Spasmodic Dysphonia Bulletin Board

NPR and Dysphonia
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Posted by: Pepper ®
07/23/2010, 11:21:33


Did anyone hear the NPR morning edition episode about treating functional dysphonia with massage? Nothing much was said about neurological dysphonia and reading the NPR blurb (I didn't hear it) about the dysphonia treatment, the difference between functional (MTD) dysphonia and SD was not made clear.

However, I wondered if there are anecdotal accounts of persons with SD who have been helped by massage? The botox stops muscle spasming so maybe massage would help in the same way. I have AbSD and botox was not successful, but I understand that new ways of injecting the muscles have been more successful. I also have an essential tremor and wonder how massage would effect that too. Thanks Pepper




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Re: NPR and Dysphonia
Re: NPR and Dysphonia -- Pepper Top of thread Archive
Posted by: Sojourner ®
07/23/2010, 20:48:24


Here is the link for anyone interested in the story.
http://www.npr.org/templates/story/story.php?storyId=128359885&ps=cprs

I have ADSD and muscular tension dysphonia. I have worked with speech language pathologists. One of them used the laryngeal massage as part of my voice therapy when we were working on my MTD. It was helpful for me in that respect, helping to correct my MTD. As a result, my overall voice sounded better even though the SD spasms were still present.



Modified by Sojourner at Fri, Jul 23, 2010, 21:50:58

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Re: NPR and Dysphonia
Re: Re: NPR and Dysphonia -- Sojourner Top of thread Archive
Posted by: pepper ®
07/25/2010, 07:11:44


Thanks for the response Sojourner. It sounds like you have discontinued speech therapy and the massage. Would it be possible to estimate how much your speech improved due to the massage or the massage/speech-therapy combined? Pepper



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Re: NPR and Dysphonia
Re: Re: NPR and Dysphonia -- pepper Top of thread Archive
Posted by: Sojourner ®
07/26/2010, 16:26:26


My speech improved dramatically, but still had definite SD spasms present and noticable. I have mild to moderate ADSD. My doctors have told me that some are helped by speech therapy while others are not. For me, it helped eliminate/reduce the MTD element that was adding to the vocal strain. It also taught me "tricks" such as breathing through the beginning of a word that still helps me with dealing with my SD. I do not know if I would have had as much help without the massage since it was a key part of the therapy. Now, I use speech therapy as needed, but don't allow the MTD to get a stronghold. That way, I can get better results quicker and without as much work.

Carol
ADSD




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Re: NPR and Dysphonia
Re: Re: NPR and Dysphonia -- Sojourner Top of thread Archive
Posted by: Gary Lea ®
07/31/2010, 00:03:52


When I wsa diagnosed with ADSD in 1992 one of the first things I did, after botox, was to go for massage. It helped to a minor degree but I have continued to go for over 18 years as I find it generally beneficial. If one has MTD I suspect it might help, along with speech therapy. I would not expect it to help SD. I am aware of no research supporting massage as an intervention for SD.

Gary Lea




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Re: NPR and Dysphonia
Re: Re: NPR and Dysphonia -- Gary Lea Top of thread Archive
Posted by: irish ®
08/05/2010, 18:05:05


SD causes involuntary spasms, so you CANNOT control them. Massage can help as mentioned with MTD, but it can also help with relaxing muscles that you have abused by straining your voice, tilt of your head, etc. So it is sort of an individual thing in how much the massage will help. It certainly would help with any stress involved.



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