Good days & Bad days
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Posted by: Mitch ®

09/28/2002, 00:05:47

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Do some of you find that you have better days with your voice than others? I just had a better day Thursday but Friday sucked! Just wondered if this was something you all experience!

Mitch






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Re: Good days & Bad days
Re: Good days & Bad days -- Mitch Top of Thread Archive
Posted by: Todd ®

09/28/2002, 00:18:32

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Yep - big time. Since my first botulinum injections 6 weeks ago, even my worst days now are better than my best days before. However, I still have very big swings up and down. Last couple of days for me have been real down ones, mostly I sound very hoarse now on a bad day - and I get really tired if I have to talk much.

I've tried to find a pattern to the down and up swings. Relating to diet, sleep, stress, weather . . . or anything else - and can't see a pattern. The bad days seem to strike fairly randomly.







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Re: Good days & Bad days
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Posted by: fancynancy ®

10/04/2002, 02:05:45

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Yep, there seems to be a monthly pattern with my AB SD. It usually coincides with my "time of month". (Apologies to the guys ;-) ). PMS time is the worst! Do any of you ladies go through the same thing?






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- fancynancy Top of Thread Archive
Posted by: Colleen Hernandez ®

10/09/2002, 10:44:53

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Hi everyone:-)Yes even after having my surgery for AB SD certain days my voice is unpredictable but PMS time it is worse. I think giving up chocolate and Coffee has definitely been a plus for me.

Colleen NE AB/SD PCA MYOTOMY FOR AB AUG 2000 UCLA






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Re: Good days & Bad days
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Posted by: samantha ®

10/12/2002, 16:56:22

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absolutely. i finally made the connection about 6 mos. ago that 1 week before my period starts (sorry guys!), my voice starts cracking up more. it's always after i get my period that my voice starts easing up and i sound so much better. i used to dread that "week" until i got the botox injections...






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- samantha Top of Thread Archive
Posted by: Lani ®

10/19/2002, 20:56:36

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yes, I notice that, too. maybe it's also due to hormonal imbalances that often occur during PMS or around our monthly period.

Lani, ADSD, Philippines







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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Lani Top of Thread Archive
Posted by: fancynancy ®

10/20/2002, 19:00:55

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You may be right about the hormonal imbalance. I've done a Net search and found that dopamine and acetylcholine (neurotransmitters reportedly involved with the SD spasms) are out of balance, during PMS time.

I've also learned vitamin B6 helps produce serotonin, which helps dopamine and (I think) acetylcholine. Some people have experimented with B6 with no success. Don't know if tryptophan is available...it's another nutrient that helps serotonin. It's naturally found in dairy products and tuna.

Has anyone done research on hormonal imbalances (PMS, etc) and SD?







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Re: Good days & Bad days
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Posted by: Lani ®

10/21/2002, 00:58:51

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we can even do research on the relationship between the brain's basal ganglia and hormones/hormonal changes or imbalances. won't hurt to try :-)






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Lani Top of Thread Archive
Posted by: Larry Blair ®

10/21/2002, 14:32:03

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I know this is an old subject, because I have mentioned it a few times on this bulletin board, but since were dicussing good days and bad days I have to bring it up again. I have had a cold which started about a week ago. Started with a sore throat and then a mild cough. I have been taking lots of vitamin C and some aspirin here and there. After a bad voice weekend, I come in to work and my voice is so normal. I have been talking sports with my co-workers, not really noticing the improvement, until my fiancee called. She thought she had a wrong number. She says is that you. I couldn't believe it either. I never know how I will sound until I answer the phone. I am talking with such ease, no straining at all??? She also noticed?? I told her not to get her hopes up for the voice lasting any time at all. I always do, and when it doesn't last, I get just that much more frustrated. I wish I could figure out how to have a cold and be at this stage of it always without the symtoms. That was just what my fiancee said first. To bad you can't have a cold all the time. LOL

Oh Well, Sure creates alot of interest when this happens. I suggested that I redo my voicemail greetings while my voice is so good. Just want to go around and talk to everyone today....

