Re: Career Impact of SD
Dear Trish,I am a 39 year old female who has suffered with ADSD for 17 years. I took Botoxium Toxin Injections for 2 years. From 1998 when I was finally diagnosed until February of 2001. I have now had Dr. Berkes' Surgery for my voice condition as of June 12th. I am at home recovering from the operation as doing well. SD impacted my career back years ago. However, I kept trying to work and hold down a job. In 1994 I was on sick leave and started the process of SS Disability, however, I did not go through with it, cause my voice came back for a few months and I needed the money so I went back to work with my tail tucked in like a little puppy dog. I continued to struggle to work until early 1998 and at that time I just couldn't hold out anymore. My medical problems out weighted my career. I was an Admin. Exec. Secretary for 12 years and had finally gotten to a comfortable level of income all to have to give it all up. However, it was a time in my life that I had no chose and I did what I had to do. There is nothing wrong with being disabled and drawing a check when you need too. I fought for my disability for 3 years. I went through two attorneys. I finally found an Attorney out of Chicago who is wonderful. He got me my SS disability in only 3 months. However, I did not get any back pay. But it was great to finally be recognized as a person with a medical problem and not someone who had this all made up in her head or Crazy. I am still on SS due to my illnesses and I thank God everyday for all that he has done for me and others like me. I Welcome you to the NSDA Bulletin Board. I know you are at the right place. There is truly wonderful folks here to help you. I still cannot talk above a whisper, but the doctors say I have a good chance too be able to talk normal in 3 to 6 months. Some of the others here who have had Dr. Berke's Surgery are talking beautiful and they have their lives back. I have spoken personally at length with a lot of them and they are extremely exceptional people. I love and appreciate each and everyone of them for they have truly been there for me and my family. Don't be afraid. Do what you must Do to survive. If I can help you in any way, please do not hesitate to contact me. Regards, Jan
Re: Career Impact of SD
Hi Jan - Just wanted to say thanks for your illuminating message. I go to my first Dr.'s appointment that SSI is sending me on tomorrow. Of course, it's first to a psycologist! But, it's a start. Sounds like it can be a long process. Anyway, thank you again. I really appreciate your thoughtful reply. Trish Kiermiaer
Re: Career Impact of SD
Hi Trish!
It's great you have a doctor's appointment, but PLEASE be careful of psychologists; many are totally ignorant of SD and will attempt to fling out labels for a variety of nervous disorders that simply have nothing at all to do with why you speak the way that you do.
Take care!
Cinthia
Re: Career Impact of SD
Hello Trish,I am glad you have got to your first appointment. Yes it really is a long process unless you have a good Attorney on your case. It took me over 2 years. But when I finally got my Attorney he had mine for me within 3 months. Thank God. Like Cynthia said, be careful with this type of doctor. They tend to make their own assumptions. I even went to the expense of having a lot of psychological testing done on behalf of my effort to prove I was unable to work and hold a job. Not that I was crazy or anything it showed a lot of things that was going on in my life. Good luck and take care. Let us know. Regards, Jan
Re: Career Impact of SD
Trish,You hang in there chick. You are doing the right thing. I too thaought seriously about cashing in my career with Citibank prior to having surgery, but felt that a prolonged disability would be fought so I chickened out and opted to wallow around in misery. But last Sept (12) I had the surgery and am a happy camper. I freely talk on the phone-don't think twice about answering it! I went through a divorce-which to this day I think was at least partially due to the adverse effects on ones disposition that is effected by SD. Although I am not dating yet, it is not for lack of trying. I am not the least afraid of talking to women I don't know. The dating game is OK. A year ago the thought would have put me in a panic. Hang in there. You will be gifted with your voice returning and have see that the future holds great things for you! Vaya con dios chica! Robert
Re: Career Impact of SD
Trish, I know exactly how you feel. Welcome to the BB where you will learn a lot and receive a lot of help. At the onset of SD I had worked for a company for 32 years and within six months I had to go out on sick leave. My job required a lot of vebal communciation. We also had a plant which used a lot of chemicals attached to our office building. We thought I might be having trouble with a chemical. My voice continued on its downward spiral. I went to the best ENT in the city and he told me nothing was wrong. I was eligible for long term diability but he continued to tell them I could talk if I wanted to. I applied for SS diability and he told them I could work. This doctor had no knowledge of SD and the physical impact it has on your body. I was eligible for full retirement and decided to go that route. Now I feel I should have hired an attorney and fought but as you all know SD can be devastating to your ego and personal well being. I didn't have any fight left in me. I hope things work out well for you.
Re: Career Impact of SD
Lib, Bless you heart. I still think you could win you ss disability. That is definitely not fair. You deserve that. I know a wonderful attorney who is in Chicago. He got mine in 3 months. I believe he could help you. Sounds like you were decimated against.I do understand not having any fight left in you. But if you would like e-mail me and I'll give you his e-mail address. He handled everything for me via e-mail. I never even met him in person. I tried for mine for 2 years before I found him. Regards, Jan
Re: Career Impact of SD
Hi Trish,I've been away from the BB, and just read your post. When I was first forced to leave my job (when my clients could not longer understand what I was saying) my company facilitated the necessary paperwork for me to apply for short-term disability. After three months, it shifted into long term disability, which was State Disability, available for one year only in California. During the year, my case worker called from time-to-time to check up on me. She could tell from the sound of my crippled voice that I could not do my "telesales" job. By the way, this was not a job like those solicitors who call you at 7 PM when you're having dinner. I was selling high-end banking software to large financial corporations in the U.S. Twice during the year my doctors had to fill out forms validating my condition. The year ended June 1, 01 and my claim has kicked into UNUM, which is an insurance company that handles long-term disability when State disability runs out. This insurance is available for five years. In order to get this, Dr. Berke and Dr. Blumin had to fill out up-to-date information, documenting my April 9 visit. The amount that you receive is based on your income over the last three to five years, if I remember correctly. It is enough to cover my basic expenses. I know I am very lucky to receive this, when many others have had to endure SD without any financial assistance. If you can't go through the last company you worked at, do what Jan did and get a lawyer to fight for you. You deserve it. Hope this helps. -Joan
--modified by Joan Carole at Mon, Jul 02, 2001, 17:22:21 --modified by Joan Carole at Mon, Jul 02, 2001, 17:23:37
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