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Posted by: Lu ® 08/13/2002, 15:33:38 Author Profile Mail author |
I just had my first botox injection 6/12/02 and one month later I noticed my eyelids were very droopy, they look almost swollen. My eyelids were fine before the botox injections and wondered if anyone else had this side effect and does it go away after the botox wears off? Sincerely, Lu/AB |
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Posted by: Lynne Martinez ® 08/13/2002, 18:01:26 Author Profile Mail author |
Lu, Based on meeting you in person in Scottsdale and remembering your case as AB and taking Neurontin over time (right?), you should definitely discuss this with your doctor(s). Botox affects the muscle into which it is injected. Botox is not going to travel into a different part of your body. It's isolated and localized. In general, the biggest problem posters on this BB have with Botox is that their shots have not hit the right muscle or the doseage isn't correct, thus they are sometimes ineffective for our voices. The laryngeal muscles are extremely small and hard to hit precisely and difficult to tune. A vocal shot will not affect your eyelids, unless it hit completely in the wrong place. Droopy eyelids could be from allergies or from numerous other situations. As the docs at various symposiums have educated us (especially the excellent ones at the Michigan Symposium in March, 2001) - alot of things might happen to our bodies at the same time (with age or whatever) but it doesn't mean one causes another. It's good to keep track of your own body and everything that is going on, as you are doing, but we all have to be careful with "cause-and-effect." Some posters have suggested in the past that menopause might cause SD (because they often happen at the same time). But, men get SD also. So, be careful with whatever you get back (re conclusions), on this request for information. --Lynne (AD/SD; Northern California)
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Posted by: Lu ® 08/14/2002, 11:36:57 Author Profile Mail author |
Dear Lynne, As always thank-you for taking the time to respond to my question and as any good patient would do will be checking with my Dr. during my next appt.. You were very informative and I appreciate the info. you passed my way. I did look up botox side effects on the internet yesterday and also came across a booklet on Answers To Your Questions About Botox that I had picked up in my Dr.'s office while waiting for my appt. months ago and sure enough on both they mention droopy eyelids listed as one of the most frequently reported treatment related adverse reactions in patients receiving botox treatments. This was not for cosmetic botox by the way. I knew my Rx's nor anything else I had been using or taking had changed which was my immediate thought. So, I was just curious to see if anybody else had this same reaction and after 2mos. I still have it so I'll be curious to see what the Dr. says. I understand that most of the bulletin board is A.D. instead of A.B. so I might not get much of a response since the injections and reactions are so different from each other. Anyway, thanks again and I'll see what the good ole Doc. has to say next month when I go in. My best as always!! Sincerely, Lu |
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| side effects as per FDA | |||
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Posted by: micki ® 08/14/2002, 12:04:29 Author Profile Mail author |
According to the US Food and Drug Administration: The most common adverse events following injection [of botox] were headache, respiratory infection, flu syndrome, blepharoptosis (droopy eyelids) and nausea. Less frequent adverse reactions (less than 3% of patients) included pain in the face, redness at the injection site and muscle weakness. These reactions were generally temporary, but could last several months. Micki
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Posted by: Lu ® 08/14/2002, 14:44:09 Author Profile Mail author |
Dear Micki, Thank-you for that invaluable info. you passed along. I'm feeling much better now after what I read and what you just passed along especially the part of the reactions were generally temporary, but could last several months. Whew, I was beginning to wonder if I was going to have to go in for a eyelift after the botox wore off.(only kidding) I guess it just goes to show once again how differently we all react to botox. Thanks again!! Sincerely, Lu/AB |
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Posted by: Laurie ® 08/14/2002, 17:07:55 Author Profile Mail author |
Since this statement allegedly came from the FDA, I would assume it relates to the potential side effects of the use of botox for blepharospasm (the form of dystonia which causes involuntary eye spasms), strabismus, and/or facial lines and wrinkles, as all of those conditions carry the FDA's approval for botox treatment. I would bet a large amount of money that blepharoptosis can not result from botox injections for spasmodic dysphonia. There is no logical connection (and just to be clear, the logic that "one cannot prove otherwise" is a non-argument). The fact that "pain in the face" is also listed as a side effect, further confirms to me that these side effects are not related to laryngeal injections. If one is treated by a neurologist (who also treats blepharospasm), it would make sense that these side effects would be listed in an office brochure as it would appropriately apply to those patients. --modified by Laurie at Wed, Aug 14, 2002, 17:17:23 |
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Posted by: Lu ® 08/15/2002, 13:48:16 Author Profile Mail author |
Dear Laurie,
My booklet read Botox as a whole and didn't specify just blepharoptosis just as the article I read on the website regarding side effects of Botox didn't specify it either. I'm not an expert and sure hope I don't come across as one but I do believe everyone probably reacts to Botox in different ways. I never received a shot in the eyebrow and that is the first I've read about anyone having it done but I'm sure their proably are people who had it done. I've just learned something new which is a plus because I didn't know they did it before now. Anyway, I will check with my Dr. who I'm sure will shed some light on all of this and although I do believe the Botox did cause my droopy eyelids I sure don't want to discourage anyone from the shots but just to inform others which this B.B. has been wonderful in doing. I just hope we all keep in mind that we are all different and are open to the possiblities that everyone can have different reactions to Botox. Best wishes as always and defintely no expert!! Sincerely, Lu/AB P.S. My wonderful parents always taught me never to say never and I always try to come across sensitive to others so please accept my appreciation and gratitude to those who took the time to respond. --modified by Lu at Thu, Aug 15, 2002, 13:56:19 |
