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Posted by: Cinthia ® 02/12/2013, 22:28:25 |
Hi, everyone!
I have both AD and AB SD and, because I'm a long-distance runner, I don't do Botox. Somedays my voice is okay, some days a mess. My first book released last week and so far I've done two public discussions, with a microphone, in front of crowds of people I don't know, and I answered questions, and yes, my voice wavered and yes, it wasn't always a pretty voice, but I said what needed to be said and people appreciated the effort and I signed book and really, it was all good. That talk is going to be broadcast on the local radio station. I don't want to hear it (would be waaaay too painful) yet I don't mind others hearing it. I think I'm finally to the point that: This is me, this is my voice, let's get on with life. At least I feel that way now. I'm sure I'll have a bad day soon and sit in the bathroom and cry, but for now I wanted to share that I overcome one of my biggest fears and really, hosting a talk in front of an audience wasn't so bad. I survived, after all. Hope everyone is doing well. (Link removed per BB rules) Modified by Moderator-WB at Wed, Feb 13, 2013, 12:15:19 |
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Posted by: Renee ® 02/13/2013, 13:27:35 |
Wonderfully encouraging story...I, personally, hate public speaking with a passion...Good for you!!!
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Posted by: Nella ® 02/17/2013, 12:24:59 |
Cinthia,
That is so fantastic... I did public speaking before coming down with SD... Now I can't imagine... wouldn't even do a eulogy for a friend because of it... You've inspired me... I'm so thankful that I've found this sight and this organization. For so long I've felt isolated. Isolated is not really the word because I've tried to be upbeat with it but it definitely can bring you down. The frustration is the hardest part... just going through a drive through window!!! lol.... I also suffer from both disorders and every 3 months make the drive to MUSC for botox which leaves me with no voice for 2 weeks, 4 weeks of tolerable and 4 weeks of sounding like Kermit the Frog.... But your story was such an inspiration. Though there is no cure, I know it can be controlled and I'm finding out it's not the voice but what you have to say that counts.... thank you so much... |
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Posted by: hpuckett ® 02/22/2013, 08:29:27 |
So happy to hear it Ms Cinthia, and while we may be a small crowd, I am in your number and have been for some time. Funny, once we accept ourself and the dreaded "voice breaks, voice outs, bad voice, etc" characteristc of several conditons (PD, SD, MS, Huntington's among them) it all becomes moot. I am more encouraged everyday by the love, patience, and unconditonal acceptance of most listeners I encounter. Keep spreading the Good News my friend, and thank you for your courage and spirit. PS: used to be a runner myself, when i was in my prime. lol |
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Posted by: Cinthia ® 03/01/2013, 03:08:28 |
Well, my enthusiasm was short lived, as always, but thanks for the kind comments, everyone. A friend messaged that the radio show aired today. I'm totally mortified. I do NOT want to hear it or even think about it. I've caught my voice on answering machines and it's always a shock. It stuns me, how it wavers and dips and cracks. I don't think of myself as sounding that way. In my mind, my voice is perfect. Then my mouth opens and it all falls apart, sigh, sigh. |
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Posted by: hpuckett ® 03/04/2013, 04:39:04 |
Ok. You knew it would sound quite bad yes?
You are a published author, and you are now a radio'd publiched author. Just go with your successes and accept the fact that it is all good. Separate out the vanity and move on smartly. Like I have a long-standing friendship with a man who has suffered from Tourette's most of his life. He can make some pretty stange noises and faces, but man is he awesome otherwise, and he has never let it stand in the way of success and happiness and Peace. If we all had our choices, we would all sound, look, talk, act the same? or atleast the standard deviation from the "norm" would approach zero. LOL. Cheers. |
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Posted by: Louann ® 03/23/2013, 22:33:50 |
It is so refreshing to know other people go through the same thing - I thought I was the only person that experienced that. I don't feel so alone now. Thank you. |
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