First of all, I congratulate you girls in wanting to do the
very best for your baby. Breastfeeding is USUALLY the best!
It's also the easiest!! But I thought Vici gave you an
encouraging reply.However, have you thought of e-mailing the Dystonia Research
Foundation directly to ask their advise? Or the NSDA?
You can click their websites at the top of either bb page
and they give you an opportunity to contact them personally
by e-mail. I have done that with the DMRF and they answer
quickly. They may not say what you want to hear, but it's
worth a try.
Also, I assume you are both aware of the La Leche League
International. You can e-mail them at www.lalecheleague.org
with questions. It has been years since I read their
literature, but they used to encourage new mothers to
at least breast-feed a few days or weeks, so the baby
could benefit from the early milk called colostrum.
You could ask about that option perhaps. I certainly
wish you both the very best for you and your little ones!!
Marilee
