Posted by: Marilee ®
11/13/2005, 15:31:52
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Hello, David.
I have just the opposite problem. I feel shortness of
breath when I DON'T have Botox. As I just posted in an
answer to Paula, I have a condition called Paradoxical
Vocal Fold Motion (PVFM), and a few others on this board
have mentioned it also. But it causes breathing problems,
shortness of breath and fatigue, UNTIL we get Botox to
calm down the spasming larynx which is obstructing the
airway.So, I'm sorry to say I have no answer to you, except maybe
it's the difference between AB and AD. (I have ADSD)
I hope someone else will have a better answer for you! Best wishes, Marilee in Indiana gcazz@Juno.com
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Posted by: Amber Lynn ®
11/14/2005, 18:42:24
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Marilee,I was just diagnosed about six months ago. What is the difference between AB and AD? It was hard for me to accept all this, however, now that I have, I am wanting to learn all I can about SD. Thank you. Amber
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Posted by: Debbie L ®
11/13/2005, 19:28:40
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Hi David,
Funny you should mention this. I just had a botox shot recently and was having the same problem. It's been 11 days since my shot and i'm breathing easier now so i'm guessing it's probably normal. There are several side effects to having botox, this one is the most uncomfortable by far for me. I can handle the swallowing problems, the hoarseness and breathiness but the feeling of being out of breath is by far the worst. I hope you're breathing easier soon!Deb
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Posted by: Amber Lynn ®
11/14/2005, 18:38:34
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I just had my shots on Thursday (a higher dosage). I too, am feeling abnormal when it comes to breathing. I just want to hide away in my apartment for a few days w/out having to verbally communicate. It will get better for us.
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Posted by: snowie ®
11/15/2005, 15:56:51
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Hi David,I was diagnosed with AB SD about 2 years ago, and have been getting botox injections approx. every 3 months. With one side being injected and then going back 4-6 weeks later for the other side of my vocal cords to be injected, and then a 3 month gap. I had a period when I was really struggling with my breathing after the injections (I do have asthma too and I think this may compound the problem). We then left longer gaps between the unilateral injections, which did seem to work for a while. But then due to probelms getting injections I had too big a gap where I didn't get the botox in time and it feels like I have had to start again as the last two injections had little effect. However, with saying this, over the last month I have had problems with breathing again on any exertion which seems to come and go. I hadn't had a botox injection for 3 months. I went for one today and asked the doctor about this, and he said with this type of problem there can be diffciulties with co-ordinating breathing and that the botox should help with this. I hope so ! ... we shall see ... The doctor has also upped the dosage of botox. Good luck to you, hope your feeliing alittle better, Snowie
AB SD, London, UK debbie.skerrett@ntlworld.com
Modified by snowie at Tue, Nov 15, 2005, 15:59:52
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Posted by: Amber Lynn ®
11/15/2005, 19:54:15
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Thank you, David. I really appreciate you taking the time to write me. I wish I could say today was better, but it wasn't. I am hopeful, however, that tomorrow will the better..... Amber in Los Angeles
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Posted by: Barbara S. White ®
02/08/2006, 01:46:00
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I didn't have any problem with the breathing other than what I have had with asthma the last few years but after a few botox injections I started having trouble with breathing (I mean really severe breathing problems) not when I got the botox injection but when I needed a botox. I had to wait an extra couple of months without botox before I had the SLAD surgery and by the time I went for surgery I was taking anxiety pills in order to breath. What I understood is that because the cords are closing involuntary it makes breathing difficult. The anxiety pills relax me enough so that I can breath better. That is something I don't like to take but I did for a short while. Now that I have had the surgery and am recovering remarkably, I have had some times of breathing problems but not nearly as bad as before the surgery and it is getting better all the time. I also was told that I had acid on my vocal cords and my research tells me that acid can also affect ones breathing. Anyway, I think that because the surgery recovery period is much the same as the adjustment after botox because they both paralize the vocal cords for a period, that affects your breathing. Though you are getting too much air, not too little, it feels like you aren't getting enough and as you struggle against it it gets worse. The vocal cords or nerves to the cords are paralized for a few days to a month after botox which creates a whispery voice and sometimes breathing problems. With the surgery the time for the nerve to grow into the vocal cord to the point of actually feeling like it belongs there (transplanted nerve) is a longer period than the adjustment after botox but if successful, it will be normal for (hopefully life) Only one time did I ever have an injection that took my voice away for a whole month. Usually it was only one day to one week. That was when I insisted on a double dose. I really didn't know that others had the breathing problems. I think breathing difficulties go with the terratory but like I said, the botox helped me to breath better.
Barbara / Modesto, CA / god4me@comcast.net
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