Frog in throat


Posted by David Hedley ® , Nov 14,2001,12:50   Archive
I seem to have a permanent frog in my throat that I cannot clear. Is this mucus produced due to the spasm and the bodies defence mechanism? I feel a lot of the time as though I have a foreign body in my throat and I just want to reach down and yank it out. I spray my throat with local anasthetic but to no avail.

Anyone share these symtomns?

David




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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by Sandy Van vlymen ® (Sandy Van Vlymen,Sandy Van vlymen), Nov 14,2001,13:14 Top of Thread Archive
I have the exact same trouble, but wasn't sure if it was my allergies along with the SD. I have a lot of mucous and I am constantly clearing my throat even when nothing is there because it feels like something is there. I can't help it, though.



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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by David Hedley ® , Nov 14,2001,17:03 Top of Thread Archive
Hello Sandy, thanks for your response. After 5 years of thinking I was the only one in the world to have this strange complaint I am somewhat relieved to find this medium with so many people who seem to share the same problems as you and I.

I have ADSD and would be very interested in your other symptoms if you would like to share them with me.

Tell me a bit about yourself.

I live in England am 49 years old and have a love of life. This arse of a complaint however, has dampened my enthusiasm and although my family have been tremendously supportive I feel very isolated and alone in this strange new world I now find myself in.

They say every cloud has a silver lining and last year I lost my job. I believe I lost it because of my inability to communicate with customers etc. I was very fortunate however to find a new job with and old friend and things are far better and more lucrative than before. He doesn't care less about my voice and his friendship and support has made me thrive in my career and I although I struggle to communicate still can do this and am able to "wheel and deal" and still make a few quid.

David




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Re: Frog in throat

Re : Re: Frog in throat --- David Hedley
Posted by Sandy Van Vlymen ® , Nov 14,2001,18:21 Top of Thread Archive
David,

I am 60 yrs old, just diagnosed and coming to realize what my symptoms are. I don't think I am as bad (yet) as many on this board, but I was very interested in the post about respiratory problems because my SD seemed to start after a severe allergic reaction which gave me terrible lungs and coughing until I found out what I was allergic to.

I seem to get incredibly worse when I am on the phone and talking to people who don't know. I am very relaxed at home with family and don't spasm as much. I don't really know the difference between what people are calling spasms and tremors. I was using the terms interchangeably.

Well, if I was going to get a neurological disease, I am much happier that I do not have one of them that make my hands arms and head shake. Right now, I can work around my voice and get a decent one when I need it.

Sandy




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Re: Frog in throat

Re : Re: Frog in throat --- Sandy Van Vlymen
Posted by David Hedley ® , Nov 15,2001,16:52 Top of Thread Archive
Hello Sandy, Good on yah! I totally agree with your sentiments. We really have to put our problems into perspective. As inconvienient as it is, our problems are not life threatening only a major inconvenience to us. We do not have cancer, we are not ugly, we do not have two heads just a mild affliction which causes us some distress, I agree. It's brilliant to have this medium where we can all let off as bit of steam and whinge to each other over this bloody awful condition - but lets get real.

Incidentally at the risk of being repetitive I am still waiting for your funny stories. The one thing this condition will not beta is our sense of humour.

I took my friends kids to the zoo yesterday and whilst I was standing over the lions cage I dropped my mobile phone. S*** I thought. The lion appeared to be sleeping so I thought, why not climb down quietly and slowly and retrieve my phone. As I reached the bottom, guess what? My phone started to ring. The lion woke - a cross lion!! (crossed line)

Best I can do today - I've had a whiskey - Good night - sleep tight.

David




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Re: Frog in throat

Re : Re: Frog in throat --- David Hedley
Posted by Sandy Van Vlymen ® , Nov 15,2001,18:25 Top of Thread Archive
David,

Just learned a local radio host has SD and I have to email her. I guess she was on 20/20 about it. She works 3 months, then she's gone for one month (I would guess to get a botox shot) then comes back. Don't know if she posts on here.

