Re: Are we a bunch of talkers, or what?
I dread the day that voice recognition software becomes the norm and noone uses keyboards any more!
Re: Are we a bunch of talkers, or what?
I find it so ironic that I have always been a "chatterbox", never could shut up. My mother has this theory that I talked so much in the first years of my life ( I'm 42, SD started at around 18 or 19),that I literally wore out my vocal chords. She claims that normally they should last 80 years or more but I overused mine so much, I got penalized for it. LOL
Re: Are we a bunch of talkers, or what?
Hi Lloyd,Yep...we are. Alot of frustrated "chatty-Kathy's." I admit guilt, in that regard. But, this BB has been very responsible. I'm continually impressed at the maturity level displayed on this board. I also admit that many of the posts recently (re the volume you mentioned in the past 24 hours) have been from me because I'm "involved," so to speak, in BB-activities related to helping folks make the NSDA-symposium in Detroit or make the decision to get there. Hopefully I haven't gone off the deep-end in enthusiasm. Anyway, write me if I've been too aggressive in this pursuit and also...are you going to make it to Detroit? It would be good to see you again. At this point, I'm going to stay off the BB for about a week because I know I have taken up much more than my share of BB-space lately in the "symposium-pursuit." --Lynne
Re: Are we a bunch of talkers, or what?
Pfffft...I wasn't aware that they kept track of that sort of thing.
You go in spurts, Lynne, like me. I wouldn't stress it.
Re: Are we a bunch of talkers, or what?
Lynne and Kristina
I hope you guys have not taken this message the wrong way. It was not intended to keep track of any "over-use" of the BB at all. I was just commenting on the fact that our SD might put some limits and imperfections on our voices, whereas this BB allows us to fully express our joys, sorrows, frustrations and experiences by the written word. It is great to see the volume of messages that are generated and I was just sharing how much more we seem to relish the fact that with this written medium, we have no limitations in our ability to speak.
I sure would love to be able to attend the Michigan seminar, but I don't think I will be able to make it. I encourage those of you that can go, to take the opportunity and get to meet each other, as well as some of the top researchers in the SD medical community.
Re: Are we a bunch of talkers, or what?
Hi Lloyd,Nope...I took it the way you wrote it...not as any offense at all. It's just that I noticed how many messages I had posted about the symposium and it was a good kick to remind myself that I had some other things I should be doing also. No wonder I'm so far behind in my two classes!! LOL. As Kristina says, many of us go in spurts so looks like you caught several of those spurts. Kinda funny actually. --Lynne PS: I was at a big support group meeting today for ST patients (one that I've attended regularly for two years) and I noticed how very loud and chatty everyone was. I couldn't keep up and found myself getting very light-headed with all the talking. One thing (as you alluded to) that this BB does is invite lots of chatting without getting light-headed. Tired fingers, maybe...but not light-headed. A truly valuable service it is!!!
Re: Are we a bunch of talkers, or what?
Lloyd, Thank you for the post and the encouragement. I agree with you that because my voice does not work for me effectively, I find solace in my fingers doing the talking for me. I think the vehicle of expression has changed. When I feel like I am drowning in sorrow, this BB has been a solid branch for me to hold onto. When I feel really devastated, because of my voice has failed me, I have been able to tell myself that I am not alone and there are people who will understand and feel my sorrow. I now refer to you people on this BB, as my friends. I am also able to celebrate with you my occasional good days. It is odd that that for something as natural as speaking, I feel like a little kid who needs praise fo doing well. I know that I have my own version of beliefs about my SD and it does not match with the popular opinions, but I have always felt like I have been treated with respect and my thoughts have received adequate weight and acknowledgement. I benefit fom the wisdom and experience of long time members like Lynne, and Kristina. (Be the way Lynne, your favroite town is covered with a beautiful 4" blanket of snow and still falling. I stepped out to the backporch and five deer were quietly gazing at me.) Since my SD has crept into my life, I have been doing less talking and have been using e-mail and This BB for discussions and conversation. I look forward to reading other peoples messages and keeping up with people's progress, even if it is a report about 3 months and 3 days and hours past the surgery....... or the phlegm in the throat.....or the thought of piercing one's tongue. It is important to the person who has posted it. Thank you all for being there for me and for others. goly
Re: Are we a bunch of talkers, or what?
You're right, Goly. It is comforting to know that when we contribute to this BB, there's an audience of fine people who also bear this mysterious disorder. My heart goes out to those with SD who did not have the benefit of this venue. What a dark and lonely world that must have been for them. When I feel so alone with my tiny voice, I often go to this BB for solace. Even though I may not contribute to it at the time, I feel more secure knowing that I'm not alone as I read the heartfelt messages. Losing your voice, something we took for granted all our lives, is losing a huge part of our personalities. It's so different from losing a kidney, a hand or a leg. Because your voice is you, your expression of your soul, your primary communication to the world. Without your natural voice, you become changed forever. That is, until you find a way to get it back. And that is our quest!!
My love and best wishes to all of you who feel the pain of SD. -Joan
--modified by Joan Carole at Sun, Feb 11, 2001, 13:49:08
Re: Are we a bunch of talkers, or what?
Goly,Wonderful message of support and comfort! And, thanks for the report on my favorite town. Sounds beautiful. But, guess what, it snowed in the SF Bay Area this week-end also (this, after my 70F degree message and the flowering trees of last week!)! LOL. --Lynne
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