Spasmodic Dysphonia Bulletin Board

SD and Social Anxiety
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Posted by: scaredsilly ®
01/22/2008, 15:17:46


My voice routinely failed and then I developed Social Anxiety. I have been seeing a counselor to combat Social Anxiety which has helped. I still struggle when I am put on the spot and my voice goes away or is tight. I have had two doctors tell me I have a mild SD that is made worse by my anxiety. I have yet to get botox because part me believes it is all in my head. My voice is better and more reliable with Xanax or when I drink wine. So that makes me believe I am just nervous (social anxiety)and not SD. However, this has been going on for 3 years so maybe the docs were right and it is SD. Does anybody have any experience with both SD and Social Anxiety. my voice is definetly worse when I am nervous, stressed or on the phone. I can sing perfectly fine. What to do what to do.



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Re: SD and Social Anxiety
Re: SD and Social Anxiety -- scaredsilly Top of thread Archive
Posted by: lorrie ®
01/22/2008, 18:27:24


Hello. I don't have Social Anxiety, but because of my SD, I do get a bit more nervous when speaking. My experience, especially when I was going through the server part of my dysphonia, has been that the more nervous or frustrated that I get, the harder it is to talk. It's like my vocal chords tense up. I have been told by my doctors that it is typical in AD/SD patients. It used to be really frustrating when people would try to finish my sentences, because they just knew that it "hurt" me to talk. Of course, the more frustrated I became, the harder it was to get the words out. I used to get so mad at them.

My voice therapist helped me get through some of that by teaching me how to start words and relax while talking. She told me that bringing the 'h' sound, or breathing out while speaking, would help. For the most part it does, and I have learned to use 'h' words to their fullest when I speak. I can even put 'h's on other words, and most people don't even notice. I still get my botox injections (bilaterally), but use this technique a lot when I get close to needing another injection.

I hope this helps. Maybe a good voice therapist is needed along with, or instead of for now, the botox. Good luck to you.

Lorrie
AD/SD since 2003




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Re: SD and Social Anxiety
Re: Re: SD and Social Anxiety -- lorrie Top of thread Archive
Posted by: scaredsilly ®
01/22/2008, 18:44:55


the Social anxiety is a self diagnosis as I could not understand what was happening to me when I spoke and now I have scared myself "silly." I appreciate your feedback and will continue to move forward.



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Re: SD and Social Anxiety
Re: SD and Social Anxiety -- scaredsilly Top of thread Archive
Posted by: Laurie ®
01/22/2008, 18:46:19


Hi, there,

I might suggest looking at it this way... stress can make any illness seem worse and make the symptoms seem more obvious... the same would apply to stress and Parkinson's Disease, Essential Tremor, etc. of course, the symptoms will be exacerbated. Same would go for a cancer patient struggling to recover from chemotherapy who is stressed, losing sleep, and finding it harder to recover. They'll have a harder time. But it has no relationship to the underlying cause.

You might drive yourself crazy if you think complete calmness and stress management will resolve the SD or that SD is anxiety related. For better or for worse, it isn't. Unfortunately, it will not go away by treating anxiety.

Some people report that medications help their voice and that can be because they act on the central nervous system (not so much that they are quelling the anxiety)... Alcohol has a similar effect. They are all muscle relaxants. Botox relaxes the muscles as well... leading to its effectiveness. It makes the neurologically induced spasms unable to get through to the muscles that control the vocal folds. The muscles simply become too weak to spasm.

So whether you decide on treatment or not, don't make your anxiety and stress even worse thinking you can fix your voice by calming down.

Some SD patients also report they can sing better than they can speak... while others still notice the vocal tremor may still be present (if they have an additional dystonic or essential vocal tremor) when they sustain individual notes. Different muscles may be involved in singing than in day-to-day conversational speaking which is the voice most commonly impacted by SD.

Like you said at the outset of your message: 1) your voice routinely failed and THEN 2) you developed social anxiety. That is, the anxiety was a reaction to the SD, not the cause of it.

