Posted by: Lil Kis ®
10/30/2007, 14:34:50
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Also forgot to mention this think this hapened when I started taking a medication called Risperdal...it started right around the time I took Risperdal....I stopped taking Risperdal but nothing has changed....I was on Risperdal for like 2 months with 2 mg of it in the morning and night so that's 4 mg a day....I am almost positive this started because of the medcine if so is there a better chance of worse chance of getting cured by this if I have it? Thanks again
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Posted by: Paula B ®
10/31/2007, 10:58:03
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Hi,Click on NSDA site on the top of the screen, and then on healthcare referral. Doctors that are skilled with SD and even other types of vocal disorders will be able to determine exactly what your symptoms are. You mentioned seeing the same Doctor three times. After 8 years of having a hoarse voice, I went to see an Ear Nose and Throat Doctor, and he sent me to another who deals with SD. I wish you the best, and sure do know how hard it is to lose a voice. Take one day at a time, find out what you have, and then deal with it. Some Doctors are good Doctors, but are not familiar at all with vocal conditions. Take Care, Paula
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Posted by: Lil Kis ®
10/31/2007, 13:19:50
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so there is a chance I don't have spasmodic dysphonia? It's just that it's not just my voice box or vocal cords which I get twitches all over my body like uncontrollable movments and this started around the time I took a medicine called Risperdal...like Tardive dysphonia or somethin.....can this mediicine cause spasmodic dysphonia too? I want my voice and life back!!! ANy help would be greatly apreciated...I don't even talk to people anymore...I feel so isolated and lonely now it's ruining my life....This is the worst thing I ever went through and i'm afraid that by the time they dIAGNOSE AND TREAT this I will have strained my voice beyond healing....again help would be appreciated
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Posted by: jacqui104 ®
10/31/2007, 18:00:24
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My voice got bad after I was on a course of antidepressants. My throat tightened up and I had trouble getting my voice out. When I would speak it always sounded shakey. I stopped taking the meds and gradually the trembling has improved. I still have difficulty if I am in a stressful situation, but I am working on changing the way I perceive stress.
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Posted by: Lil Kis ®
10/31/2007, 22:47:22
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yeah so it does have to do with medications right? I knew it....I was on Risperdal when this started! Were you even diagnosed with Spasmodic Dysphonia? I haven't been diagnosed and I hope I don't have it! I just wanna know what wrong with my throat and vocal cords!!! It's ruining my life man! Anyone that has Spasmodic Dysphonia what exactly does it feel like? Also do you swallow foods and drinks and they end up in the wrong spot? Cause I been swallowing food and drinks recently and they been appearing and ending up in the wrong areas..I almost choke on them now it's bad...but my most concern is the change in my vocal range! It's ruining my life man! Thanks again any help would be appreciated!
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Posted by: Maria ®
11/01/2007, 11:57:04
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Hi!My voice got MUCH worse when I was on anti-depressants for three months two years ago. Some of the anti-depressants do interfere with the center in the brain that controls muscles and movements. Yes, voice disordes are very hard to accept and to live with. I also feel that it defines my life and very mych limits what I'm able to do. Two years ago it became such a struggle to talk so I started to withdraw and became more and more isolated. Hope you get well and/or get good help!
Maria
with a voice disorder since 20 years
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Posted by: Lil Kis ®
11/01/2007, 22:59:22
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hello again yeah it feels like my voice is just monotone now! Like it feels so different to me! Ya know it's depressing and also it changes a lot too and I can't control it sometimes....I feel like someone without a voice box!!! It's terrible I feel so isolated, depressed, more anixety, more sadness, more hard to express myself, unable to sing anymore, more shy, it honestly is just devastating! I never knew something like this would hapen to me!!! It's like I just wanna be in a bar 24/7 now! Really why would they put you on a drug that would ruin someone's life like this!? I don't get it!!! My range is just gone! It's so devastating! Honestly has anyone or does anyone know anyone where their original voice came back like if it had to do with taking medication when they got it? Cause I got it from a medication I was taking called Risperdal! This is definietly taking over my life! It feels like i'm not in reality like one day I will wake up and have my original voice back! Yeah! Ya know? I feel so low right now....has there been anyone that had a problem or voice problem like this that got their voice back after stopping their medication and if so how long before their voice came back? Also anyone that did Botex can it really bring your original voice back with the exact right tone singing voice and voice with range again? Cause my range is shot! Any help would be greatly apreciated! I can'teven feel happy anymore or express hapiness through my voice anymore....I feel like a robot! Anyone understand how i'm feeling or what i'm going through and again about the chance of getting my voice back?
