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Posted by: lhenk ® 03/25/2011, 16:09:58 |
I'm taking a Creative Science Writing Class at Colorado State University. Guess what my topic is? SD, of course! Anyway, I'm interested in hearing from those of you who have opted not to receive Botox. If not, why not? And what therapies do you use?
I'd also like to know if you're agreeable to my use of your answers in a science essay. I'd keep names out of the paper. Thanks ahead of time. |
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Posted by: hedgehog ® 03/30/2011, 16:09:14 |
I developed SD over 20 years ago when most doctors had had no experience with it. Because people with SD sound as if they are overcome by emotion, the condition was thought to have a psychological cause. I did not believe this explanation because it did not fit with my experiences of SD. A couple of years later, I heard about a program on TV which showed that other people had the same problem I had, and doctors were using botox to help them. I was finally diagnosed with SD, and offered botox. I declined because I didn't want to put something so toxic in my body without knowing what the long term effects were. In other words, I thought the cure was worse than the disease. I see a speech therapist every now and then, because speech therapy prevents my voice from sounding worse than it already does. Good luck with your essay, and you have my permission to use this information if you can guarantee that it will not harm any person who has this crippling disability. |
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Posted by: hpuckett ® 03/31/2011, 04:36:39 |
I also have had SD(adductor) for 20+ years. My voice is weak volume-wise, never improving unless I restrict my sentences to very few words (1-5), tremulous at times. The SD came out of the blue as we say, back in 1981, and was diagnosed 2 years later. I underwent a surgical shortening of the LTVC in 1984 to reduce the impact of the uncontrollable spasms in my voicebox. Thereafter, 2 years of speech therapy to learn to manage the changes, left me hoarse and breathy but very few tremors. Then in 2007 the condition reasseted itself with a fury. Again, out of the blue. I underwent a single Botox treatment in 2010, very high doseage, and did find great improvement and relief within 4 weeks, and that lasted about 4 months. Gradually, I reverted to the SD in all its' glory. Another injection was scheduled but after much thought, research, and prayer, I opted out. I have become so accustomed to the voice issues, and have such strong support from family, co-workers, and friends that it seemed to me not worth the risk of botox, at all. I find that at my age (65), my infirmities must be embraced and allied with, if I am to truly enjoy what remains of my life. The "ramping up & down" for botox injections, and well the entire process is simply abhorrent to me, personally. I am thankful for what voice I am able to enjoy, and for the ability to communicate, with attendant frustration of course. We are the most critical, of course, as we all lament the loss of function and strive to reaquire homeostasis, while others quickly adapt and accept. I regret the grief it suggests to some well-meaning, empathetic people who do not know me well enough to appreciate that I am fine, happy, healthy, stress-free, if challenged. Life is a challenge, and SD is just a slight bump-in-the-journey home. Please feel free to include my comments if they are of any help in your paper. Warmest regards ... |
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Posted by: lhenk ® 03/31/2011, 17:05:23 |
Thank you both for your response. I've had AdSD since 1989 and didn't receive Botox until 2001 for many of the same reasons you discuss. The shots seem to work for me most of the time. However, I suspect change will come. During the times between shots when my voice is rough, I'm glad I had all the experience before 2001 to fall back on. And thank you for permission to use your comments. |
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Posted by: Samietooo ® 04/07/2011, 12:38:55 |
WONDERFUL attitude! Love it! A lot of things I tell myself as far as SD goes (my voice), that makes complete sense to me, yet I've built up so many walls that I haven't been able to or just haven't broken down, and therefore, for lack of better words, I 'run and hide,' kind of thing! Best of luck to you and I admire anyone who goes on with their lives 'normally,' and has SD! |
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Posted by: higsone45 ® 08/03/2011, 17:12:38 |
I had about 12 botox injections with no help. I recently started accupuncture and after just 4 visits my voice is getting a lot better |
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Posted by: randrstuart@gmail.com ® 09/15/2011, 08:29:39 |
Can you tell me what you are doing in accupunction so I can share it with my provider? Thanks randrstuart@gmail.com |
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Posted by: Wendy ® 01/28/2012, 11:46:40 |
I would love to know more about how your acupuncture treatments are currently working for you. The other thing I have considered is Chiropractic work which I believe might help nerve impulses travel more easily. |
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