and with dealing with SD. It sure ain't easy!!!

Renee ADSD/ Austin, TEXAS




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Re: What bothers me the most.
Re: What bothers me the most. -- BrendaS. Top of thread Archive
Posted by: vici ®
05/14/2004, 19:40:09
Brenda, We all have had our own little "pittypot" sessions. SD is a frustrating thing to deal with. But remember that even though you have no control over SD, you do have control of your attitude about it. Please don't allow it to sabotage your addiction recovery.

It has been helpful to me to tell others that I have a voice disorder. Some are interested in details, and when they express that interest I tell them more. I don't feel I have to put forth so much effort to sound somewhat normal with people that know about and understand my unusual voice. It may be helpful for you to share about your voice problem with your recovery group. Then they can be of support to you for your addiction AND your SD.

I wish you the best!
Vici Forsyth ABSD/Illinois




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Re: What bothers me the most.
Re: What bothers me the most. -- BrendaS. Top of thread Archive
Posted by: Ida ®
05/15/2004, 08:18:13
Hello Brenda
I am also in a 12 step program and although I don't lead the meetings or take the topic I do share in groups. Our meetings break into small groups and I find I can more easily share in that setting. I tell new comers that I have a speaking disorder and if it bothers them they will have to deal with it the best way they can.
It is important for my recovery, for my emotional and spiritual health to share at meetings.
Ida
26 years ADSD


Modified by Ida at Sat, May 15, 2004, 13:47:14

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Re: What bothers me the most.
Re: Re: What bothers me the most. -- Ida Top of thread Archive
Posted by: Quill ®
05/20/2004, 18:28:19
Hi Brenda,
I'm proud of you for posting this. I have SD and an eating disorder. I've experienced some of the same things you have. Some people who don't have speech disorders don't understand just how much it hurts when we can't communicate easily. I feel invisible, like a ghost. I want to talk but it hurts too much. The emotional war going on in my soul makes me want to give into the addiction and feed my feelings of worthlessness and self doubt. However, I don’t give in because I come too far to give up on my recovery.
I want to let you know that I hear your grief related to the loss of your voice. I understand. I don’t hear pity in your email; I hear grief. “Talk” it out with me in email if you want.

Hugs and Prayers,
Pam




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Re: What bothers me the most.
Re: Re: What bothers me the most. -- Ida Top of thread Archive
Posted by: Samietooo ®
05/22/2004, 13:29:41
Way to go Ida! I love your attitude and hope it rubs off on ME!!! "If it bothers them they have to deal with it the best way they can." YES!!!! That's a great way of thinking!! Best of luck to you with your 12 step program. With that attitude, you will certainly succeed!! Thank you sharing!



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