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Posted by: will blum ® 08/14/2002, 20:12:47 Author Profile Mail author |
Sometime when a person get their first Botox injection, the doctor will inject a little botox into the person's brow to find out if the patient is immune to Botox. I think this may explain the droopy eyelid. |
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| Allergan's own warnings | |||
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Posted by: micki ® 08/15/2002, 10:52:37 Author Profile Mail author |
You can read what Allergan says about adverse reactions based on their own studies, which were submitted to the FDA. Basically, they say the same as the FDA but add even more precautions and adverse reactions. One comment: Systemic reactions would not depend on where the botox was injected. |
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Posted by: henry mandel ® 08/24/2002, 08:57:06 Author Profile Mail author |
Hi Lu and folks. A late reply. I'm a male, w/ SD since about 1992. Mine has been a slowly evolving case with very little impact on my lifestyle. It has been getting progressively worse. I still haven't felt the need (taking into account risk/reward benefits in MY case) for Botox or surgery. Since I'm happily married, able to perform my job as a counselor without problem and already am 58 yrs old, I hope not need any treatment for symproms. About 18 months ago, I started to get the symnptoms of Blepharospasm. So for me there is a connection. The possibilities are endless. I am especially concerned because, the eye problem is the worst driving at night or when tired. This could contribute to an auto accident! Lu, I'd trade your droopey lid for my involuntary squints/blinks/closures. :-) Best wishes to you and I'll watch for your further progress reports. |
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Posted by: Dee in OR ® 08/24/2002, 11:16:11 Author Profile Mail author |
Hello Lu, I don't usually post on this BB but I was browsing and your post caught my eye. I get botox injections for blepharospasm and if the dosage isn't right or the doc hits the wrong muscle, I get what is called "ptosis" or droopy eyelids. It goes away as the botox wears off. Blepharitis is more of an inflammation of the eye lid. Micki posted a link to the Allergan web site and I think it would be good to read that. It does say that sometimes the botox can "travel" from the injection site to other muscles. I don't know about SD, but for those of us with the blephs, we can't lay down for about an hour after we get our shots. I usually feel a little flu like after my shots, but it goes away quickly. I have been very luck and have had minimal side effects and great results. Good luck. DeeOR |
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Posted by: Brenda from La ® 04/29/2003, 09:02:38 Author Profile Mail author |
Hi Lu,
I am also having problems after my botox injections about 4 weeks ago. My left eye is half closed and my right eye is half closed with the lower lid turning into the eyeball. Very irritating. I have been told that that is usually because of too much botox. I don't know but are we to have these problems every time we get the shots? |
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Posted by: Lu ® 05/01/2003, 19:35:07 Author Profile Mail author |
Dear Brenda,
I'm sorry to read about the problems your having with the droopy eyelids and your botox injection. I don't know if your AB or AD? If your AD I can only say that I haven't read about any who have the droopy eyelid problem which could be good news for you and the few who are AB that post on the b.b. it's the same conclusion. Alot of AB's that I've spoken with aren't getting the same good results with the botox as the AD's which I understand because everything about it is so different. Several have dropped off the b.b. I'm guessing out of frustration because this disorder is just so frustrating not because of the b.b. itself. I wish they would've stayed on because then maybe we would've seen others postings about side effects they could be dealing with re:botox or Rx's. I chose not to have any more botox injections because they didn't work and the eyelid problem. I would love to be able to answer your question but as you well know everyone is different and each injection is different so I don't know what you can expect in the future with any more botox injections. I do know that with the side effects you described if it were me I would immediately call my Dr. to set up an appt. to discuss the droopy eyelid problems your experiencing while it's in the state you described or at least take pictures to show him if you can't get in right away. Best of luck and please let me know how your doing. You'll be in my thoughts. Sincerely, Lu |
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Posted by: Brenda from La ® 05/02/2003, 20:38:32 Author Profile Mail author |
Thanks, Lou for your answering me. I don't know if I am AB or AD. The doctors around here are literally being educated by me about these diseases. I was diagnosed in January with Blepharospasm and it went downhill from there. I now have spasms in my nose, around my mouth, in my nasal passages, throat, and larynx making it difficult to take a smooth breath, if you know what I mean. I squeak, wheeze and gasp, making my Pulmonologist diagnose severe asthma, which I don't really think I have. I know I have some asthma..especially when my grandchildren decide to share all of their germs with me...and when I get a cold or bronchitus, which is very, very often now..but I KNOW that the breathing problems is due to the spasmotic dystonia. Like I said , I am new to this and just learning but I am learning from all of y'all and the internet, thank God. Meanwhile, I have an appointment with my doctor this week to look at my eyes again. He says it was too much medicine..meaning botox. If I get a real good night's sleep and don't do anything during the day, my eyes stay at half mast and are not too bad. I am - or WAS a portrait artist..and if I try to paint for about an hour/hour and a half with one eye, then my eyes are closing big time by 4:00 pm. But at least I can get in that hour...thanks again for answer me and good luck to you! Brenda |
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Posted by: Con2003 ® Con2004 04/29/2003, 12:02:44 Author Profile Mail author |
According to info at http://www.botoxforum.com,
Systemic (whole body) side effects of botox can include headache
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