Spasmodic Dysphonia Bulletin Board

botox while trying to conceive/pregnant?
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Posted by: Luann ®
12/05/2004, 17:28:37


I'm starting an In Vitro Fertilization cycle this month and nervous that I shouldn't receive my usual botox injection. My Neurologist is confident that the toxin isn't systemic and would be ok, but everything I read suggests otherwise.

I don't want to risk it, but I'm a mess w'out the injections and may even have to (try to) go on disability. Dealing with infertility & an IVF cycle is stressful enough... trying to survive without the botox & continuing to work would just be too much.

Does anyone have any advise for me?
It sounds like some states regard SD as a disability/others don't. I'm in CA.
I'd love to hear from you if you've gone through something similar. How about botox while pregnant? Absolutely NO?? Thanks!




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Re: botox while trying to conceive/pregnant?
Re: botox while trying to conceive/pregnant? -- Luann Top of thread Archive
Posted by: Lynne Martinez ®
12/05/2004, 20:16:10


Hi Luann,

It's difficult to tell here what type of disability you're talking about, so I'll just assume you might be referring to disability through Social Security (either SSDI or SSI) and address the one I'm familiar with.

First, the issue of taking Botox during pregnancy has come up numerous times on this BB, as well as at various SD group meetings and SD symposiums. There are no statistics/study which say(s) Botox is damaging to a fetus but virtually every SD doctor I've heard address the subject says (to paraphrase: "If I knew you were pregnant, I wouldn't want to inject you"). The experienced Botox doctors seem to have a "better safe than sorry" philosophy.

Second, on disability: you don't qualify for SS disability through the SSA. The basic tenet is (before anything else is considered or documented)- your "disability" has to last at least a year or more, or be expected to end in death. That is the first thing that's considered.

No human pregnancy that I know of lasts a year. Also, because it sounds like Botox works for you based on your post, if you decided not to take a workable treatment (and couldn't work due to that decision) that's your personal choice and does not constitute a disability.

No SSA rep would ever judge you as disabled based on what you describe; however, your employer may have a plan which could accommodate you for a few extra weeks of being off work (or give you an alternative assignment temporarily) if you can't meet their vocal requirements, as determined in your Job Description.

SSA disability (either SSI or SSDI) is only for severely-disabled people who truly can't work due to their disability (and the reps will always check that you have tried everything to address your health situation or to try to work, in just about any reasonable field or function).

Good luck with your IVF treatments and I hope you have a healthy baby.

Also, I remember you are in Southern California, so feel free to write me later off the BB, about any of this or support group possibilities down there, at some time in the future. There are several interested people in the area.

Best wishes,

Lynne Martinez (AD-SD; 15 years; Northern California)
NSDA Pacific Regional Coordinator (California and Hawaii)




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Re: botox while trying to conceive/pregnant?
Re: Re: botox while trying to conceive/pregnant? -- Lynne Martinez Top of thread Archive
Posted by: Luann ®
12/06/2004, 14:50:00


Thanks, Lynne- I sent you an email earlier, but just realized I I must have been referring to short-term disability whereas what you're referring to is long-term?

With short-term, (according to my company's HR dept) -as long as your Dr. says you need to be out of work, you should be able to get out of work. My quest for pregnancy, if anything, probably qualifies me much more than the SD.

--We should mention here too, the Family & Medical Leave Act allows people to be absent from their job for up to 12 weeks, and still have a job to come back to. That is unpaid leave, of course, although you can use vacation & sick time during that period.

Take care All---




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Re: botox while trying to conceive/pregnant?
Re: botox while trying to conceive/pregnant? -- Luann Top of thread Archive
Posted by: Louise ®
12/06/2004, 19:13:03


Hi Luann,

I have taken the better safe than sorry outlook. Im am 16 weeks pregnant and was due to have my next botox injections on December 9th. I have cancelled that appointment and (touch wood) my voice is still "okay" but by no means perfect.

I will resume botox after I have finished breast feeding. I know some people have reported a very good voice during pregnancy. This maybe due to increase hormone levels??

As Lynn stated there is no official view point for this but I think most people do opt for the "better safe than sorry"

Good luck with everything.

Louise
AD/SD Hobart, Australia.




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Re: botox while trying to conceive/pregnant?
Re: Re: botox while trying to conceive/pregnant? -- Louise Top of thread Archive
Posted by: Luann ®
12/07/2004, 10:24:33


Hi Louise,
Thanks for writing and congratulations on your pregnancy!

I've heard about the good voice while you're pregnant also and yes, they say it's hormonal- the relaxin. "Relaxin is a hormone that is secreted by the corpus luteum of pregnancy -- the placenta and the lining of the pregnant uterus."

I'm looking SO forward to that - both being pregnant and not getting-or needing- the botox shots!

Luann AD/SD Glendale,CA




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Re: botox while trying to conceive/pregnant?
Re: Re: botox while trying to conceive/pregnant? -- Luann Top of thread Archive
Posted by: Narelle ®
12/13/2004, 00:40:06


Hu Luann,

I also took the safe route - but I did not breastfeed and opted for botox instead - the docs would not do it if I breastfed and by the end of the 3rd trimester I could hardly speak and I wanted to be able to talk to my baby and, for example, be able to make a coherent phone call if anything happened and i was home alone.

The 2nd trimester was a dream as far as speech was concerned!!

I have a happy and very healthy 6 year old girl now :)

Good luck

Narelle
Adelaide/Australia ADSD 19years




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