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Posted by: Joe S. ®

04/11/2003, 20:55:30

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Hello to all! My name is Joe and I am from the South Shore of Massachusetts, having recently ( two days ago) been diagnosed with SD. As I have had a voice issue for the past three months and now have a diagnosis which explains what is going on, I am curious to learn more about the condition. I am a High School counselor having to use my voice a great deal during the day, as most people do.

It has been recommended that I first spend some time with a speech therapist, while also considering the idea of having a Botox injection treatment. As all of this is so new to me, I am looking for advice/direction on the best way to look at these tretment options and experineces which people have had with them in the past.

I have learned quite a bit from reading many past messages on the Bulletin Board and am even more curious as to what comments are out there for the "new" kid on the block!

Thanks for any input you may have!

Joe S.







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Re: New Member
Re: New Member -- Joe S. Top of Thread Archive
Posted by: David Barton (NZ) ® Moderator-DB

04/12/2003, 02:28:55

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Hi Joe - welcome to the NSDA bulletin board - you'll find you are among new friends here, and that collectively we have plenty of experience and support to offer, as well as wanting to listen to what you have to say.

The suggestion that you carry out some speech therapy first is commonly made to new patients. It often helps unload compensatory speaking habits you may have developed in order to deal with your SD. Sometimes even expert doctors can be slightly unsure of the diagnosis and recommend speech therapy in case the patient actually has 'muscle tension dysphonia' or MTD. MTD is a functional voice disorder and does respond to speech therapy quite well - in contrast SD is a neurological movement disorder (dystonia affecting the larynx) and speech therapy is of limited benefit in most cases.

If you have ADductor SD then Botox injections are currently considered to be the treatment of choice.

Good luck, and let us know how you get on.

David Barton (AD/SD, Auckland, NZ)







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Re: New Member
Re: New Member -- Joe S. Top of Thread Archive
Posted by: JOHN S. BEEMAN ®

04/12/2003, 07:26:11

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Welcome Joe. You will find a wealth of information on this bulletin board. As you might expect, individual preferences may vary. Some contributor will note if the have ADductor SD or ABductor SD as information on the physical aspects will vary according to the type (there is also mixed). I received botox for 10 years with fairly good success. In 2000, I had surgery performed, referred to on this site as "SLAD" - but with poor results. Search around, ask questions - it can be quite informative. John (AD/SD - SLAD)






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Re: New Member
Re: New Member -- Joe S. Top of Thread Archive
Posted by: Dan Couser ®

04/12/2003, 11:19:44

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Hello Joe,

I was born in Massachusetts but have lived in Utah for 30 years. I have been receiving Botox injections for ADSD for the past 10 years. I receive them around 5 times per year. My health insurance covers the cost of the Hospital Clinic, the Doctor, and the Botox. I used to teach alot at the college level and for my employer, but have given that up as you can never commit to speak a month or so in advance. Some things that may help you that have helped me are: use a wireless microphone if you can, that will keep you from straining your voice. I also use a phone that amplifies my outgoing voice.

Initially I received 4.0 units of Botox in each vocal cord area, but after experimenting with the amount of dosage and different sides, I am finally at a point where 1.0 unit down to .5 unit of Botox in the left-side only is the best for me. Generally, you will find that after a Botox injection you will have a voice cycle something like this: For the first month a breathy, whispery, and somewhat strained voice. For the next 2 to 3 months a pretty good voice, and then the Botox wears off quickly and you have to return for more injections. You will want to schedule your next Botox injection at the time you get your first one. If you wait until it completely wears off and then have to wait another month to get an appointment, it can be a miserable month of waiting, especially if you have to interact daily with other people. I also have a phone answering machine to take my calls when my voice is bad and I don't want to talk or can't talk loudly. My Doctor gives me a shot of lidicaine first to deaden the neck area, and then he gives the Botox injection. The needle is wired to a monitor and you are hooked up also so that they know they are in the correct area.







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