False vocal folds..
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Posted by: gavin hadley ®

08/28/2002, 10:05:06
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Does anyone have experience with injecting botox into the false vocal folds? I have a combination SD and MTD where, apparently, spasms in the vocal chords trigger spasms in the false vocal folds. I was wondering what would happen if the fvf's were injected and what dosage would produce results.

thx.

gavin hadley







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Re: False vocal folds..
Re: False vocal folds.. -- gavin hadley Top of Thread Archive
Posted by: Larry Becnel ®

08/28/2002, 12:22:10
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I've had injections in what my Doc called the "false chords." This was done on both sides, under anesthetic, in April 2002. I don't recall the dosage. The procedure was beneficial, because prior injections had not calmed the spasms very well. By the way, I had an injection this morning, left side, 30 units. Seems every four months will be my schedule. Larry






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Re: False vocal folds..
Re: Re: False vocal folds.. -- Larry Becnel Top of Thread Archive
Posted by: gavin hadley ®

08/29/2002, 08:05:59
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Hey Larry...

30 units sounds huge to me. I just got 2 units one side and I'm on a 3-4 month schedule. It's hard for me to visualize how a tiny vocal chord can accept 5 units let alone 30. How breathy is your voice afterward and how about the choking factor?






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Re: False vocal folds..
Re: Re: False vocal folds.. -- gavin hadley Top of Thread Archive
Posted by: Linda S. Adamson ®

08/29/2002, 08:09:29
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I echo your reaction, Gavin. My own injections (all 2 of them) have been 7.5 & 2.5 units.

Linda

AB Annapolis MD






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Re: False vocal folds..
Re: Re: False vocal folds.. -- Linda S. Adamson Top of Thread Archive
Posted by: Larry Becnel ®

08/29/2002, 08:26:39
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Linda, when I first started with the in-office injections last year, the dosages were extremely small because my doctor wanted to make sure I had no adverse reactions to the toxin. Those early treatments did little good. By the time I got to my SD doctor, I had what he called an "advanced case" and the spasming was really bad. (I had been misdiagnosed by an internist and a psychiatrist, who were both unfamiliar with SD and treated me for "anxiety." 20 units may be a lot, but if it's working for me, I'll take it.

Larry

AD/SD

New Orleans






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Re: False vocal folds..
Re: Re: False vocal folds.. -- gavin hadley Top of Thread Archive
Posted by: Larry Becnel ®

08/29/2002, 08:22:08
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Actually I had only the left side done yesterday and was given 20 units. I noticed a change within hours (in the past, with smaller dosages, there was no cessation of spasming for a few days, as I recall). Right now, I'm having no "breathiness," but my throat is slightly sore (a small price to pay). Larry






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Re: False vocal folds..
Re: Re: False vocal folds.. -- Larry Becnel Top of Thread Archive
Posted by: June Sutton ®

08/29/2002, 11:15:11
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Larry, my doctor at Tulane started me off with 30 units in the left cord, then after 9 mo., he used 20, then 15, then 5, still in that one left cord. After that, he began with 2.5 in each cord, then 1.25. I did have trouble with choking on thin liquids after those first big doses, so be careful. That came a few days later. Drinking through a straw helped.






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Re: False vocal folds..
Re: Re: False vocal folds.. -- June Sutton Top of Thread Archive
Posted by: Larry Becnel ®

08/29/2002, 11:42:05
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Jane--Thank you for the information. If I may ask, were the decreased dosages still beneficial? Larry






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Re: False vocal folds..
Re: Re: False vocal folds.. -- Larry Becnel Top of Thread Archive
Posted by: June Sutton ®

08/29/2002, 18:40:16
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Larry, when I was injected with only 2.5 units in both cords, it gave me back my normal voice, but only lasted 2 months. The high dosages didn't really give me a better voice.






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Re: False vocal folds..
Re: Re: False vocal folds.. -- June Sutton Top of Thread Archive
Posted by: Cynthia Campbell ®

08/31/2002, 08:16:04
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I know Gavin has mixed SD, and Linda has AB, but Larry and June - are

you AB or AD??? It's kind of relevant when it comes to discussions on

treatment options. It's so easy to just sign off with AB or AD ... two

letters ... that's it.