Larry

MTD/SoCal







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Re: Good days & Bad days
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Posted by: Lani ®

10/22/2002, 23:58:06

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believe it or not, i've just had the same experience. two weeks ago i had a cold and later on had coughs, too. when it was starting to resolve, my voice was much better than my usual SD voice. i could speak on the phone much better without the usual hoarseness or breathiness and i could project much louder. now that the virus is finally out of my system, my voice is becoming more SD-like again! maybe it has something to do with the vibrations our laryngeal muscles experience when we cough, or maybe the phlegm/mucus does something with the vocal cords - i don't know, but definitely, i like it when i'm recovering from cold and cough. :-)






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Lani Top of Thread Archive
Posted by: Linda S. Adamson ®

10/23/2002, 07:34:33

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It's so interesting to read of this mysterious voice improvement with congestion and coughing (and I've heard others note the same experience with flu, etc.) -- especially puzzling given the fact that, in my case and I know in that of others, the SD onset came as a result of a severe upper respiratory infection. For me, it was clearly a case of letting myself get sick because I wasn't taking care of myself, and the result was a deteriorating voice after I recovered from the illness -- and here I am.

So what do you suppose is going on in bodies that we can have both onset and improvement resulting from similar conditions??

Curious.

Linda Adamson

AB, Annapolis MD






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Linda S. Adamson Top of Thread Archive
Posted by: betty ®

10/24/2002, 07:41:06

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Many of us have voice improvement, and ease of speech, with a cold. Wouldn't it be grand if our doctors could zone in on this and find out why the cold virus, in our bodies, seems to let the brain send correct signals to our vocal chords? If it were just the cough and "drainage" that makes the voice better then I would have no SD. Just like many of you have indicated, I have drainage all the time and when I cough the voice may improve only for a few seconds. TN/mixed SD/Botox






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Re: Good days & Bad days (and hours and minutes)
Re: Re: Good days & Bad days -- Linda S. Adamson Top of Thread Archive
Posted by: Lynne Martinez ®

10/24/2002, 14:35:46

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Linda,

Pretty weird, huh? If SD-symptoms/effects didn't cause other problems (like not being able to work or keep up social contacts) it would be highly fascinating and humorous. One of the ironies of life.

Since you were at the Arizona Symposium, you know that Dr. Berke mentioned URI's (*upper respiratory infections*) as one possible trigger of SD. Also, over the years on this BB, we've talked about how *great* it is to have laryngitis as we sound so sexy and unspasmy.

I got a kick out of Larry's message (wanting to run around and talk to everyone) because it took me back 11 years, at the beginning, several years before I knew what I had. I remember a couple of cases of laryngitis in 1991, in my last year of big-time corporate work, when I would scramble to put an outgoing message on my phone as I sounded so good. Larry brought back some distinct memories.

(Also, Larry...are you sure you have MTD as the positive reactions from a laryngitis/cold is something that works pretty well with SD?).

Since I can barely figure out my own case, although I continue trying daily, figuring out others' cases is supremely difficult. It's interesting to try however. Sharing all this info is so helpful. In this particular scenario though, I think there is a difference between a major URI (possible trigger) and the swelling of the cords which takes place during some colds. It would really surprise me if a simple cold could trigger SD. They may exist in the same part of our anatomy but I think they're different, by degree. Who ever knows though? I'm pretty curious myself.

--Lynne (AD/SD; Northern California).







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Re: Good days & Bad days (and hours and minutes)
Re: Re: Good days & Bad days (and hours and minutes) -- Lynne Martinez Top of Thread Archive
Posted by: Larry Blair ®

11/05/2002, 18:39:59

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Lynne,

Well I am not too sure now. I had a followup visit here about two weeks ago with the Speech Therapist. My voice seemed worse, when I saw her. She started mentioning botox again. Leaning more towards the SD again. When I first started the Speech Therapy for the (second time) they were thinking I might be borderline. I am suppose to see another specialist that deals with voice problems here in Hollyweird. I want to get her opinion on wether she thinks I am a Botox candidate or not. I have been taking classes here at work for the past week, so I am a little late responding. It was nice having that good voice for a while anyway.:)

Larry

MTD or SD?? that is the question...







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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Linda S. Adamson Top of Thread Archive
Posted by: vici forsyth ®

10/24/2002, 19:17:39

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My SD also began after repeated URI's with sore throat, sinus drainage and laryngitis. I had 10 episodes of this in the year prior to onset of SD but only one episode in the 14 months following. I also have a very consistent pattern of better voice in the morning with no spasms and then much worse by evening. This happens every day whether I talk or not. Does everyone with SD experience this? Vici ABSD Illinois






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Re: Good days & Bad days
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Posted by: Lani ®

10/28/2002, 02:37:14

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just to strengthen the theory - my SD developed the same way yours did. i went through a terrible case of cold and cough and, yes, negligence on my part. after which time, my voice started deteriorating, too.