Two good friends went into bank and bankrobber came in and said I want all your cash! One friend looked at other, then stuffed pile of money in his hand and said, here, this is the $500 I owe you.




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Re: Sandy - Frog in throat

Re : Re: Frog in throat --- Sandy Van Vlymen
Posted by Shirley A. Prather ® , Nov 15,2001,18:55 Top of Thread Archive
I think you are talking about Diane Rheam of the Diane Rheam Show on NPR. She has written a book about her SD. But I don't think I have noticed her on this board.

Shirley
Related link: http://home.att.net/~prather01/




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Re: Sandy - Frog in throat

Re : Re: Sandy - Frog in throat --- Shirley A. Prather
Posted by Lynne Martinez ® , Nov 15,2001,23:29 Top of Thread Archive
Diane Rehm doesn't post but many of us have met her in person and she is visible through the NSDA, as an Honorary Director, so please make sure to pay your annual NSDA subscription to keep in touch with Diane and other powerful people trying to assist us, as well as to support this Bulletin Board. $25/annually.

Also, attend symposiums well advertised in this forum. That's where we all get together from throughout the US.

Let's continue to add to the "body of work" already established by the NSDA. Much is already available through the BB-Archives and by belonging to the NSDA and accessing information they make available. That is the beauty of this BB, rather than continually re-inventing the wheel.

--Lynne (AD; No California; NSDA Regional Contact) Related link: http://dysphonia.org




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Re: Frog in throat

Re : Re: Frog in throat --- Sandy Van Vlymen
Posted by Robin Stull ® , Nov 16,2001,02:49 Top of Thread Archive
I guess it could be Diane Rehm, but she wouldn't be local to you there in Indianapolis since she works out of Washington, D.C. Maybe you just get her show locally? We don't get her show out here, but I've gone on-line and listened to her that way. Amazing what we can do on the internet!

I wish you well, Robin (AB/So. Calif.)




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Re: Frog in throat

Re : Re: Frog in throat --- Robin Stull
Posted by Shirley A. Prather ® , Nov 16,2001,07:38 Top of Thread Archive
We get Diane Rehm here in the metropolitan Detroit area (Farmington Hills) on National Public Radio.

Related link: http://home.att.net/~prather01/




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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by Karen Feeley ® , Nov 14,2001,18:55 Top of Thread Archive
David,

Actually, I have noticed this a little lately. I thought it just might be remnants of a cold or pollen.

Do you take botox? Could it be related to that? I don't seem to remember this problem pre-botox.

-Karen

PS- I'm 35 and have been suffering with this for about 4 years. Just got it diagnosed in April.




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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by Barbara Oberholtzer ® , Nov 14,2001,20:46 Top of Thread Archive
David,

The first symptom I had was needing to clear my throat constantly. The doctors could never see anything that should be causing it. Never had sinus or drainage, just that lump or feeling you speak about that wouldn't go away. Then, I semed to have to strain to speak and it gradually kept getting worse. I worked as receptionist (Really tough job for someone with SD) for a family physician and he kept sending me to specialists until one finally diagnosed my AD/SD. He diagnosed me by just listening to me and suggested Botox. It was wonderful and the lump disappeared whenever I had a botox injection. Whenever it wore off, I had the same feeling of that awful lump being there again. Mine seemed to be always on the right side of my throat. Botox quit working for me after 8 years and I had the SLAD surgery by Dr. Berke in August of last year. I no longer have any feeling of the "lump" and I am very pleased with my results, although it isn't my pre-SD voice and not perfect. I wish I had some helpful hints for you but nothing I tried helped. SD is SOOOOOO frustrating. Barb




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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by fancynancy ® , Nov 15,2001,00:28 Top of Thread Archive
Hi David,

Oh Yeah, I get that froggy-phlegmy-wanna swallow and clear my throat- feeling a lot. Frustrating, isn't it? It's one of the first things I noticed when I came down with my ABSD, over 10 years ago. Felt like "gunk" was always in my throat. (she says clearing her voice!). I used to have pain speaking, too, but not now. Sometimes I think it's due to Acid Reflux. Or smog? (I live in California). Allergies probably make it worse, and of course foods like dairy products.

