Spasmodic Dysphonia Bulletin Board

SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn.
  Archive
Posted by: wendyneal ®
06/08/2004, 16:00:11


I am fairly new to the area and seeking info on docs that give Botox for SD in St. Pete. I have received a few injections by an otolaryngologist in Tampa & have been pleased, but now I'm switching health insurances so I have to choose a new provider. Just wondering if people get better results from a OTO vs. a neurologist or if it matters. It looks as though I'm going to have to choose a neurologist in my new network (no participating OTO's in my network that do Botox). Anybody know anything about Dr. Michael Franklin (neurologist at St. Anthony's hospital)?? Any thoughts would be appreciated.



| |   Current page

Replies to this message

Re: SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn.
Re: SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn. -- wendyneal Top of thread Archive
Posted by: Margaret ®
06/17/2004, 11:36:31


Hi Wendy - I live in St Pete too. My mother called me today to tell me her dau-in-law at Duke (NC) just read a news article there which caused her to believe that Mother has been suffering from dystonia this many years. We are relieved to have a name for it. Thought it might even be psychologica. All the symptoms fit. so today, for the first time, I am reading all the web sites and BB's after googleing for "dystonia." Like you, we are going to look for a doctor in St Pete. Mother has Medicare, so she's not bound by the same restrictions you are. If you find that the doctor you mentioned is knowledgeable, please let me know. (rootbarr@yahoo.com) Thank you!



| | Where am I? Original message Top of thread Current page
Re: SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn.
Re: SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn. -- wendyneal Top of thread Archive
Posted by: mdubovick ®
06/21/2004, 16:49:01


The National Spasmodic Dysphonia Assoc. (NSDA) lists two doctors that treat SD in St. Pete and five in Tampa. Being on NSDA's list does not mean they "endorse" any of the doctors but it does mean that one of the NSDA members provided a name, just to help people such as yourself.

Here is the NSDA list:
St. Pete: Dr. Michael Franklin, Dr. Alberto Vasqueyz;

Tampa: Dr. Jane Holliday, Dr. Valery Lipenko, Dr. Thomas McCaffrey, Dr. Marion Ripley and Dr. Daniel Vincnet;




| | Where am I? Original message Top of thread Current page
Re: SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn.
Re: Re: SD/AD in St Petersburg, FL & Botox from neuro vs. Otolaryn. -- mdubovick Top of thread Archive
Posted by: Lynne Martinez ®
06/22/2004, 10:22:36


Hi Mel,

Just wanted to add to your good information, in case people are curious about how all this happens (re the "list").

The best way to find out about a quality SD specialist (as you know, having been involved in support groups) is to participate in a group and compare notes with fellow patients. Patients are never hesitant to share their experiences, case-wise and specialist-wise, in the confidential setting of a group.

However, not everyone can get to a group. If using the Healthcare Referral List on the NSDA website, specialists have to fill out a form (and sign off on it also) so getting a doctor/SLP/therapist on the list takes some time (eg: we have some new excellent SD docs here who aren't on the list yet, as they just relocated).

Thanks for reminding all of us that if we find an SD specialist who is not on this list (who works well for us) and we want fellow patients to know, we need to ask the specialist if they want to be on the list and then contact the NSDA and have them send the specialist the form.

Also, as you indicate, their presence on the list does not mean they are endorsed. It means they have gone through a consistent process to be listed. But, it's a good place to start, if patients don't have fellow SD'ers for consultation. Another good reason to ID ourselves by geography on the BB, as the online forums are often the places we get referrals.

Thanks,

Lynne Martinez (AD-SD; Northern California)
NSDA Pacific Regional Coordinator




| | Where am I? Original message Top of thread Current page