Posted by: Paula B ®
05/08/2006, 20:20:51
|
Hi,I was diagnosed with Adducter SD a year ago. I was having issues with my voice, for 8 years prior. I never experienced pain, just all year round sounded sick, like I had a cold all of the time, with no other symptoms. With Adducter SD your vocal cords slam shut while talkimg or making any noise, not allowing air to exit. There is a place on this site where you can find a local Dr who specializes in SD who can examine your throat and if you have this condition, you will quickly find out. If you find out for sure what you have, you will feel much better about it, and then you can do something to make a difference. Good Luck, Paula
|
Posted by: Susan L. ®
05/08/2006, 23:09:13
|
I have had my voice problem 3 years now but just actually told that I do have "Adducter SD", but I also have another problem - the "strained voice". Speech Pathologist just video taped my voice & found the false vocal cords are closing up on my vocal cords strangling the vocal cords which makes me strain to talk. My throat gets very tense & sometimes sore from the strangulation effect. If I massage my throat, it helps some.The dr is going to put botox into my false vocal cord & into my vocal cord (one side each) , then I am going to Speech therapy to relearn how to talk since I have overstressed my voice for so many years. If you are straining , this might be your problem too.
Good luck, My ENT and the Speech Pathologist were excellet to find this problem.
Patience is the key to find the treatment which helps the individual. I get this done Thursday, so I'm hoping this will help me, I hope this helps give you something to talk to your Dr. about. Best of Luck to you.
Susan
|
Posted by: pris2000 ®
05/09/2006, 07:22:22
|
Thank you, both. Thanks to a couple of members, I have the name of a doctor fairly close to me, now. I'm waiting to go until I regain my voice again after a bad reaction to a med. I figured if I couldn't talk enough for the assessment of how my voice generally sounded the evaluation wouldn't be as good. My immunologist believes the pain is due to my Multiple Chemical Sensitivies and if no-one else has pain as a major factor,it's sounding mre as if he's correct since that worsens it.And yes, I do plan an evaluation as soon as possible. I'd been to an ENT here who knows nothing and just told me I had a 'sore throat' after looking in with his mirror and refusing to go any further exploring the problem.
|
Posted by: BonnieBelle ®
05/08/2006, 22:43:39
|
Prior to my diagnosis in 1999, the pain I endured was a "rawness" in my throat, unlike a sore throat. That diagnosis revealed my vocal cords were irritated. I found out later that had I continued forcing past the strain, that scar tissue on healing vocal cords would have been a different issue because surgery would have been necessary to remove it. Vocal therapy helped me a great deal. My visit with the speech pathologist revealed there are steps to easy onset. I was amazed I had think my way through the steps involved in speaking. I had to think about how to talk. Resting my voice helped my vocal cords to heal. I haven't had problems with "rawness" in my throat since '99. I used to have occasional pain in my ears if I spoke too long; or, I'd get this pain in both eyes. There were times when I felt tired from just holding a regular discussion. So, I would avoid talking until pain in all the areas went away. Sometimes, that took three or four days. Bonnie Simmons
ADSD 1999
Vocal Therapy bonniebellead_sd@yahoo.com
|
Posted by: Kelly Jean ®
05/09/2006, 12:39:37
|
You've got me thinking. I don't have pain like a sore throat kind of pain but I definitely experience a strain. I also have issues with the false vocal chords. I am going to ask my doctor some more questions the next time I see him. I was in speech therapy but they told me to stop because it wouldn't help me. I've gotten to where when I am feeling strained I just stop talking as much. I am finding myself always questioning myself before speaking... Is what I want to say necessary? How can I say what I want to say using the least amount of words? Is there too much background noise to even try? Funny thing is, in group situations, I will often ask myself these questions and before I decide to say what I want to someone else says it. Because I am difficult to hear, when I do speak everyone gets very quiet and gives me their full attention. Well, except for my family. LOL!Kelly Jean AD/SD
Colorado
|
Posted by: pris2000 ®
05/09/2006, 13:43:43
|
Thank you both. Jean, I do the same thing. I decide each day who I need to talk to and compress as much information as possible. It's as if I have a small cup of marbles and when they're gone I have to stop. If I don't, I go into the pain and then have to do voice rest until the pain is gone, sometimes a day, sometimes days. It's very frustrating.Pris
|
Posted by: Barbara S. White ®
05/09/2006, 16:57:22
|
I don't know if I would say I had pain but I had tremendous uncomfort in my throat. I had a lot of sore throats, and don't know if they was caused by SD or not because I wasn't diagnoised for almost 30 years, but it was difficult to carry on a conversation. My throat was tight and strained and I had to push hard to get the words out. Sometimes I lost words altogether. I sounded like I had a cold or was crying or sick most of the time. When I did get a cold I probably have more discomfort than most people because of the SD. My throat was easily irritated my air pollution or chemicals, perfumes etc. I too have AD/SD. Don't get discouraged whatever you do. There are several treatment options available to make you more comrortable. Botox seems to be the most popular one for most people but its not the only one. Feel free to e-mail me if you have any qustions. Blessings, Barbara / god4me@comcast.net
|
Posted by: pris2000 ®
05/10/2006, 10:59:53
|
Thanks, Barbara
It sounds as if you have the dual problem like I do, ie the sensitivities as well as the uneven talking even when those are absent.
|
|
|