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Posted by: sassygabby ®
11/04/2007, 11:06:37
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I know exactly what your going through, and I'm so sorry. I used to sing also, not public or anything like that even though I could have if I tried. I had the sweetest sounding voice when I talked and got compliments all the time because of it. I got sick, just a slight cold or something and the next thing I knew I couldnt talk anymore. I know what you mean about sounding like a robot, if I try to show emotion through my voice it cracks and I cant say a thing. I also get very depressed and some days I just dont want to get up. I have been looking for a job for 6 years because of this. No one will hire me, I keep hearing people say .. isnt that illegal, of course it is but if I try to say look thats discrimination they will say they chose someone with more experience or something.. its hard to prove so I dont even bother. I just walk out knowing why. Some days will be harder than others but just hang in there, I have and I'm sure you can to. If you need someone to talk to just let me know, because I sure need someone to talk to.
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Posted by: Lil Kis ®
11/02/2007, 14:52:58
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I just read recently that really there is 2 sets of vocal cords? One is located under the supraglottic area or somethin....now I think that is my problem....they ain't working correctly like they used too...So does this stil mean I could have spasmodic Dysphonia? I mean my upper vocal cords is workin fine but my lower ones way down at the bottom of my throat ain't!!! I need some help on this and to figure out how to get them moving again...it feels like they ain't vibrating together anymore maybe that is why I sound much different! Really this will make my day if I find out what happened here and if I have smasmodic dysphonia or not...
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Posted by: cherry ®
11/03/2007, 15:02:48
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Lil Kis,Have you been to the doctor with your voice problem, sweetheart? If so, what has the doc said? I pray you don't have spasmodic dysphonia, but if you do, I promise you will be fine. There are effective treatments that usually work for those with SD. I can tell you all about SD. I've had it since I was almost 22 years old. Back then I was a broadcaster for a local TV station. I was the life of the party and more often than not, the loudest mouth in the room. Yes, the disorder stole my broadcasting career, it stole my social life and emotionally, it devastated me to the point of almost giving up on life. I often wondered what I'd done so bad to deserve such a terrible punishment. I was angry with God for a long time but thank God I didn't give up on life...Let me tell you why... Because God had bigger and better things in store for me. He was molding my character, using the disorder to do so. When the time came, God began giving me gifts beyond my wildest dreams. I'm now 29 years old. I have a degree in print journalism, meaning I write for newspapers. I'm a writer. And I'm more proud of my writing talent than I ever was my broadcasting. I'm saving to open my very own newspaper in Tennessee. This is just one of the things God had in store for my future, after allowing SD to become a part of me and part of my life. My voice is actually better now...I still have my good days and bad days with it. Some days it's breathy; some days it's nearly perfect. Botox didn't work for me, as my SD is harder to treat. I have type AB. Just know, Lil Kis, that IF you do have SD, God has a great plan for your life, too...You have to wait and see what it is, though. It could take years for you to see the big picture, but I promise God is a great and mighty God and He has gifts in store for you, precious. I'm not saying it won't be hard because it will be. It has been for me. But I can already tell that you are a fighter (like me) and that you have a very determined personality. Your questions remind me a lot of my own before I was diagnosed. I wanted to know why my voice sounded like it did... I wanted to know if I would ever get it back... I wanted to know if I would sound the same as I did before I lost my voice after I got the botox shots...I wanted to know if anyone had ever just waken up one day cured from the disorder... Now, I pray for you a speedy voice recovery. It's my sincere hope and prayer that your voice will return to you just as it did before it left you. But incase it doesn't and you find out that you do have SD, if you need to talk, my email address is cherrybessie@yahoo.com. (or if you need to talk anyway) I want you to know, no matter what, there is a reason for everything that happens in each and every one of our lives... No matter what, you will be alright, sweetheart. Please keep me posted, ok :) Bessie Cherry
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Posted by: Lil Kis ®
11/03/2007, 22:29:48
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how did you get it by the way if you were only 22 years old? I got it from taking Risperdal for only 2 and 1/2 months! I can't take it sometimes...I'm lossing my life to this or whatever it is! You must be real strong....it's soo tough for me and especially when nobody I know has ever heard of this or understands it! It's tearing me appart! I feel like the most lonesome person on the planet!
