I think I may have spasmodic dysphonia.


Posted by Deborah Miller ® , Jul 23,2001,21:40   Archive
I have not been to a dr. yet, but I think I may have spasmodic dysphonia. It would be a relief to know what I have been suffering with for a couple of yrs. has a name. I started doing some research on the internet & most of the symptoms listed seemed like what I have. I would like any info anybody can give me on what to expect @ my 1st dr. apt. I would also like anyone's opinion on what type of sd I may have. It is such an effort for me to talk, especially lately. I can't catch my breath during sentences & it is a struggle to get words out. I have a lot of trouble with vowels, especially if a word starts with a silent consonant. Talking on the phone is the worst. Which is not good when you are a receptionist. Sometimes people ask if I am losing my voice, but I don't have any trouble singing or whispering. I would appreciate any feedback.



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Re: I think I may have spasmodic dysphonia.

Re : I think I may have spasmodic dysphonia. --- Deborah Miller
Posted by David Barton (NZ) ® , Jul 23,2001,22:29 Top of Thread Archive
Hello Deborah

Welcome to the NSDA Bulletin board.

It's hard to tell from your description which kind of the two main types of SD you might have - that is, ADductor or ABductor SD. Try going to the NSDA's website at http://www.dystonia-foundation.org/nsda/ and listening to voice samples. There are more at Dr Jim Thomas' website at http://www.voicedoctor.net/therapy/dystonia.html

What would you expect at your first doctor's appointment? Ignorance most likely if it's your GP/primary care physician. Ask for a referral.

What you need to aim for is to fast-track your diagnosis if you have SD and then explore treatment options.

Try to get referred as soon as you can to a movement disorder neurologist or otolaryngologist who specialises in SD. You'll see a good list at http://www.voicedoctor.net/links/physicians.html

There is also advice there about what to expect from your first appointment:

http://www.voicedoctor.net/physician/expect.html

The main tool for a competent SD expert is their trained 'ear'. They can hear the breaks that interrupt your voicing that are so distinctive in true SD. They should also ask you about your vocal 'history' and this often gives them clues too. It's likely they will use an endoscope to examine your vocal cords while your are voicing - often they can see the spasms that are typical of laryngeal dystonia.

Good luck and let us know how you get on.

David




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Re: I think I may have spasmodic dysphonia.

Re : Re: I think I may have spasmodic dysphonia. --- David Barton (NZ)
Posted by gavin hadley ® , Jul 31,2001,11:31 Top of Thread Archive
Just a quick note to our friend David Barton: kudos are due for the fine job you do dealing with folks on this board. You are to be congratulated. Thanks from all of us who post here.



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Re: I think I may have spasmodic dysphonia.

Re : I think I may have spasmodic dysphonia. --- Deborah Miller
Posted by Ed H. ® , Jul 24,2001,08:07 Top of Thread Archive
Hi Deborah,

Welcome to the board! Your profile says you're from Virginia. There's a major voice center in Winston-Salem at Wake Forest University. I see Dr. James Koufman, who is excellent. It's worth the drive in my view. -- Regards, Ed H.




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