You may want to try a product called Singers Saving Grace, if they have it over in England...found in health food stores. It helps clear your throat a bit. I work in a recording studio and am constantly giving it to singers, and it helps their singing voice. Tastes terrible but works good.




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fancynancy

Re : Re: Frog in throat --- fancynancy
Posted by Robin Stull ® , Nov 15,2001,01:47 Top of Thread Archive
fancynancy -

Are you near the greater LA area (referances to smog and recording studios are a clue)? If so, did you know there is a SD support group in Orange County? Our next meeting just happens to be this Saturday (11/17) and Dr. Damrose (Dr. Berke's new assistant doc) is going to be our speaker. If you are interested, drop me an email and I can give you the details.

I wish you well, Robin




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Re: fancynancy

Re : fancynancy --- Robin Stull
Posted by fancynancy ® , Nov 15,2001,13:59 Top of Thread Archive
Hi Robin,

I'm in Bakersfield, about 100 miles north of LA. This city is listed as the 2nd Smoggiest, next to Los Angeles. (Lots of oil refineries and farming here). Orange County is about 3 hrs. from here. Wouldn't be able to make it to this meeting, but in the future if I'm headed down to the area, I'll email.




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Re: Frog in throat

Re : Re: Frog in throat --- fancynancy
Posted by Sandy Van Vlymen ® , Nov 15,2001,18:28 Top of Thread Archive
Thanks, Nancy, I'm gonna try it.



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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by Lynne Martinez ® , Nov 15,2001,01:52 Top of Thread Archive
Yes, David. It's a common symptom of SD. I've certainly dealt with the froggy/phlegm-y stuff for 11 years, as most of us have during our cases.

A local anesthetic (or throat drops) often helps with moisturizing the throat, and thus may improve vocal quality briefly. Drinking alot of water (and hot tea with lemon/honey) helps a little also...briefly. A bit of wine is cool too.

Good luck with your case and in finding some of these temporary reliefs. Also, if I haven't already welcomed you to the BB, "welcome!" and thanks for your curiosity and questions. Hopefully you've been able to find info in the Archives as many of the topics (SD symptoms we have in common) are discussed there. As you have discovered, this BB is a great place to meet other patients as well as to gain info and alot of support.

Keep up the good work!

--Lynne (AD; Northern California; NSDA Regional Contact)




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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by Robin Stull ® , Nov 15,2001,02:20 Top of Thread Archive
David -

I believe that it is just as you describe - the mucus is produced due to the spasm and the body's defense mechanism. Someone else explained it approximately that way a while back, and it makes a lot of sense to me. You should search the archives for "phlegm" or "mucus" ! many, many posts! I'm not saying that you shouldn't post again about this. It seems to me that this wouldn't be the SD BB if we didn't have a good thread about mucus going. ;-)

The lots of water idea is a good one; and I'm interested in that Singers Saving Grace that fancynancy mentioned. I've yet to find anything that helps much.

Oh, I guess the phlegm problem may also be aggravated by reflux. Reflux is also a common problem with SDers, and many times you may not even know you have it (no obvious symptoms, like heartburn.)

So you are not actually from Scotland, are you? You just visited there recently? Oh, there's your bio - you are in Sheffield! That reminds me of the bloke that lived in the upstairs flat when I was a student and did the "semester in London" thing! (I'm a native Californian, although, I'm sorry, I don't know how to talk "valley talk.") Anyway, he was from Sheffield, but was having to live and work in London and he really wanted to do nothing but be in Sheffield with his friends and watch football (which is really soccer :-) ) But he could only do that on weekends. So during the week he would come downstairs and visit us but all he would do is read our magazines and then go back upstairs. You'd think that a couple of American college girls would bring out some, well, cultural exchange interest, but, well, we didn't know much (read: nothing) about football so there you are. Hmm? Curious. His name was David too. So, did you ever work in London?