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Posted by: cherry ®
11/04/2007, 01:16:12
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Mine developed after a lengthy period of emotional distress. I was having some extreme emotional problems...bad troubles with friends...during that time, my boyfriend, whom I loved dearly, left me when my voice started getting bad. I couldn't believe he did me that way. Then I lost my job because of my voice. I wasn't able to talk normally so I couldn't broadcast news anymore. Then, not even a year later, my daddy died, and he was my best friend in the world. And that alone was enough to kill me...so I was devastated about my voice, losing my job, losing my boyfriend, and losing my daddy. It was really just too much for me to handle... The stress of it all caused the disorder to surface and get worse, I think. Stress affects it now. If I'm happy and stress free, my voice is good...but if I'm under a lot of stress, my voice is the first thing to go. I was first told by doctors that when the stress subsided that I'd get my voice back...that was in 2000...so I waited...and it never got better...The doc said it could take a few years even, so I kept the faith that it would get better in time. I expected it to come back, full force-the same as it was before I ever lost it, but it didn't. Then, 3 years later,in 2003, I went to an ENT in Memphis who told me that I had spasmodic dysphonia and that it can be brought on by an overload of emotional stress... He suggested counsiling and speech therapy, to see if that would help first. So, the next year of my life I devoted to speech therapy and hypnotic/EMDR emotional trauma counsiling. Nothing helped, so I went back to the ENT for botox shots. I really thought that would work...but it didn't work either. I got two rounds...neither worked...so the docs said I'd be without a voice for the rest of my life...but you know what? They were wrong! Jesus started giving my voice back to me in Aug. 2005. It was great (but not the same as before I lost it) for about 2 years...Girl, I was talking on the phone again...running up my phone bills and everything...It was wonderful...then the stress crept back into my life and it's faultering some again; but, still at its worst, it isn't as bad as it was the first 5 years. I know how lonely you feel...I've been there...I know how mad and upset you get when you go to the store and you can't even get the words thank you out of your mouth to the cashier before she says, "What's wrong with your voice?" God I wish I had a dollar for everytime someone asked me that question...I'd be rich! I know how much it hurts deep down--because it just ain't you, is it sweety? I know, it wasn't me, either. It kept me from being me in every way. Just know, that in time, healing will come...Your darkest days are always the first days...Let me ask you...Has a doctor even diagnosed you with SD? Do you know for sure that you even have it? Where do you live? Maybe I can help you find a good doctor (ENT specialist) who can at least give you a proper diagnosis. What are your hobbies? What do you enjoy? I'm just wondering if your voice loss could be from misusing your voice in some way...
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Posted by: mariaa ®
11/06/2007, 06:51:02
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I have had SD since I am 17. I had a virus and a bad cold, lost my voice......Than it came back with minor spasms.It was my senior year in high school. My voice was feasible and ok talking one on one. I couldnt raise the pitch or control the range that much.
I was scoped by a ENT who wasnt experienced with SD.
I was than put on a reflux medicine and also treated for allergies. I also went to counseling and was told maybe it was all emotional.
I eventually went to a speech therapist and my voice really improved......BUT, I had to practice everyday and think before I spoke at times. It was ok, because at the time my voice was good days and bad days.
Finally I saw a article in a paper about SD and the symptoms. And I found the NSDA and contaced them. THey sent me inforamation and a referral to a doctor experienced with SD
I was diagnosed at age 32.
