Botox injections through the mouth (oral injections) | ![]() | ||
Archive |
Posted by: James D. Anderson ® 08/27/2002, 14:27:42 Author Profile Mail author |
I began receiving botox injections for Spasmodic Dysphonia in January,1992. The physicians are located in Baltimore, Doctors Samuel Lumpkin & Andrew Goldstone. My first injection was through the neck or what I understand is called subcutaneous. I considered not returning because of the displeasure and discomfort with this procedure. The injections are given once a month on Sundays. My preinjection voice returned and I set another appointment. Upon returning the physicians described a different procedure. The botox injection would be done through the mouth or an oral injection. I have received oral botox injections for ten+ years and recall only twice needing to go back to have a second shot. I retired from the Arlington County, VA firedepartment last year after a diagnosis of Asthma. My wife and I are moving to Tampa, FLA next month. Many doctors perform botox injections but few perform the oral injections. The NSDA is sending me a list of physicians that perform botox treatments. My understanding is the list does not define the procedure used. If anyone is aware of a physician in Florida that is willing and able to perform oral botox injections please respond. Thank you
|
| Recommend | Alert | Previous | Next | Current page |
Replies to this message |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: William Vanderlinde ® 08/27/2002, 14:56:55 Author Profile Mail author |
James, You don't need to wait for the NSDA to send you the physician referral list, it is available on-line at: http://www.dysphonia.org/nsda/healthcare/ But you are correct, this list does not specify whether the physician performes a specific procedure such as per-oral injections. Good luck. Bill Vanderlinde
|
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: David Barton (NZ) ® 08/27/2002, 15:25:29 Author Profile Mail author |
James, welcome to the NSDA bulletin board! A couple of questions regarding your oral injections ... Do you have them under general anaesthetic? If not, what is done to deal with the gag reflex? Thanks! David Barton (AD/SD, Auckland, NZ) |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- David Barton (NZ) | Top of Thread | Archive |
Posted by: Shirley A. Prather ® 08/27/2002, 18:36:14 Author Profile Mail author |
How does the Botox concentrate into the vocal chords if it is given orally? |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- Shirley A. Prather | Top of Thread | Archive |
Posted by: David Barton (NZ) ® 08/27/2002, 18:55:00 Author Profile Mail author |
In this context 'orally' doesn't mean in pill form to go into the stomach and be digested. The 'oral injections' here means that instead of the needle being inserted through the skin (per-cutaneous) at the front of the throat (larynx or Adam's apple area) the needle is being inserted through the mouth and then over the tongue and down the throat until the tip reaches the larynx - then the doctor would inject the vocal cords from inside the throat. My questions to James related to whether this needed to be done under general anaesthetic, and if not, how did he tolerate the gagging reflex or how was his gagging reflex suppressed. In passing, I would note that this 'per-oral' method is not used by the overwhelming majority of SD treatment centres. At symposiums when this topic has been raised the experts have said that the success of the Botox shots is unrelated to the method used (per-cutaneous or per-oral), and that most patients find the per-oral method hard to tolerate, and that repeated general anaesthetic every 4 months or so just for Botox injections would not be recommended. A skilled and experienced physician with a good working knowledge of the larynx knows where to put the needle coming in from the front (per-cutaneous) and the emg guidance provides confirmation that the needle is in the right spot. David Barton (AD/SD, Auckland, NZ) |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- David Barton (NZ) | Top of Thread | Archive |
Posted by: James D. Anderson ® 08/28/2002, 08:29:25 Author Profile Mail author |
The 'per-oral' method of botox injection may not be used by the majority of SD treatment centres. Having had both types of procedures I agree they both are effective. I would disagree on most patients finding the per-oral method hard to tolerate. Most centres in my area Washington,DC and now in my new location Florida do not offer the per-oral method. I believe the Baltimore center provides most of their injections per-oral. My injections were all done under local anesthetic. It is simply a patient comfort question. The 'per oral' botox injections are less invasive and when done by a qualified physician actually almost pleasant. James Anderson
|
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: Lynne Martinez ® 08/28/2002, 17:57:38 Author Profile Mail author |
James, I truly believe in "whatever works" but, anticipating possible Botox treatment for myself, the "patient comfort" issue you mention is paramount. Since my vocal surgery years ago, I have a major (**MAJOR**!!!) gag reflex. I can't even swallow pills anymore (the inability to swallow pills only started with my vocal surgery in 1996). I barely got those Neurontin pills down, and they are capsules and smoothe. Other SD'ers I've met have said this is an issue for them also and the description seems to generate a gag reflex, expecially in those of us who already have one. James...I know alot of people who travel cross-country for their shots, so might this not be a possibility for you? If I had a treatment plan (and someone, a doctor) which worked over the years, I'd be a bit reticent to start anew. Just my personal opinion. Can you fly back to your routine doc every few months rather than begin anew? Good luck, --Lynne (AD/SD; Northern California) |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- David Barton (NZ) | Top of Thread | Archive |
Posted by: James D. Anderson ® 08/27/2002, 19:09:45 Author Profile Mail author |
David: The oral injections are done using local anesthetic sprayed in the mouth and placed in the throat. The curved tube used for injection only contacts the top of my mouth as the needle at the end is inserted into my vocal chords. The time required for my throat to become numb enough for the procedure is typically less than five minutes. The whole procedure is complete in 7-9 minutes. James Anderson
|
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: gavin hadley ® 08/28/2002, 10:14:22 Author Profile Mail author |
