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Posted by: cherie plumlee ® 01/23/2003, 13:19:05 Author Profile Mail author |
Hello everyone, I found this web site by typing Talking Device into Google and thought that perhaps someone on this list might be able to help me out by having some knowledge of talking devices on the market. My daughter, Desiree, does not have SD. She cannot speak at all. During birth she had severe oxygen deprivation and the nerve endings (synapsis) in the speech center of her breain were literally burned back. She is also mentally retarded, 22 years old and tested out developmentally last year at 5 years old. We were delighted! Five year olds can do alot! Until the age of 14 she had no way of communicating other than through a few hand signs, she was constantly frustrated and hit by depression often. Then she got a talking device. It changed her whole life. We were able to program it with 144 words of which she could create short phrases to communicate her needs. This device is finally giving out and I'm looking for a new one. Has any one on this list used a hand held (or strapped on) talking device that they would recommend. There are many out there, but would like input from actual users, not just advertisements from different firms. I need to be able to program it myself by speaking into it and saving the messages. It also has to be very light weight, as her current talking device, strapped around her waist is giving her lower back problems. I'd appreciate suggestions or comments any of you may have. Thanks so much in advance for your time!! cherie plumlee |
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Posted by: Kim ® 01/23/2003, 15:35:20 Author Profile Mail author |
The one I'm in the process of ordering is from Words+, and they have a great reputation... I'm still waiting for the last of the grant money before I can order it, but I can't wait until I get it! {:~) It's going to be about half the size of a regular laptop, and yet have all the capability, including internet!!! {:~) I'll be able to take notes in class, write term papers on it, AND have speech synthesis as well!! They have lots of different options for varying levels of of desires... Most communication devices aren't suficient for the amount of freedom I need, but these guys have everything it seems! I don't remember their website address, but typing in "words+" should be effective. Of course, the cost of hte device depends on what you want it to do. (mine's going to be very expensive -especially 'cause it's in US funds, but it'll be worth it!!! My last one was always broken, which really sucked, ANd then the company went out of business before I could get my money back from them on it. I had a loaner one for a while, but it was laptop sized, and the software didn't have appropriate volume, which meant it was only partially useful. :( Feel free to email me if you like. Kim |
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Posted by: cherie plumlee ® 01/24/2003, 01:12:01 Author Profile Mail author |
Thanks so much for your suggestion, Kim! I'll check it out, no doubt Google will find it. Good luck with it when you get it! cherie |
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Posted by: Lynne Martinez ® 01/23/2003, 16:03:33 Author Profile Mail author |
Dear Cherie, Welcome....and, thank you for describing how you found this forum on "Google", as well as explaining your daughter's situation. Sometimes we wonder how people find us. Because this is the NSDA (Spasmodic Dysphonia) bulletin board, it may not be the best place to find pertinent information but we have a great group so I'm sure folks will try to help as best they can, as I will below. Questions and some helpful hints: First: do I understand you that you don't want to get another device just like the one you have? Under normal circumstances, seems like it's a good idea to go back to the manufacturer, if the device worked. Second: when several of us were in Miami at the Worldwide Dystonia Patient Symposium recently, there was a young woman using one of the talking devices but I didn't get a chance to ask her about it. Third: in March, 2000, I attended a huge international conference called the "Technology and Persons with Disabilities Conference" sponsored by the Center on Disabilities at California State University in Northridge (CSUN). The university that sponsors this conference offers the most experienced contacts and advice, in the field of Assistive Technology, for disabled people. They've been forerunners for many years. They literally have every contact you would need, for assistive devices. CSUN-COD is a fine, selfless organization and that 4-day conference I attended three years ago (with 5,000 other disabled people, many of them blind, deaf and mobility-impaired) literally changed my life. Their website is "www.csun.edu/cod/." I guarantee you that they will be able to get you to the right place to support Desiree. The CSUN conference takes place every year in mid-March in Los Angeles, CA. If you can make it there, that might help Desiree also. I learned so much three years ago. Write me for additional information and best wishes. --Lynne Related link: http://www.csun.edu/cod/
--modified by Lynne Martinez at Thu, Jan 23, 2003, 23:26:50 |
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