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Posted by: Cate ® 03/27/2009, 01:22:22 |
I am new to this board, but not to dystonia. I listened to the tapes and my voice does sound strained, goes to a lower pitch, and feels like I am running out of air. Sometimes I may have to swallow a couple of times, and there is a tightness along the front of my throat.
I went to an ENT and did ask him if he was familiar with SD which he said he was. The exam consisted of this: He asked me to open my mouth and say eeeeeeee. Then he said, I did not have SD. I was rather surprised and just said, "that is it?" I was disappointed as it appeared he may not know that much about SD. With an exam, would they not look at the vocal cords with a scope or something? What should I expect in an exam as I want to go to a different Dr.? Thanks for any information, Cate Csjc853@aol.com Modified by Cate at Fri, Mar 27, 2009, 01:23:47 |
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Posted by: loss4words ® 03/27/2009, 14:16:14 |
When the doctor had you say "e" and hold the "e," that is pretty standard, my ENT at Stanford did the same thing...the difference though was that I did that during a laryngoscopy (sp?). It doesn't sound like your doctor did a laryngoscopy??? There were other little tests that my doctor did as well, like reading from a paragragh which I think is used in the recording of the example of people with SD for this website. So sounds like hey left some important things out. Nevertheless, if you feel uncomfortable with the diagnosis you should definatley seek a second opinion, even a third.Until you feel like you have been given solid, understandable answers keep trying.Don't give up! :o) |
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Posted by: Cate ® 03/27/2009, 22:18:56 |
Thanks for the information. The Dr told me to just say eeeee,
not to hold it. It was just a visual exam and the only thing that was done. My voice only goes so high for example even if I could sing, I could not sing a song. At that point it feels strained and pulling from the vocal cords/throat area..... I will be checking it out further. Appreciate your response. Cate |
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Posted by: hoarse whisperer ® 03/28/2009, 16:43:36 |
This does not sound like a very thorough examination at all, especially by an ENT who claims to be experienced in diagnosing SD. I've been to many ENT doctors who really are experienced diagnosing and treating SD and they have always performed a thorough history and examination, including using a laryngoscope to view my vocal chords during voicing. This voicing usually included many "eeeeee's", "sssssss's", and then extended regular talking, such as reading (not just a couple of sentences either). For me, it's during this extended voicing that my SD symptoms are most prominent. Also, since the patient may be nervous and has the scope inserted, etc., sometimes it takes a while for all your SD symptoms to be seen by the doctor. I probably sound like a broken record on this, but the best place to find medical professionals (ENT doctor, neurologist, speech therapist, etc.) with experience diagnosing and treating SD or other voice disorders is on the NSDA website at http://www.dysphonia.org and then click on the Healthcare Referral link on the top menu. I've provided the link below and there's also a link to the NSDA site at the top of the main SD bulletin board page. Good luck! Lori
Related link: http://www.dysphonia.org/healthcare/ |
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