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Re: Good days & Bad days
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Posted by: Linda S. Adamson ®

10/28/2002, 06:09:57

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...I recall that one of the lines of SD research being pursued at NIH has to do with interrupting the sensory feedback loop between the muscles around the larynx and the nerves that send signals both ways. The studies aren't finished yet, as I understand, but apparently show some indication that interrupting the feedback tricks the brain into not sending the spasm signals. Bill Vanderlinde knows more about this, I think. If I have it right, this would indicate that what goes on with a cold, etc., might indeed disrupt the feedback loop and that's why it can give some of us temporary relief.

I'll have to wait till I have a cold again to see what happens to me.

Linda Adamson

AB Annapolis MD






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Larry Blair Top of Thread Archive
Posted by: chris moore ®

10/26/2002, 10:47:47

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Boy can I relate to this COLD THING. It seems that anything that makes my throat dry, helps my voice quality. I'm sure you all can(appreciate what a YAWN can do for your voice )When I yawn its my best voice quality of my day now . I'm scheduled for my second botox injection on Nov. 7th. My first one was May 21st of 2002 after 3 years of mis-diagnosis. I had 2.5 units each side. I was breathy for 4-5 weeks which was very discouraging. I did end up with a half decent voice for about 2 months, although NEVER THAT GREAT . I'm really struggling again now so I'm hoping and praying for some relief from this next shot . I seem to have muscle tension in and around my upper shoulder area and my neck. When I first started having voice issues 3 1/2 years ago, I can remember complaining alot about those big muscles in my neck being so tensed up and tight. Has anyone had these tension issues? I was going through some big time stress issues IE; losing a business i owned for over 18 years, I had quit alcohol just 3 months prior to the onset of SD, and It seems to me STRESS brought this on or contributed big time. Sorry for all the rambling on today, but I felt like venting a little and maybe help someone in some way by reminding them, their NOT ALONE with SD. Take care everyone, GOD BLESS you all, CHRIS MOORE






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- chris moore Top of Thread Archive
Posted by: betty ®

10/26/2002, 12:45:11

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Chris, I have always had a lot of tension in the neck and upper sholder area as you discribed. In my case, it goes away when the Botox kicks in and comes back when I have to work so hard to talk. I also have to constantly battle fatigue. It is worse when I'm having a hard time talking but, it is always present. I am not sure that I can contribute the onset of SD as a result of stress in my life, but, I feel strongly that stress played a big roll. - I have been getting Botox for 4 yrs. 2.5 each vocal chord on an average of 4-5months. With the last 2 injections I experieced over 6 weeks of breathy/no voice and I had real difficulty with choking, not only when eating and drinking, just out of the blue I would choke. I have never had these problems before. The up side is my voice has come back strong -on a scale of 1-10 it is a 9. Which is just wonderful. I can even sing. I am going to talk with my doc. about getting the injection in the right side only (David has really good results with this.) I won't to experiment with this hopefully, to avoid the choking, and the breathy/no voice. TN/Mixed SD-Botox






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- chris moore Top of Thread Archive
Posted by: Dianne Jefferson ®

10/27/2002, 12:46:43

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Chris:

I'm a new member and I've just started on the chat board. I read your comment about the "tight" neck muscles. My neck muscles got so bad I couldn't stand it anymore. Both the neck and shoulder muscles have been a major problem for me along with the constant congestion in my throat. I went to a spa on yesterday and paid for an upper body massage. The therapist worked the back, neck and shoulder muscles for half hour. I didn't know anything could feel as good as that felt.

Get a massage and have your muscles worked as regularly as possible. I plan to do the same. This will at least give your some relief and comfort.

Dianne







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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Dianne Jefferson Top of Thread Archive
Posted by: chris moore ®

10/28/2002, 19:57:40

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Thank you Betty and Dianna for the quick responses. I didn't know if this tight neck and shoulders situation was a gift just for me or not. I know I'm NOT alone now. I think i will try a massage. I have this woman who works with me and she swears that HER ACUPUNCTURIST could probably help me. I might give it a go , also. Wish me luck, take care , everyone, GOD BLESS, Chris






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Re: Good days & Bad days
Re: Re: Good days & Bad days -- Dianne Jefferson Top of Thread Archive
Posted by: Larry Blair ®

11/05/2002, 19:04:51

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Dianne,

My neck muscles are always tight too. I can actually hear them crunching together when I move my head from side to side. Always tense. The congestion is also there. always. Could not be good for the vocal chords. I had a massage here at work once. It felt good, but I really didn't get a whole lot out of it otherwise. Thought it was a little expensive.

