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| Upper eye/eyebrown twitch. Is it related? |  | ||
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Posted by: jean maxine ® 06/30/2014, 07:10:30 |
I was diagnosed with SD back in 2010 and have been getting botox injections since that time which seem to work pretty well for me. A few weeks ago my eyelid/eyebrown began twitching and it has not stopped since. We all get that occassionally I think, but it usually goes away pretty quick. My question is, has anyone else had this happen ? or any other involuntary spasm's that might be related to the SD? It just seems so odd that this suddenly starts and is probably neurological and so they say is SD. Any comments will be appreciated. Probably going to set up an appointment to see an eye doctor this week. Thanks again. Jean |
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Posted by: flatlandfilly ® 07/01/2014, 15:57:07 |
Geeze, what next right? My experience is a bit difference. When I first had SD (1984) and it was at it's worse I'd experience facial spasms when I tried to speak. Once my SD improved the spasms stopped though I still feel as if they reoccur if I am working really hard trying to be heard in a very noisy environment. You are right, SD is a problem with the patient's neurology as are all dystonias. Unfortunately, if we suffer from one dystonia we are more likely to have another. There are dystonias of the face, including eyes, and neck. If your eye doctor can't give you answers you might ask for a referral to a neurologist or Google movement disorder clinics. Perhaps there is one near you. Good luck and let us how you are.
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Posted by: jean maxine ® 07/02/2014, 14:26:05 |
Went to the eye doctor and he suggested I see my primary care which I am doing Monday. She will probably refer me to a neurologist. If this is another dystonia, I will just wear it like I do my SD with honor. I look at it that if this is the worse thing that happens to me, then I am grateful. Thank you for your response. This group helps me so much. Jean |
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Posted by: flatlandfilly ® 07/02/2014, 15:44:47 |
What a great attitude you have! I try to remember to count my blessings, too. I happened to read posts on the Dystonia Message Board not too long ago and it made me realize how lucky I am. Have a wonderful Fourth of July. Cynthia
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Posted by: Keith ® 07/25/2014, 21:40:09 |
Involuntary eyelid twitches that manifest as another form of dystonia are called blepherospasm and are treated with botox the same way that laryngeal dystonia is treated. I also have had occasional twitches, but then it goes away. If it is indeed blepherospasm, it will not go away. Hopefully it is not that and rather just an occasional twitch. Laryngeal dystonia is, for most of us, a primary dystonia although there are people who have several different types of dystonia. Much depends on the age of onset of the primary dystonia in terms of whether or not other dystonias will, in time, present themselves. Keith |
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