All in all, just keep in mind that anyone can argue that most everything is made worse by anxiety. But there's nothing "unique" about stress and SD (versus stress and Parkinson's disease) that makes it a stress-related disorder any more than any other condition.

It can be hopeful to hold too much onto the stress/psych related argument as then one can hope there is a cure/resolution. i.e., "If only I could ..... then my symptoms would disappear." Unfortunately, that's not the case with SD.

Some focal dystonias have also been found to have a genetic component... that is, those with SD have a higher rate of other focal dystonias in their family than the general population... so, for example, if someone with SD has a sister with blepharospasm... it'd be a hard sell to argue that stress caused the SD in one person and the forced eye closure in the other!

Good luck. Don't beat yourself up over the diagnosis. Choose to treat it or not, but it's not your fault and never will be. There is so much support out there for SD these days regardless of what type of treatment (or no treatment) you use. That in itself can make living with SD much more manageable.

Good luck,
Laurie




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Re: SD and Social Anxiety
Re: Re: SD and Social Anxiety -- Laurie Top of thread Archive
Posted by: scaredsilly ®
01/22/2008, 18:52:18


Thanks Laurie!!! You hit the nail on the head. I try calming exercises and when they work I say " that is how I do it" but it never lasts and then I beat up myself for letting it get the best of me. Acceptance seems to be the key. Again, thanks for your insight.



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Re: SD and Social Anxiety
Re: SD and Social Anxiety -- scaredsilly Top of thread Archive
Posted by: mariaa ®
02/06/2008, 20:02:07


I understand. And everyone has a degree of phobia when speaking when you know your voice is unpredictable. As far as the wine, it helps the voice spasms. That is known. It has nothing to do with the anxiety, but it also relieves some tension. I sound great when I drink a glass or two of wine. Also, I sing fine, and so do all of us with SD. It affects the speaking voice not the singing voice...
You sound like me, someone with typical SD. I have found Botox to be the fix. I dont like the breathiness, but I have to find the right dosage and we are getting there. I had 9 weeks of a hoars voice from my last shot, a very weak voice. Also three weeks of BAD breathiness. NOw I have the most strong, clear voice you can imagine. I had NO spasms when I was hoarse, breath and low voice.
SO, I wanted to talk right away. But I didnt push it too much.
I am going to say maybe think about trying the botox once and see how you feel.
Forget it being in your head if a ENT scoped you. You cant mimic it from anxiety, but anxiety makes it worse!
Good Luck...........I hear ya loud and clear.
YOUR NOT ALONE>.......be strong and remember we are all in this and you are not alone
good luck
Maria



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Re: SD and Social Anxiety
Re: Re: SD and Social Anxiety -- mariaa Top of thread Archive
Posted by: Catherine1011 ®
02/23/2008, 09:03:40


I have both SD and social phobia but I've had the social phobia ever since I was a teenager. The SD didn't start until I was about 45 and then the social phobia got worse. Luckily I have a mild case of SD so far but I also have pain associated with it. I can sing and whisper just fine and wine is the only thing that helps those muscles as far as tension and pain. I have one glass a day. Botox made me talk like minnie mouse so I only did that for 4 treatments and then gave up. The thing that helps the most is simply not talking much. I had to quit my job anyway because of other health problems so I don't have to talk much. I miss my social life though.



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Re: SD and Social Anxiety
Re: SD and Social Anxiety -- scaredsilly Top of thread Archive
Posted by: artboy ®
03/15/2008, 11:40:50


THis is very similar to mine. I took so many 'F's in school because I couldn't do book reports, etc. Didn't get a diagnosis until I was 30. I'd tried xanax, propranolol, lexapro to no avail. THen an ENT put me on Baclophen. It's not a cure-all, but for 80% of the time, it works. I take 10mg 3x a day. Some people get sleepy on it, but I can't even tell I'm taking it. But one missed dose and my voice starts getting 'caught'. I broke thru on my original 2-a-day treatment and started taking both together in the morning and the ENT told me it was very important to take them 3x a day at intervals. not to 'stack' them for added benefits.



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