Larry







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Re: Good days & Bad days
Re: Good days & Bad days -- Mitch Top of Thread Archive
Posted by: Renee Urban ®

09/29/2002, 14:47:36

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Yeah--my voice is DEFINATELY very on again off again. When I was talking to my boyfriend the other day it got really bad and then last night it was fine. There seems to be no rhyme or reason to it. I wouldn't even say "good days and bad days". I would say good times and bad times.

Renee Urban ADSD/ Austin, TEXAS







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Re: Good days & Bad days (vocal cycles)
Re: Good days & Bad days -- Mitch Top of Thread Archive
Posted by: Lynne Martinez ®

10/02/2002, 18:01:13

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Hi Mitch,

You brought up an important subject. In the 12 years I've had SD, I've had three distinct vocal cycles.

The years (1990-1996) with severe AD, where it was totally inconsistent but untreated and got worse by the month. I didn't know what I had then. Erratic and inconsistent, but I could predict it somewhat.

Then the 6 years after surgery (1996-2002), where my voice in the first 3 or 4 hours of the morning was absolutely horrible (gravelly, gaspy, can't get air, sound terrible, etc.) but I could get a smoothe (but low volume) voice in the afternoon and early evening but generally deteriorating over the years. However, I could rely on a smoothe voice in the afternoon. I could predict the cycle so I knew when I could make phone calls, or work.

Now (since March, 2002) when there is no consistency and I only get a "good voice" for 5 minutes a day, but I don't know when those 5 minutes will appear? Pretty frustrating in its unpredictability. Can't vocalize...can't talk to anyone...sound horrible. No good and bad days. It's unpredictable (good/bad) minutes and hours.

That's SD for ya! Frustrating! The biggest challenge I've faced, or expect to face, in my entire lifetime. Good/bad/unpredictable voice...all over the map throughout each day.

Good luck in figuring out your personal unique case, Mitch. It's caused alot of trauma for me. This BB is the source of my best knowledge so I hope it helps you also. Hope others will respond. There are inspirations here. Mostly in meeting other SD'ers.

--Lynne (AD/SD; Northern California)







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Re: Good days & Bad days (vocal cycles)
Re: Re: Good days & Bad days (vocal cycles) -- Lynne Martinez Top of Thread Archive
Posted by: Sarah Bayle ®

10/03/2002, 00:02:40

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Lynne and Mitch: I still can't believe that there are so many people out there with this same struggle. I am overwhelmed with emotion to know that I am not experiencing this as the only-lonely on the planet. It constantly amazes me how what other people say rings so true to me. In some ways, I have been wondering if this BB is a joke to get me to divulge my thoughts so people I work with and colleagues, etc. can nail me when I try to convince them that I am capable of doing some job that I don't know if I really can because of my voice! Weird. Like all the people in my VOICE life are reading this and I will lose my life of pretending I can speak well. Anyway- thanks for participating so personally and with your hearts. I appreciate it.

S.






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Re: Good days & Bad days (vocal cycles)
Re: Re: Good days & Bad days (vocal cycles) -- Sarah Bayle Top of Thread Archive
Posted by: Lynne Martinez ®

10/04/2002, 01:52:56

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Sarah,

Hi. This BB and sharing in this particular forum is far from a joke, unless you consider life a joke and what we deal with as humorous, in some regard. It can be. We always must maintain our sense of humor in order to survive and thrive. :-)...Yes, let's try to laugh about our disorder, when we can.

As many with SD, I dealt with a very severe case for years, prior to getting Internet access, and it was really bad. For that reason, I feel blessed to know so many SD'ers in person (through symposiums) and to have access to the Internet. It has truly been a lifeline for those who lose the ability to communicate, due to SD.

Stay in contact. Also, feel free to write me off the BB. There are so many of us who need each other to deal with our vocal disorder. I'm glad you are posting. Also, my personal experience has been (me and other SD-friends) that...when we finally know there are others out there...we have a *really good cry.* I sure did. It's cathartic.

--Lynne (AD/SD with tremor and RLN surgery; Northern California)







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