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statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD???
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Posted by: LarBec ®
06/11/2004, 17:26:55


Does anyone out there know if cholesterol-control drugs have any impact on SD? I stopped taking statin drugs for cholesterol control about two years ago. I started taking Zetia, a non-statin, and then had Lopid, another non-statin, added to the mix. Four or five months after beginning the Lopid regime, I began to have excruciating muscle pain in the neck, shoulders and upper back. My internist ordered muscle enzyme tests and found all to be normal. Nevertheless, I unilaterally discontinued the Lopid about 2 weeks ago, and I have had some (though not complete) relief from the muscle pain. I told my internist that I dropped the Lopid. He called today to tell me that that was a good idea, as recent studies have shown that statins and even a non-statin like Lopid can lead to myositis. I understand that drug-caused myositis is supposed to be a (non-chronic) swelling of the muscles. I am wondering now, however, whether my muscle tension has any connection to my ADSD, or whether the cholesterol medication has any impact on my SD, or whether anything has to do with anything else. I know that others have posted messages about muscle tension or pain in the chest, but I don't experience that. Any thoughts would be appreciated. (P.S. Since learning of my SD, I've tried to keep it in focus and not become a hypochondriac or see myself as a walking wreck. But the last thing I need is another ailment, so any light that anyone can shed on the muscle tension issue would be appreciated.) Larry, ADSD, New Orleans



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Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD???
Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD??? -- LarBec Top of thread Archive
Posted by: Micki ®
06/11/2004, 17:58:16


Do I recall correctly from your earlier posts that it takes a relatively large dose of botox for you?

In my own case, I am still thinking I have muscle tension instead of SD-AD. I have never been convinced that my diagnosis was thorough or accurate. The injector said he gave me 20 units of botox the one and only shot I had.

I have had bouts of muscles freezing up. The first time, a few years before the voice problem, my back muscles froze up. It was very painful to move, sit down or stand up. I discovered the cure by accident - a friend came through selling a tonic. She insisted I try it on the spot - 20 drops under the tongue. To my amazement my back started feeling better immediately. It was mostly magnesium in a liquid. I took this for about 3 months, trying to stop several times and having the pain come back. Finally I didn't need it any more.

The second time was when a doctor prescribed a designer estrogen (based on no tests but my age). I took 1 pill a day for 3 days and my entire body got stiff. I stopped it, but was practically bedridden for 2 weeks due to muscle stiffness and pain.

There was an earlier incident in college where I woke up one morning and could only open my jaw barely wide enough to use a spoon. This wore off after several months.

I would like to see research done on the biochemistry and endocrine profiles of people with SD and MTD. Also a way to differentiate between MTD and SD. Botox seems to work for both, but a correct diagnosis would help in trying to find a personal path to a cure.




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Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD???
Re: Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD??? -- Micki Top of thread Archive
Posted by: LarBec ®
06/12/2004, 09:20:29


Yes, very large dosage of Botox. But I haven't had an injection in over a year. It seemed that the cure was worse than the disorder. Do you recall the name of the under-the-tongue elixir? You can email me if the moderators would prefer not to have you post the information. Thank you. Larry



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Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD???
Re: Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD??? -- LarBec Top of thread Archive
Posted by: Micki ®
06/14/2004, 12:09:42


I have emailed you the name and composition of the elixir.



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Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD???
Re: Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD??? -- LarBec Top of thread Archive
Posted by: Shirley A. Prather ®
06/15/2004, 19:36:14


What is the under-the-tongue elixer? And what is it for?



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Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD???
Re: statin and other drugs; muscle tension, or non-chronic myositis; relationship to SD??? -- LarBec Top of thread Archive
Posted by: mdubovick ®
06/13/2004, 18:15:35


I take the statin drug Lipitor. But I was diagnosed with SD several years BEFORE starting the statin drugs. So in my case, there was absolutely no relationship between SD and taking statin drugs.
I have seen a list of drugs that CAN cause SD but they were mostly psychgenic drugs such as Thorazine.



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