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Posted by: Dwight C. ® 11/08/2011, 09:16:03 |
I've heard of a few people with SD who have gotten botox injections into their false vocal folds in addition the usual TA muscle injections. I've also heard that having a lot hyperadduction in muscles above the TA is indicative of "sever SD." Is anyone else on here familisr with this? Dwight |
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Posted by: Renee ® 11/08/2011, 17:59:55 |
There is a girl in our support group who gets her false vocal chords as well as her regular vocal cords injected...Email me privately, if you'd like her email address...
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Posted by: rainbow ® 11/15/2011, 20:34:23 |
I have been getting injections into both the true and false vocal cords since July, 2010. The "traditional" botox procedure into the true vocal cords did not last and the strain returned within two months. So, we upped the botox to 5 units into each true vocal cord and additionally injected each false vocal cord with 5 units each as well. While I never get MY voice back, this has allowed me to go for three months - once 4 months - with the ability to communicate and teach. I have an injection scheduled for this Thursday and due to a very stressful 14 weeks of the beginning of my school term (assistant principal), I have been straining for the first time since July 2010. The injections into the true vocal cords is very tolerable; the injections into the false vocal cords are a bit more uncomfortable - not painful - just a sensation of needing to cough and taking a bit more time to peform. Also, the injection usually begins to work by the end of the day it is received. I am typically his first patient of the day, so by the end of the day, I am getting relief. Good luck! |
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Posted by: Dwight C. ® 11/17/2011, 14:53:20 |
Thanks so much for sharing with me. I think I will talk to my doctor about it on my next visit. If you don't mind, I have a few more questions: 1. how long are you breathy? do you lose your voice completely during that time? 2. are there any other side effects associate with injecting the false folds? 3. have you had problems with your insurance covering a non-standard SD treatment? Anything else important to know? Thanks, Dwight |
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Posted by: rainbow ® 11/17/2011, 18:34:27 |
I am a very odd case. My doctor told me today that he cannot believe that I am only "completely" breathy for 3-4 days because the amount of Botox he injects is a "hammer". My physical make-up is one that is resistent to neuro-blockers such as novocaine (I need 2-3x's the normal amount) and epidurals did not work with both of my children. He doesn't know why that is for me and the amount of Botox injected, according to my physician, would make his regular patients breathy for 6 months! AFTER my 3-4 days of breathiness, I have some tone in my voice and it will lessen the longer I speak, but come back with rest. After that, I typically have a good voice for about 50 days, become hoarse thereafter until 3 months out and I have to go back because I am beginning to get strained and cannot get strangled due to my teaching and assistant principal position. OTHER SIDE EFFECTS: You may have difficulty swallowing - I use a straw and chew my food very carefully for about a 1-2 week period MAX. INSURANCE: I am very lucky - I have wonderful insurance and with a "letter of medical necessity" they cover 80% after my deductible. It's a difficult injection as you have to be scoped and injected by epiglotis at the same time. It is not comfortable, but with a skilled physician, lasts only 30 seconds to 1 minute on each side. You just have to fight the sensation of coughing and swallowing. This type of injection is expensive, but worth it to be able to go 3-4 months without severe strain. Good luck! |
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Posted by: Dwight C. ® 11/22/2011, 13:54:15 |
Thanks for your reply. I too require a high dose, at least compared to most at the clinic I go to, but my dose is less than yours. My doctor, who has been doing this for a long time, says that dose varies a lot between clinics based on differences in technique, preparing the medicine etc. It also varies quite a bit between people, but this variation is not related to severity, gender, or size. He believes it mainly has to do with the architecture of the larynx. Some people's folds are farther apart and cannot tolerate higher doses nor need them. Some few people have very close cords and will never taotally lose their voice even if they got 100 units perhaps. I usually get voiceless for a few days, then a very weak voice for 3 weaks, then a good sounding voice for two months.
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Posted by: rainbow ® 11/24/2011, 18:53:08 |
Thank you for the information. I've never heard that before, but it does make perfect sense. I think the typical "good" voice - or as I call it - the ability to communicate so that people don't scrunch up their faces trying to hang on every word voice - is about 3 months - no matter the dosage. However, one person I know who was diagnosed over 10 years ago has had a "good" voice (as litigator) has gone as long as 8 months before needing an injection and gets a very small dosage. So, her make-up is probably as you described - folds farther apart. Good luck on your journey. |
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