Spasmodic Dysphonia Bulletin Board

Spasmatic Dystonia
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Posted by: Brenda J ®
01/20/2008, 20:00:51
I woke up one morning with my voice sounding strange and having spasms when I spoke. I have had SD now for five months. I received my first Botox last month. I had side affects of choking and not feeling well afterwards. My voice is improved, but far from being normal. The telephone is where I have the most trouble trying to communicate.

I refuse to let this keep me from talking to people, but it is hard to engage in a long conversation. Some people have more patience with me than others.

I'm retired and sell on the Internet, so I don't have to be with people every day. I would like to make friends, but I think it will be much harder than before.

Does each Botox treatment make your voice better than before?

Brenda




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Re: Spasmatic Dystonia
Re: Spasmatic Dystonia -- Brenda J Top of thread Archive
Posted by: Renee ®
01/20/2008, 21:57:55
Botox will definately give you a more serviceable voice. It is not a cure, and will be something that you need to do once every three to four months. Just to add a note to your post: spastic dystonia is an old term. The correct term today is spasmodic dysphonia. You will probably have more luck finding information on the internet if you use the more up to date terminology. Good Luck!


Renee ADSD/ Austin, TEXAS




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Re: Spasmatic Dystonia
Re: Spasmatic Dystonia -- Brenda J Top of thread Archive
Posted by: mdubovick ®
01/23/2008, 00:41:11
You asked if each Botox treatment makes your voice better than before. In a matter of speaking, it might BUT I need to explain how.

Each person reacts to Botox differently. It may take your ENT four or five shots to figure out what your optimal dosage is.
You can help the ENT by keeping a log and noting when your initial breathiness goes away and when you need another shot.
You'll know when another shot is needed because you'll find it harder to get the words out. When that happens, and it will,
get an appointment for another shot.

With your history of several shots, the ENT will figure out what dosage is best for you. So over time, in this way, your voice may improve from where it is today.




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