Spasmodic Dysphonia Bulletin Board

Ingressive speech
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Posted by: Sammy ® 07/14/2004, 10:03:48

After my last painful and ineffectual botox injection last November what voice I had previously was locked out by a spasm or vocal fold damage from the aforementioned injection. Never, in 12 years of receiving botox, had I ever experienced actual pain but this was dreadful and left me weak in the knees. Needless to say, I won't be returning for botox anywhere, anytime in the forseeable future. Anyway, being rendered practically speechless gave way to desperation and I started practicing what I referred to as "talking on the inhale". I had my dogs to communicate with which wasn't too difficult because they don't care how I sound but people are a different story. Because I lack volume and am mostly able to produce only monotonous one-note sound. it sounds like artificial speech. But it's understandable and makes phone calls less of a nightmare, and my 96 year old Father can now understand me over the phone, in a brief conversation. Previously he would say "I'm sorry Sandy, I just can't understand you". That was painful for both of us. I don't have breaks. The speech I produce is soft and breathy but doesn't wear me out the way trying to talk "normally" would. I feel more confident because people will pay attention to a whisper where they turn away from the SD rattle and straining. If anyone would like more details there are websites regarding ingressive speech (I found several on Yahoo search) or you can email me and I will try to explain a little better. I have ADSD and have no idea if this would work for AB. You have to try for yourself.Just inhale and talk at the same time. I hope noone thinks I am bum-rapping botox because I'm not. Botox works perfectly when injected properly and I've had many good injections in the past. Sandy/Screen name Sammy ADSD since 1976 Modified by Sammy at Wed, Jul 14, 2004, 10:17:45

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Re: Ingressive speech Re: Ingressive speech -- Sammy Top of thread Archive Posted by: Bill Vanderlinde ® 07/14/2004, 13:36:48 Hi Sandy, My speech therapist had me try speaking in inhilation, but it didn't do much for me. I do know at least one AB'er who uses it. If it works for you, by all means use it. Bill V. | | Where am I? Original message Top of thread Current page Re: Ingressive speech Re: Re: Ingressive speech -- Bill Vanderlinde Top of thread Archive Posted by: Kaye Moore ® 07/14/2004, 21:10:15 Talking while inhaling - this is a trick I used alot during the years before doctors knew what to do. As a matter of fact, when I did finally start treatment (botox) 4 years ago from an Otolaryncologist, he had trouble deciding what type of SD I had (AD) because of all the tricks I had learned. My speech therapist told me to try not to do it anymore. | | Where am I? Original message Top of thread Current page Re: Ingressive speech Re: Ingressive speech -- Sammy Top of thread Archive Posted by: attorney with dystonia ® 07/15/2004, 15:31:01 What a great example of being creative and persistent and finding a ways to live with a challenge, rather than being consumed by it. KUDOS to you Sammy, for not giving in or giving up, and for not waiting for pills or pixie dust to "fix it." Having a challenge means we might not be able to do things the "way we always did it" but with persistence, patience, and practice, we can find ways to make things work and become quite proficient at it. So what if it isn't the way the rest of the world does it - let's be too busy making a life to worry about that! What an amazing world it would be if everyone, no matter their challenge, focused as you have on what remains rather than what is lost, and found ways to maximize it. You are an inspiration to all of us - keep up the great work! | | Where am I? Original message Top of thread Current page Re: Ingressive speech Re: Re: Ingressive speech -- attorney with dystonia Top of thread Archive Posted by: Sammy ® 07/16/2004, 12:58:52 Thanks for the kudos and right back atcha, Deb, A/K/A AWD. This BB has been invaluable to me since the first time I found it, quite by accident, 7 years ago. At that time I didn't even know what I had, other than "spastic vocal cords" and had never heard of Dystonia. So, I thought I'd share my little success with "talking on inhalation" i.e. ingressive speech, with anyone who might be interested in hearing about it. As for pills or Pixie Dust, I would prefer Magic Mushrooms, but that's a whole other thread. LOL Sandy/Sammy | | Where am I? Original message Top of thread Current page