Some other post I'll tell you about visiting the Whiskey Trail in Scotland! (single malts, the best!) Not when I was a student! It was a few years later!

I wish you well, Robin

--modified by Robin Stull at Thu, Nov 15, 2001, 02:23:57




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Re: Frog in throat

Re : Re: Frog in throat --- Robin Stull
Posted by Lynne Martinez ® , Nov 15,2001,03:18 Top of Thread Archive
Hey Robin,

Since you brought up the subject of living over there (and David is encouraging people to be humoUrous), maybe you should tell the story about getting assigned to mens' housing since they thought "Robin" was a boy! Ha! I thought that was hysterical!

--Lynne

PS: Sorry if I revealed a secret. Let me know if I should delete this!




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Re: Frog in throat

Re : Re: Frog in throat --- Robin Stull
Posted by David Hedley ® , Nov 15,2001,16:36 Top of Thread Archive
Hello Robin - pleased to meet you. Yes I am from Sheffield not Scotland. The only thing I have in common is I like a drop of scotch!!

It helps the vocal chords and the sense of humour. For those of you who do dot know much about Sheffield. It is the home of the movie "The Full Monty" Ring any bells? We also manufacture steel and cutlery although not as much these days. They seem to tear down the steelworks and build shopping malls or sports stadiums these days. There was a day when manufacturing was the stem of a nations wealth. These days it seems that we are happy to receive the revenue from McDonald's and other insignificant non productive organisations. I'm rambling.....

Soccer - now there's a topic. I support Sheffield United and held a season ticket for 15 years. I don't go now cos' they are poor and I would rather donate my cash elsewhere.

Cheers for now

David




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Re: Frog in throat

Re : Frog in throat --- David Hedley
Posted by gavin hadley ® , Nov 15,2001,12:30 Top of Thread Archive
Hey there David..

I'm 53 and my symptoms started in June of 1998. The first signs were a constant need to clear my throat that worsened to the point of the strangled voice by fall of that same year. I have been told by two otolaryngologists that I have a combination of AD-SD and MTD. I think the MTD has resulted from the false vocal folds trying to take over the function of the spasming vocal chords. I have gone beyond my normal window for shots this time just to see how bad it will get. I really don't know which is worse--the tight, strangled voice or the almost total lack of volume the shots produce. If I can stand it, I may cancel my next botox appointment and go for speech therapy instead, just to see what happens. The last time I tried it, 3 yrs. ago, it was unsuccessful but one never knows. The shots are not a big deal but the flaccid chords and all that comes with them are a big deal. As a side note, I have been to the UK on several occasions for business, usually around the London and Liverpool areas. I really like your country.




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Re: Frog in throat

Re : Re: Frog in throat --- gavin hadley
Posted by David Hedley ® , Nov 15,2001,13:33 Top of Thread Archive
Hello Gavin,

Don't give up on the botox. My specialist is prepared to vary the dosage to suit. Try having less next time or have in just one side. I know I'm talking like a seasoned proffessional (which I'm not) I have only had it 3 times and I too get hacked off with the weak voice. But it definately does take the tremour away. People still say "have you got a cold" but I just say "yes" and get on with it. Having tried speech therepy, that did nothing for me but I am quickly learning that everyone is different and it may well work for you.

Thanks for the nice things you say about the UK I love the USA too. I had a great holiday in New England this summer and I will be returning next year (terrorists or not!) perhaps to the west coast. Everyone is so friendly and welcoming.

Regards

David

ps Thanks to everyone for your reaction on "Frog in throat" contributions, it's nice to know I'm not alone




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