newly diagnosed
  Archive
Posted by: Rhonda Hinrichs ®

01/24/2003, 17:43:37

Author Profile Mail author

I have so many questions an I don t even know if I an doing this right so I can get answers. I suffer with cervical dystonia / meigs / blephrospasm. What do I do with this, I just want to understand. Thanks






| Recommend | Alert   Previous | Next | Current page
Replies to this message


Re: newly diagnosed
Re: newly diagnosed -- Rhonda Hinrichs Top of Thread Archive
Posted by: Sarah Bayle ®

01/24/2003, 22:02:08

Author Profile Mail author

Hi Rhonda. Congratulations! You posted your post! Ask questions, give comment, read others, and let us know how you are. What is meigs? How does it affect your life? Introduce yourself and many of us will respond and provide you with support.

It is a great place for people with SD. Do you have Spasmodic dystonia?

Sarah Bayle






| Recommend | Alert Where am I? Original Message Top of Thread Previous | Next | Current page
Re: newly diagnosed
Re: newly diagnosed -- Rhonda Hinrichs Top of Thread Archive
Posted by: Moderator-DB ®

01/25/2003, 21:06:04

Author Profile Mail author

Hi Rhonda

Great that you are looking for support on the Internet.

Could I suggest you also try some other bulletin boards:

The DMRF one, which is for dystonia generally:

http://www.dystonia-bb.org/forums/asd/

then specific ones for cervical dystonia (aka ST = spasmodic torticollis) and blepharospasm:

http://www.blepharospasm.org/forums/beb/

http://www.a-zdoctor.com/cgi-bin/dcforum/dcboard.cgi

and

http://www.torticollis.org/ - click on message forum. The user name is NSTA and the password is "torticollis"

Each of these have distinctive styles - you should find at least one of them a useful forum for discussing common problems, symptoms, treatments and coping.

This bulletin board here is for spasmodic dysphonia (SD) which is a form of focal dystonia that affects the vocal cords - making the voice effortful and broken. You're welcome to read posts and post here of course, but you'll find that most of our readers are SD patients rather than cervical dystonia, Meige syndrome or blepharospasm.

Good luck in your search for answers

David Barton (Moderator-DB)







| Recommend | Alert Where am I? Original Message Top of Thread Previous |   | Current page