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BILATERAL MEDIALIZATION LARYNGOPLASTY
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Posted by: Celeste ®
06/03/2006, 02:16:29


Has anyone done this for abductor SD? And is it possible to confuse SD with vocal cord paralysis?



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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Celeste Top of thread Archive
Posted by: Celeste ®
06/06/2006, 16:34:16


I am still hoping someone has an answer to this! I guess I will try to contct the Doctor who does this. Sigh. I was hoping someone knew something!



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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Celeste Top of thread Archive
Posted by: nhendricks ®
06/06/2006, 23:26:36


If you will e.mail me, I will send you the name of a person that had surgery for Abductor SD. She has had good success and would be happy to share with you. Her Doctor is Jamie Koufman at Wake Forest (but is moving to New York) She will continue doing the treatments and I highly recommend her.
Norma Hendricks
nhendricks@att.net



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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- nhendricks Top of thread Archive
Posted by: Celeste ®
06/07/2006, 00:53:43


Norma, Thank you so much. I will email you!



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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Celeste Top of thread Archive
Posted by: Sonya ®
06/13/2006, 16:13:04


Celestie,I believe I had this surgery you are referring too.I had it done at the Mayo Clinic in Rochester Mn.At first the surgery worked great.but as the vocal cords healed I lost the voice usage.I was supppose to complete the treatment at the mayo with a botox but I told my dr.I wanted to go back to my regular Larynologist here so I would be dealing with one Dr not two.I got back to my home state and the Larynologist I was seeing refused to further my treatment.It has been a long battle trying to find someone who will fulfill the treatment with a botox.So I can`t say it wasn`t successful until I have had that Botox.I beleive my vocal cords would poof up enough from the botox to begin to vibrate enough with success.I will probly be having this done within a couple months I hope through referral of a nuerologist I am very happy with.I believe everyone should have a neurologist as well as an otolarynologist working together on this problem.Makes a big difference in care.I will email you on this if you can give me your email address.Good luck! Longwinded,Sonya



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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Celeste Top of thread Archive
Posted by: Laurie ®
06/06/2006, 17:00:34


Hi, Celeste.

I could be wrong but I think it's possible to do this procedure for both vocal cord paresis or, more rarely, Abductor SD.

That being said, using it for Abductor SD would likely be more controversial and riskier. I would interpret it like this: If someone with Abductor SD were to have some type of surgical procedure that helped bring their vocal folds closer together upon vocalization, it could conceivably have a limited benefit. That is, perhaps one's voice could end up louder. That being said, the Abductor patient's voice may be a bit louder with this type of surgery (and it's just my guess that this would be the case anyway), but still fraught with dystonic spasms and inconsistency. So it may not be the best solution, assuming other treatment options could produce better results.

And yes, to an inexperienced ENT or one not fully familiar with laryngeal dystonias, I bet it's possible to confuse AB/SD with vocal fold paralysis.

Hope that helps. A great place to learn about these surgeries is at support groups (where there are often medical speakers on the subject) or the NSDA's annual symposiums. It's very beneficial listen to numerous SD voices in person as a result of various treatement options so you can see for yourself what you'd consider a feasible option for your own particular case.

Good luck with everything,
Laurie



Modified by Laurie at Tue, Jun 06, 2006, 17:02:47

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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Laurie Top of thread Archive
Posted by: Celeste ®
06/07/2006, 00:52:24


Thanks Laurie. I think this could work for me as I have no tremor or anything else but volume loss. I will investigate this!
Celeste



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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Celeste Top of thread Archive
Posted by: Kristan ®
06/12/2006, 19:24:05


I had BML surgery about 4 years ago w/ Dr. Koufman. If you would like the details feel free to email me.

Kristan
absd/VA




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Re: BILATERAL MEDIALIZATION LARYNGOPLASTY
Re: Re: BILATERAL MEDIALIZATION LARYNGOPLASTY -- Kristan Top of thread Archive
Posted by: Celeste ®
06/13/2006, 02:13:11


I would like to but I'd need your email please!Thank you
Celeste



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