I have just started botox within the past 6 months at age 43.
I am doing great.
I have been a teacher through all of this. I was married, have two kids, and I dont let SD get in the way of my life.
SOme days are hard, but I can be tough....lol
>>>>>You must see a ENT experienced with SD........what state are you from. COntact the NSDA for information. In the meantime I would see a speech therapist to help you out.
DOnt let this get in the way of your life........we all have crosses to bear in one way or another. Dont let it define who you are. YOU CAN DO IT!!!
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Posted by: stbetty ®
11/07/2007, 19:05:25
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sounds like me last dec when it started. I had a few stressful things in my life then, I would choke a few times, low volumn then the choking sound started- got more frequent, now its all the time. went to therapy, they are now saying I have a combination of SD and MTD. I decided against botox and have accepted my life as doing little talking and trying to learn sign language- pretty dismal outlook, but thats the hand I am dealt so I will just accept it. I hope you just have a strained voice and it will pass in time, if its SD- forget it...
betty
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Posted by: mariaa ®
11/07/2007, 19:16:11
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I am going to agree to disagree.........do address it!. Go to speech therapy and get the correct diagnosis. And If you have SD get botox.............no way should you give up or talk alittle you have your whole life ahead of you like I did. And I have been there,,,,,,,,,,,,,,,good career, marriage, kids.....the whole nine yards. Do something about it and fight ......that is the key. Never settle you dont have to
GOOD LUCK!!!!
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Posted by: no_use_for_words ®
11/13/2007, 14:49:42
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hey there darling, dont let your voice get the best of you. it doesnt define who you are. i think it makes us a bit more interesting but i id rather be less interesting than have this messed up voice. I have been having voice problems since i was 13. i remember going to school and reading aloud in class i noticed a wave to my voice that only grew more and more severe. it made every day at school hell (so i missed out on having those good ole high school days, instead i did home shchool so i wouldnt have to deal with the stress of going to public schools). I went from being a popular kid with lots of friend to a near recluse with few friends. but they are the best friends in the world and they still love me even though i cant get my words out half the time. I have still managed to have a serious relationship with a beautiful girl whom i still have a lot love/hate towards for 3 years but we broke up a few months. sometimes i blame my voice for our breakup. i think i was letting my voice hold me back from doing the things i wanna do. gotta knock that crap off! get pumped! get excited! screw what those people think! I know its hard sometimes being so young with this disorder. I am only 22 years old myself so keep your head up and if you have any questions please feel to email me at purplestarguitar@indiemail.com or write back on here. best of luck to you
-JAYME
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Posted by: kdhamm ®
11/20/2007, 12:22:45
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Hello
First thing is to find out exactly what is going on. I also went thru a ENT who diagnosed me with SD after he did sinus surgery. I feel he did a poor job on the sinuses, then he told me I have SD. Suggested Botox injections, which really helped my voice after the first few weeks of having a 'breathy' sound. Almost like all I could do was whisper. Then it was wearing off in a few months and he said that was normal, so I got another round of injections. And another few weeks of breathiness. But I also was having a choking feeling, or like I was drowning for air and couldnt get enough.
I asked him if ther Botox affected any of the glottis and said there was no relationship with the two. My breathing has been getting worse, Ive already had 2 trips to the ER...for analyphalytic reactions, and throat closure. Now Im going to another ENT that I trust who did a fine job on my sinuses and did the right thing. He explained about how people with SD can be pre-disposed to have VCD, which is my breathing problems.
Now I'm having to get stuck with 2 surg and doctor bills, when, if treated right the first time, may not have needed a second one.
I don't want to scare you but this is what happened to me. Just keep looking for someone who you trust that is knowledgable in this area. I think the botox worked good for my voice, but it sure has affected my breathing.
Maybe if the 1st doctor had monitored my aftercare....I recieved 1 phone call app 3 weeks after the 1st injections and that's it, then this might have been caught earlier.
I'm looking into filing complaints with the State Board of Health.
You should keep a positive attitude, and yes I do know how you feel. Just keep searching and you'll come up with something that works for you. GOOD LUCK and GOD BLESS
Kevin
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