Hello James.. Interesting thread. I have had injections thru the front of my throat for about 3 yrs. now and, although I can't describe them as being pleasant, I have very little anxiety about them now. The only real discomfort I experience is the initial numbing shot. The botox needle is not especially uncomfortable unless doc happens to struggle hitting the muscle. Normally I am on the table for no more than one minute max. Gavin Hadley |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: Mary b ® 08/28/2002, 18:46:27 Author Profile Mail author |
Hi, I'm glad to finally find someone that has had both kinds of injections. I have only had one botox treatment and it was oral. I'm not sure I want another oral injection b/c I had so much choking when I was finished. I sat in the doctor's office afterwards since I wasn't allowed to leave while people stared at me as I coughed and choked. What have your experiences been? To answer your question, I would think if you called one doctor's office in you new area they would be able to tell you if there is anyone that does the oral injections close to you.Perhaps you could also find out if there is a support group close to your new home,if so surely someone in the group would know. Mary B |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- Mary b | Top of Thread | Archive |
Posted by: Linda S. Adamson ® 08/29/2002, 08:07:24 Author Profile Mail author |
What an interesting, enlightening discussion! I'm going to guess that most who have been posting on this topic are AD, since I gather those shots, when per-cutaneous, are given from the front of the larynx. My AB shots have to be given into the PCAs in back of the larynx, which sound like they would be more uncomfortable -- but Dr. Paul Flint must be a genius at this, because I don't have anything I would even describe as discomfort from the procedure. I think the skill of the specific doctor is probably the determinant of what method works with the least negative effect on a given patient -- and perhaps there's an effect from individual physiology (short or long neck, heavily muscled or lean, etc.), and possibly from differences based on gender-linked characteristics of the larynx area. (No Eve's apple!) Thanks so much for opening this original thread - I've learned a lot!
|
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- Linda S. Adamson | Top of Thread | Archive |
Posted by: Doris White ® 08/29/2002, 21:09:43 Author Profile Mail author |
I had an interesting morning when I went for my 21st Botox injections and thought I'd share this with you all. I have always been told I had ADductor SD with tremors but today my otolaryngologist and neurologist (after hearing me greet them and make small talk) asked me to repeat about 8 sentences my otolaryngologist came up with. They both heard AB as well and said they thought I had mixed AD/AB/SD with severe voice tremors which I have thought about many times and also wondered just how many of us might have the "mixed". They decided to inject both PCA and TA muscles but I preferred to go slowly as I have no idea what effect injecting the PCA muscles might do to me so they just did those. They were very accomodating and gave me the choice as to how much to inject...I went with 2.0/bilateral for starters. (I had planned on asking for 3.0/bilateral to the TA muscles this time instead of the usual 2.5 or 5.0/bilateral). I will say that injecting those PCA muscles was a piece of cake...never even felt them and I always dread the usual ones as these were done in a minute compared to perhaps 5 min. for the others. We'll see what happens over the next couple days. My neuro told me if it didn't work, not to wait my usual 6 months but come back and they would inject the TA ones, also. I was also pleased at the great empathy they both showed me today. Doris |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Re: Botox injections through the mouth (oral injections) -- Doris White | Top of Thread | Archive |
Posted by: Lynne Martinez ® 09/01/2002, 02:23:09 Author Profile Mail author |
Hi Doris, This is great news and when you mentioned the possibility of having "mixed" recently on AOL "Voices," I was hoping to hear a report like this. The way you've described how your voice sounds on chat definitely seemed like it was a possibility. Congratulations on moving on with your treatment and being creative with your doctors! I'm looking forward to hearing how your current injection-cycle goes. My theory is that there are alot of folks out there who have *mixed* but don't know it yet. It's so complicated to diagnose and "mixed" confuses even the experts. Keep us posted. --Lynne (AD/SD; Northern California) |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: meredith ® 08/31/2002, 10:24:32 Author Profile Mail author |
I have never received oral injections but have had several different neurologists over the years. My comfort during injections depended on the doctor administering them. Fortunately, the first experience was very good. When I saw another doctor who's treatments were akin to torture, I knew that I needed to find someone else. The treatments should not be painful. Meredith Russell |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | Next | Current page |
Re: Botox injections through the mouth (oral injections) | ![]() | ||
Re: Botox injections through the mouth (oral injections) -- James D. Anderson | Top of Thread | Archive |
Posted by: john s. beeman ® 08/31/2002, 13:02:31 Author Profile Mail author |
Wow! This proves the saying "different strokes for different folks". Like Gavin, I had injections thru my neck for over 10 years. While there were moments of unpleasant sensations, the process took a minute or two, max. On the occassions I had anything down my throat, it was very difficult to hang in there and not gag or choke. I could do it, but it took great effort. James, I've seen doctors at Univ. of S. Fla., Moffitt Cancer Center in Tampa - and Dr. Gayle Woodson, Univ. of Fla. in Gainesville, Fla. Since I had the Berke procedure (didn't work so well) I'm seeing them for other evaluations, but I know they give botox at both facilities. On the folks in Fla., "How" they give them, you'll need to inquire. I also saw Dr. Goldstone who injected my right cord with saline to see if it would improve my voice quality. He gave it via the curved needle in the mouth, while I held my tongue. Not the most pleasant procedure although he was most pleasant. John |
| Recommend | Alert | Where am I? Original Message Top of Thread | Previous | | Current page |