Cynthia AB, Toronto, Canada

--modified by Cynthia Campbell at Sat, Aug 31, 2002, 08:17:42







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Re: Larry, June.... AB or AD????
Re: Re: False vocal folds.. -- Cynthia Campbell Top of Thread Archive
Posted by: Larry Becnel ®

08/31/2002, 08:38:50
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I'm AD. But my doctor cautions about using these labels, because he believes many SD people who are predominantly one type may have some signs or symptoms of other types.

Larry






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Re: Larry, June.... AB or AD????
Re: Re: False vocal folds.. -- Cynthia Campbell Top of Thread Archive
Posted by: June Sutton ®

08/31/2002, 18:09:10
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I have AD/SD and have had it since 1984. I have a very strangled voice and have formed the habit of inhaling my words because that's the only way they come out.






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Re: Larry, June.... AB or AD????
Re: Re: False vocal folds.. -- Cynthia Campbell Top of Thread Archive
Posted by: Doris White ®

08/31/2002, 21:35:59
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Cynthia or anyone else with AB, could you tell me just how long it takes for your Botox to kick in after injections and what happens to your voice when they do? I ask because for the first time Thursday I had the AB muscles injected as both my neurologist and otolaryngologist thought they heard some AB in my voice. I was originally dx'd with AD and have been getting injections in the AD muscles for almost 10 yrs. now. As an experiment they tried the other muscles 2 1/2 days ago but so far, absolutely no change in my voice whereas there usually is the following day. Thanks.

Doris







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Re: AB injections
Re: Re: Larry, June.... AB or AD???? -- Doris White Top of Thread Archive
Posted by: William Vanderlinde ®

08/31/2002, 22:12:50
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Hi Doris,

For me, the most obvious and immediate change from an AB injection is that my airway becomes more restricted. Within a day or two, I will notice when I get on an exercise bike that my breathing is more difficult. If you don't exercise a lot you might not notice this effect. Other than that, I often notice that my voice becomes horse or scratchy for several weeks post-injection. Sometimes I have swallowing problems. My voice usually gets weaker before it gets stronger. If after several weeks you are still not sure the injection produced any results, you could go back to your doctor and ask him to look at your vocal cords with a laryngescope and see if you vocal cords' abductory motion is reduced.

Best,

Bill Vanderlinde

AB Columbia, Maryland







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Re: AB injections
Re: Re: AB injections -- William Vanderlinde Top of Thread Archive
Posted by: Doris White ®

09/01/2002, 12:22:00
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Bill,

Thanks for responding. It's been over 3 full days now and nothing has changed with my voice...no hoarseness, no breathing/swallowing problems...nothing! I guess either he missed or my problem isn't any AB after all or perhaps the dose was too low to start with...we'll figure it out eventually I hope. :)

Doris







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Re: AB injections
Re: Re: AB injections -- Doris White Top of Thread Archive
Posted by: Cynthia Campbell ®

09/01/2002, 12:54:20
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Doris,

I do not want to sound discouraging, however not all AB'ers benefit

from Botox. I myself have never had good results from my injections.

I've had bilateral, unilateral and doses that varied from .5 - 3 units. Initially I thought it was technique so I flew to Vancouver, New York and to California to try different doctors, but none of them worked either. That being said though there are several AB'ers on the BB that get

good improvement from Botox. Myobloc is close to being available to

patients in Canada and I intend to give it a try ... perhaps I'll

have better luck. I should mention though that when I was having

injections I had the same symptoms that William Vanderlinde described -

slight choking sensation, a bit more effort breathing so it coulc

very well be that your doctor missed the muscle. Keep trying - one

attempt isn't enough and good luck.

Cynthia AB Toronto, Canada

--modified by Cynthia Campbell at Sun, Sep 01, 2002, 12:55:30







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Re: AB injections
Re: Re: AB injections -- Cynthia Campbell Top of Thread Archive
Posted by: Linda S. Adamson ®

09/01/2002, 13:37:03
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To add to the AB folks' description: I experienced the out-of-breath phenomenon with any exercise, no matter how slight (walking at more than an amble, climbing stairs) for a good two-three weeks post-Botox -- smaller dose, smaller effect. Bear in mind that this is based on all of 2 injections total so far. When I got my second shot, opposite muscle, the dr. had already seen that there was still impact from the first shot. Perhaps because this gave a right balance, I had an improved voice, very nearly normal, within a day of the shot.

And who knows what my third shot will be like?

Linda Adamson

AB, Annapolis MD






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